Bethanecol

[Anonymous]

Poor sweetie. She seems to be very uncomfortable. Are you going to try to get her Prevacid increased? Or maybe try Pepcid Complete?

Good luck. I hope you find relief for her soon.

[Anonymous]

I responded to your other post as well, but I just wanted to add that very few drugs are approved for pediatric use. I have several friends that work in feeding clinics and NICU and they all recommend bethanechol as an alternative to reglan. As others have said, I would want testing done to see if she actually has DGE (especially since she is almost 2), but her symptoms could match DGE. Poor appetite, gaining weight slowly and gulping could just be silent reflux, but they could also mean that her stomach isn’t emptying fast enough.

As I said in my other post, bethanechol didn’t work for Kaelyn but I found it to be much less scary than reglan.

[Anonymous]

I really think that you should try to find a new doctor. I hate it when doctors are willing to consider surgery before trying a higher dose of PPI. It tells me at the very bare minimum that they’re not up to date on their research, which basically holds out surgery as a last resort. Have you showed this doctor the marci-kids information? If so, what did he say? If not, I would do that, and if he doesn’t give you the time of day, then I really would look for another doctor. I believe that 360+ reflux episodes is considered on the high side. It is possible that a motility med is warranted given her probe results, but I would want to make sure she’s protected and get a high dose of PPI. I would also want to do the endoscopy to check for damage. Where do you live? Maybe we can help you to find a doctor who will listen. Good luck.

[Anonymous]

personally, i think that your doctor sounds like he knows what he is talking about. your daughter’s reflux percentage is pretty high—-you are in a different ball game than most of the mom’s on this board. the severety of reflux is determined by the amount of damage that has been done to the esophagus.(cellular changes) symptoms can often be deceiving. the results of your daughter’s endoscopy should shed some more light on things. since a fundo is major surgery and they are under anesthesia for quite a while, you might want to give the motility drug a try before going that route.

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