gerd/celiac connection

[Anonymous]

Hey there

I am wondering if you guys know if there is a big GERD/celiac connection..I have noticed on the celiac board I am on a lot of posts about GERD, and now here I have been noticing some others with celiac kids with GERD…

Im asking since I have a 2 year old that has celiac, but didnt have GERD as a baby (he spit up tons, but no pain, and gained weight, and once we switched to soy, then nutramigen he stopped spitting up) but I have a now 3 month old baby girl, with GERD -which currently her pain is being controlled with her meds, and is on nutramigen and we may be switching to neocate….

anyways I ask since I am so wondering is she is going to have it to, and am trying to figure out when to intro gluten for her..I know we are doing solids at 6 months, and her dr wants us to wait to 1 yr to do gluten, but I have read some studies that says the window is 4-6 months to into gluten….

what do you ladies know, or what tips do you have…..

Thanks

[Anonymous]

My 19 mth is off gluten. I don’t have any answers for you, but we have a 2mth old as well. She won’t be getting gluten for as long as we can avoid it.

For us, it’s the way my son reacts to it. I don’t even want to chance it with my dd.

I don’t know if that helped you, but I thought I’d share.

[Anonymous]

i think the window for gluten is more like 6-9 months. both of my twins with celiac have gerd, but my 11 year old does not. i have reflux problems, but i don’t have celiac. i was really hoping that when my girls went gluten free their reflux would go away—-but no such luck.

[Anonymous]

Mason ( nearly 3) started with reflux at birth. His first visit with the ped GI was at 2 months, and they discovered he had “allergic colitis” IE soy/dairy protien intolerance. He still was failure to thrive/no weight gain and sickly~ diarrhea and refluxing. We finally scoped him at 2, and found he had celiac and the GI said he was “inflamed from the top of his gut to the very bottom, causing the reflux and the diarrhea.”

that was the explanation for the correlation from our GI.

His little sister has certainly dairy intolerance and reflux, but once testing the milk protien I refuse to test any of the others and would rather keep them all from her just in case.

ETA our ped GI didn’t want us introducing any gluten products into thier diets until after the age of 1. This included stage 2 foods and or baby cereals ( for fear of cross contamination.)

cherie0122006-11-6 13:46:59

[Anonymous]

Aidan has reflux but no food issues (other than with acidic ones, obviously) or milk issues. He eats whatever and hasn’t ever had a reaction to anything.But I know he is very lucky.

[Anonymous]

Thanks for the replies.

Yeah my sons reaction is horrid as well thats why Im wondering when to intro gluten, but since she is seeming to have MSPI issues we are just going to wait until at least a year…most of my food in my house is GF now, and I have plenty of kid friendly stuff once shes on table foods, so I figure in that way it will be easier…

I make my own babyfood so CC isnt an issue with us…Noah never had jarred food in his life..his first issues were with oatmeal at 5.5 months and then barley cereal….then we kinda knew cuz of his reaction…bad diarhhea and he got the DH rash…and the whole bloated belly, screaming in pain thing…not fun

its not fair there are so many issues to look out for at once

cheri…poor little guy to be that inflamed so young! Good thing you caught it young though

THanks

[Anonymous]

My ds was tested for celiac and the blood test came back negative. However, he has severe reflux, is on meds, and is at the least gluten intolerant. He is also dairy/soy/beef intolerant. He has failed food tests recently. When he eats gluten products he has horrible time sleeping and gets a little pustule/pimple like things on his legs. He screamed through every night until age 17 mos when we took gluten out of his diet. Things steadily improved from there-on. Just thought I would share. It’s an interesting thing to consider. I haven’t yet even thought about what to do with another child if/when we have another with food introduction…

[Anonymous]

Well our long journey has ended. I have 5 kids with reflux. 3 who still suffer from it. GUESS what? They have tested positive for celiac’s disease. My husband is being tested on Wed. The only one who is gluten free is Maggie. We are struggling with our 8 year old to get him gluten free and 17 year old thinks well its all hookie. He is in college so its not like we can tie him up.

[Anonymous]

Anne wrote: My ds was tested for celiac and the blood test came back negative. However, he has severe reflux, is on meds, and is at the least gluten intolerant. He is also dairy/soy/beef intolerant. He has failed food tests recently. When he eats gluten products he has horrible time sleeping and gets a little pustule/pimple like things on his legs. He screamed through every night until age 17 mos when we took gluten out of his diet. Things steadily improved from there-on. Just thought I would share. It’s an interesting thing to consider. I haven’t yet even thought about what to do with another child if/when we have another with food introduction…

Columbia University has done studies on the high false negatives in this country. Just because you get a negative blood test does not mean you do not have celiac’s disease.

[Anonymous]

heidi—we cook all of our meals gluten free at home—so nobody gets a choice for meals. we do keep some crackers, bread and cereal that have gluten for the other kids because it helps with the grocery bill.

oh yeah, after about a year of being gluten free, both of my twins were able to go off of prevacid. they only get an occasional flare of reflux, now.

[Anonymous]

We are really struggling right now. Maggie our baby was a peice of cake and she improved 1000% being gluten free. She still takes zegerid but I have started to tamper it down.

