Feeding Schedule for 9month old

[Anonymous]

Hi Thais-
Yes, EI seems great and they told us that he would most likely qualify because of feeding and fine motor. Everyone said it’s all reflux related-not crawling earlier(although he is now-yeah!!) and not putting things to mouth(they said this is also probably why he hasn’t broken teeth yet and has been drooling since 3months). The tips in evaluation have been amazing already-they even gave me online catalogs for kids with speech delays (teething toys, etc). And yes, feeding clinic did tell me to focus on getting Ian’s tongue down because he’s not quite doing that yet. We have been trying to do that but Ian just gets upset when we do-confused. Remember Ian only started solids at over 7 months so it makes total sense that he eats like babies that are 6 months because they most likely have had two months of practice. Plus we had alot of stop and starts in the beginning. ST. Josephs did want us to come more often but it’s too far to come once a week and work on it so they did suggest EI in addition to our once a month with them. EI was so generous to us and no one was super concerned about Ian’s delays but they all seemed to pull together to get him approved so it doesn’t turn into something worse.

I’m so sorry St. J hasn’t helped you guys more-I really am. Which dr. are you seeing over there?? I know Matthew’s on a g-tube and it’s not the same hurdles that Ian has, but they each have hills to climb. If you don’t see Dr. Eicher, I would really really recommend you give her one shot before stopping altogether. I think she’s the top banana there and she has made herself accessible. Also, I know Matthew will probably need intensive therapy as you said, but perhaps she could help assist with approvals…? Just a thought. Hope he’s feeling better these days!
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[Anonymous]

Thanks – sounds like you guys have a plan. Glad that EI is working out. Again, i think it is a great program if you qualify but we are having some issues because he does not have an area of 30% delay or 2 with 25% each… and they are having trouble giving him a push, especially when he is really moving around now. We have spoken to a lot of people about this and the limitations of the program and they all agree that it does not cover some patients that need it because it started out as a small program and the def are a bit outdated!!! Ie if Matthew did not have a tube and he was smaller and losing weight and refusing to eat and moving less because of less food intake and dehydrating etc and therefore lagging behind developmentally he would qualify BUT because we have tubes nowadays (and thank god and medicine for it), these children are healthy and can develop properly and thrive and there is nothing specific in the program about tube dependency (i hope i am explaining it properly).

Well, glad they told you about his delay at the clinic!! I know each one has hills to climb and i am not comparing what is harder BUT the protocols are different for different babies – ie if the reflux has caused Ian to be delayed in fine motors and everyone is so not worried and the tricks with him work, it is great. But as i said before, if the reflux causes an aversion then it cannot be treated the same way and often requires very very intense therapy and most of the programs are unable to provide that therapy until babies are older because it is not about stimulating their mouths but about playing with their minds, and feelings and rewarding them for certain behaviours. We have seen everyone at St Joseph’s. The problem there is that their protocol is to treat babies as outpatients (ie see them around every 3 weeks if they are stable and on the tube) until they are old enough congnitively to be treated in their day program. (I have spoken to a few mothers who either currently take or took their children there and it was all the same for them) EXCEPT when babies are medically compromised (ie having trouble tolerating or gaining or making no progress (ie NPO totally)) or showing a specific delay ie like Ian’s that can be worked on with exercises. I am not saying that Matthew’s problems are bigger, i would never compare, but they are different and the treatment is, in general, very different and in nature, much more complex, unfortunately.

Again, i am really glad that it si working out for you!!

[Anonymous]

Glad EI is going well! How is he feeling – ear infection wise?

[Anonymous]

Hi Karen-ears appear to be better. He’s had a great couple of days-sleep is off (we’re at family’s this weekend) so overtired and belly is not great-some diarrhea and reflux but seems ok with help from maalox and probiotics (yeah!). Yes, very excited about EI. I can’t get him to focus on fine motor skills to save my life! All he wants to do is crawl and stand. Not eating solids great but I’m not worried until off augmentum.

How’s Marisa’s teeth??
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[Anonymous]

Hi Tracy – sorry I havent been around much, very busy at the moment. You should be able to get the Amaranth cereal from any health or wholefoods store, we get it from the gluten free section of our grocery store. When Tyler has a cold he seems to go off his bottles and the solids stay the same. I just let him have whatever he wants and he seems to catch up when he is feeling better. As for Tyler, he is doing great at the moment. He had his 12 month shots last week and he was fine. I was dreading them so much cause at 6 months he stopped eating for a week after his shots. His solids have really taken off, and he is eating wheat and small amounts of soy. He can eat sandwiches and cereal and this week even had success with peaches. He is completely weaned off losec and is even sleeping a little better. Fingers crossed he continues to improve.

Hope Ian is feeling better soon, Im sure he will eat more once he feels good again. Good luck.

[Anonymous]

Marisa’s teeth are driving her nuts! She’s happy and sleeping well but
eating is crazy. She’s boycotting breakfast and down to abotu 12 ounces
formula/day. Luckily she’s eating lunch and dinner pretty well
(especially lunch) and having some drinkable yogurt and water too…

Glad to hear our boy is feeling better! He’ll get there with the motor skills.

Amber – that’s great news with Tyler!

[Author]

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