Dr. Thompson in Boise

[Anonymous]

Hey,

I just wanted to check back and let you all know how our appointment with Dr. Thompson in Boise went. I wasn’t quite sure where I should write this but here goes….

We saw him last Wednesday. He was well prepared for the appointment. He had read and digested well David’s records. He was very nice and seemed very knowlegeable. He took plenty of time, and was a good listener. To be honest, he was much better prepared for the appointment than I was.

He said that he didn’t think we’d gotten to the heart of David’s problems yet, that it seemed more like we’d been covering them up with band aids. He said he doesn’t think that David has reflux at all. If he did, he thought he should have been much better by now (on the meds he’s been taking).

He said that he really thinks that he has Eosiniphilic Enteropathy. It would explain the intestinal stuff as well as the continued irritation in his esophogus. He set up an appointment to scope both top and bottom so that we could find out for sure what is going on in there and get biopsies (we do that next Wednesday). They are also going to get blood for a bunch of lab work while he’s under.

I told him that one thing I was concerned about was whether David had a zinc deficiency since Sarah had had one and his skin has been so bad. He said it’s a definite posibility and said they would take a zinc level too. I have brought that up a number of times to my ped and several other doctors previously. It was such a relief to have him be so open to checking.

While I am not thrilled that we might be dealing with EE, I am so thrilled to feel like someone was finally listening and is willing to go in and figure out what is causing internal bleeding etc.

One other thing I felt good about is that I have felt that it was totally wrong to be pushing solids down David when they cause increased mucus in his diapers, rashes etc. Especially with knowing he’s anemic because of blood loss it seems like you would want to decrease inflamation not increase it (Both Ped and Ped GI’s recommendation). Anyway, it sounded like Dr. Thompson was definitely on the same page with that without me even bringing it up.

I could not have been happier. There was not one thing that concerned me or that I felt like we’d been headed in the wrong direction with that he did not address. And that was without me being entirely clear (I’m not the best communicator when I’m short slept and stressed out).

Anyway, thank you all for your suggestions and helping me have the courage to try someone new!

Kara

[Anonymous]

That’s such great news that you found a doctor you can talk to and trust. I hope the scope gives you some answers and that this doctor can help you get to the bottom of all David’s problems.

Good luck with the scope and please keep us posted.

[Anonymous]

kara—-i’m glad your appt. went so well!!! i was hoping you would like him as much as i do!

kara—i was just looking on another thread you posted on and said you had a son on a mission——i can’t remember if i told you that my daughter is in the MTC right now. she leaves for oakland on the 25th of this month. you have kids spread way out in ages like i do. my oldest is 23 and my youngest is 3.

kevieb2006-10-18 11:31:18

[Anonymous]

So glad that someone is willing to do some testing on him – hopefully it will provide some answers and a treatment! Keep us posted

[Anonymous]

I’m so happy to hear that the appointment went well. I hope that the scope gives you answers that take you in the right direction. Keep us posted.

[Anonymous]

Hi Kara,
I’m so glad to hear that you found such a good doctor! It sounds like you’re on the right track to finding some answers. I hope the scope goes well & gives you some answers. Good luck, & keep us all posted.

[Anonymous]

Hi Christine,

We’ve got a nineteen year spread between our oldest and youngest. Kind of Crazy! I was just glad Nathan got to meet David before he left for the MTC in February. Actually, he was home in January and I don’t know what I would have done without his help. He would watch David when he got up in the mornings for an hour or two and it was the only solid sleep I got. I went into withdrawl after he left.

Would you mind if I e-mail you with some specific questions about your experiences with kids and general anesthesia at St. Lukes?

Thanks,

Kara

[Anonymous]

i don’t mind at all! we love st. lukes.

[Author]

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