Our 8 year old has been a nightmare. He has only eaten about 10 foods in his entire life. We have struggled off and on with him going days not eating. When we went gluten free he stopped eating and lost a bunch of weight. He is small to begin with. I guess Liam looks like the classic poster child of a celiac’s kid. Both our rheumatologist and pediatrician have referred us for emergency help at our Children’s hospital for the GI clinic. We are part of the rheumatology clinic at Children’s and Liam has been seen in GI clinic before so we were suppose to be fast tracked there. I was told by the apt person Children’s hospital’s policy is to have the apt made in 48 hours that was 10 days ago. I have all kinds of issues with Children’s GI clinic after Maggie was hospitalized there. Thankful Dr. Philips helped us at Marci and Maggie is doing awesome. 21 pounds awesome at 6 months 3 weeks. Pretty good for a baby who would not gain weight and was in newborn clothes until 4 months old. Anyway, just from reading on line at Columbia University has people on staff that deal with kids like Liam so if we have to fly NY we will. I will be calling on Monday. Our pediatrician and my husband and I get that Liam needs to be gluten free but when he goes 7 days without eating we have problems. Right now he is allowed to eat whatever he wants when he wants no limitations. I can name everything he has eaten in the last week on my two hands.

[Anonymous]

heidi—do i have athis right—it is maggie, liam and johnny that have celiac? how were they able to test maggie at such a young age—i assume by biopsy since the blood tests are not very accurate that age—-although i figure thy must be positive for the kids that are really sick and have a lot of damage.

so withliam, do you mean they are allowing him to eat whatever he wants that is gluten free, or anything that he wants, period, gluten free or not?

i’ve got a great recipe for a fruit and cheese danish that is gluten free if you think that might tempt him.

[Anonymous]

Yes you have it right Johnny, Maggie and Liam. They are 99% sure with Maggie that she has it. The blood test was positive. She had a bad reaction to wheat in August. We controlled her vomiting with cereal. The zegerid helped a lot but she still would spit up every 5-10 minutes 24 hours a day. She had no quality of life. One day I gave her malt a meal and she had a bad reaction an hour or so later and it lasted 4-5 days. She vomited and had horrible diarrhea. She does not have a wheat allergy. Then they did the blood test and it came back positive. I understand with celiac disease that it usually is not caught until age 5. What I have not figured out is if it takes the drs that long to diagnose it or if it does not appear until that age. Anyway, since I have been gluten free she has done really good. She is still on zegerid but I am starting to wean her off. She is our gluten meter (not that I do intentionally). If I eat something with gluten in it she will start to spit up (she is breast fed). A month or so ago we went a few days with her spitting up all the time I could not figure it out we finally realized it was from the envelopes I had been licking. Who knew.

When I say Liam does not eat I mean he does not eat. He did not eat his Halloween candy, special treats etc (I bought two donuts for him and his brother today. Liam’s is sitting on the table with the a bite taken out of it that will probably be the only thing he eats today a bite). Right now he can have whatever he wants gf or non gf (yes we know we are poisoning our kid). He still is not eating very much not enough to sustain his 50 pounds. Like I said we are waiting for the GI clinic. Liam has always had eating problems since he started on solids. Now looking back on it I know he has celiac’s disease from a baby on. Liam has JA also so he does not know what it is like to feel good. We know now all of his problems are from celiac disease but he has texture issues and he also has super taste buds so a slight variation in food taste off for him. Anyway what we are thinking (pediatrician and us) is that he will go onto a feeding tube and we will go 100% gluten free. We can take the stress away of forcing him to eat. I cannot tell you how stressful it has become in our house convincing him to eat and its a loosing battle based on the amount of weight he has lost. It is insane trying to get any calorie in him. He loves water and life would be good if we would just allow him only to have water. We went to the movies for Thanksgiving and my husband tried to convince Liam to have juice or soda. Liam wanted water. I am sure the people around us thought we were crazy as Liam said I just want water and John was NO you need to have a sprite, Liam no just water will be fine and John was NO Liam mom says you have to have a sprite or juice.

I am not sure if I said or not but my husband started getting sick in September. All the classic symptoms of celiac’s disease of course he does not think its celiac’s. Finally convinced him to go to the dr. we got referred to a GI dr. and we say him last week. He wants to do a colonoscopy immediately. His next day for that is on Thursday. We actually like this GI dr. He was knowledgeable (shocking a dr. actually knowing what he practices ) and he had good people skills. I wish we could take Liam to him but he only sees adults.

I would love the recipe for the fruit and cheese danish. Liam will not eat it but I will. Funny thing is my son Levi who is 15 months older loves most of the gluten free food I have found.

[Anonymous]

i heard once that the reason that it is difficult to diagnose celiac disease when kids are really young is because sometimes they don’t start to produce Ttg antibodies until they are a little older.

i like gluten free pretzels better than wheat pretzels, but i can’t afford to eat them—-i only buy a couple of small bags for my girls.

i wish i knew which of us, kevin or i, carries the celiac gene–not that it really makes any difference—but at least our families might think to get tested if they started to get unexplained medical problems.

one of my celiac girls is not allergic to wheat, either—but she is the only one that has had food allergy testing. my dad seems to be allergic to wheat—he sometimes will have almost an anyphilactic reaction—i know i murdered the spelling of that word.LOL!!!

my mother had some blood allergy testing done and she also reacted to wheat.

if i forget to get the danish recipe posted for you—-please remind me—-my memory is kind of bad.

[Anonymous]

kevieb wrote:

if i forget to get the danish recipe posted for you—-please remind me—-my memory is kind of bad.

Did you post it yet?

[Author]

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