Dr Laura Fishman Boston Childrens

[Anonymous]

Hi there –

I’m not the person who recommended Dr. Fishman but Owen does see her and her NP Mary Grimanis and we love them. LOVE THEM. However, they don’t prescribe the medication that Marci-kids recommends – I think the highest they will prescribe is 1.5 mg per kg.

That said, I can not say enough positive things about Dr. Fishman and Mary. Mary has called us on Friday nights at 9pm just to see how Owen is doing – I’m sure we could not have gotten better care from anyone else. Owen has done wonderfully under their care, even though he has never had nearly as much medication as recommended by marci-kids. I’m not sure if it’s because they used other methods or if it’s because Owen’s case was not as severe as other people’s (although it did seem severe to us!), but I really can not say enough about how wonderful they are and how supportive they have been of us and Owen throughout all of this.

I’m not sure if that helps, but if you were uncomfortable with who you saw at Children’s they really are a wonderful team who I have spoken highly of many times in the past. We’re actually going to do the Walk For Children’s Hospital in June because of how great they have been to us for the past year or so.

If I can help in any other way please let me know.

Thanks!
Laura

[Anonymous]

We see Dr. Rachel Rosen at CHB. She has been very aggressive in treating Ali’s reflux. Not quite the Marci-Kids guidelines, but aggressive nonetheless. Ali weighs 18lbs and takes 20mg of omeprazole a day, 16mg of Pepcid a day, and Carafate as needed.

[Anonymous]

Elijah saw Dr Israel, who is the head of the GI department I believe at CHB.

I faxed her a letter with the Marci info and she did call back but had not been able to read the info yet.

I was wondering if they use the MARCI dosing reccomendations.

But if you say they treat it aggressevly, I hope she is onboard with that!

At least she did prescribe the PPI, we were just concerned about the dosage and the stability.

The pharm said there were only a few flavors that could be mixed with
Prilosec suspension, and he hated the watermelon flavor but then they
flavored over the watermelon with grape

She did say though to not give the pepcid but maybe she will add it. Who knows.

We see her next Tuesday and he is doing a little better. I hopefully will have the caracream info from the pharmacy by then.

[Anonymous]

I’m not familiar with Dr. Israel. Dr. Lencer is the Chief of Gastroenterology, and Dr. Leichtner is the Associate Chief. I know the doctor we see does not seem to follow the MARCI guidelines, but like I said, is aggressive in her treatment (4mg/day short of the MARCI guidelines) and we’ve had no problems. We haven’t had too many problems with the stability of the Prilosec (our insurance lets us refill it 7 days prior to its expiration date, so we’re really refilling it every 3 weeks). We don’t flavor it at all, though. I know that can interfere with stability. I wonder why she said not to give the Pepcid, too. We’ve never had any problems using both H2 blockers and PPIs, have done so with both girls, and while under the care of different GIs. I do know everyone is different, though.

Anyhow, good luck with getting Elijah on a therapeutic dose so that he feels better soon!

[Anonymous]

Dr Israel is at Mass General Hospital for Children, not Children’s Hospital (unless there are two of them!) And flavoring the suspension is a big no-no. Where are you located? They should direct you to a pharmacy that knows what they are doing…

[Author]

Posts