GI Appointment Next Week!

[Anonymous]

Heather

a gastrojejunal (hence GJ) tube is placed in some babies who throw up extensively, have delayed gastric emptying, aspirate etc because it bypasses the stomach and goes straight into the intestines. It is a catheter they insert through the gtube stoma (so it is like an extension) so the food never reaches the stomach.

Some babies have had this for some time, others end up with a separate J tube (like the Gtube but it is placed further down). It has helped some babies tremendously. I saw your on the other forum… ask maybe in the feeding tubes or motility forums or maybe do a search…. some people had to start with GJ or G, then go to a G and then finally oral feeds… some because they could not stop the throwing up

Thanks for asking about Matthew – it is a cycle and we will get there!! i may lose my sanity before that but he will be OK 🙂

[Anonymous]

Thanks Thais, I’ll have to keep that in mind if nothing else works. I’ll have to look around the other forum too, although I must admit, it’s a little overwhelming for me

[Anonymous]

I know what you mean by overwhelming…. but i try to stay focused on some forums only – ie i do tube feedings and feeding aversions mainly… then you get to know the mothers there and kind of stay in touch with a few!!

Good luck with the meds… hope your little man puts on some weight… Matthew had some trouble gaining for a while (although we were always on the charts) but that has changed now…

[Anonymous]

heather – so glad you finally got in to see the GI! I agree with PP – that they couldn’t see him sooner with his slow weight gain.

oh mama, and I thought we had problems! I will be praying for little Bryce. Hope this new plan of attack works!

Also, I found also that our GI was very receptive to the marci-kids info. I think he was amused and surprised at how informed I was and how involved I wanted to be in Rachael’s care. Keep it up – I truly think it makes a difference!

[Anonymous]

Thanks Valerie.

That appointment was actually a couple of weeks ago, and since then Bryce has totally turned around! We increased the medicine, and his spitting up reduced drastically. The increased fortifying and the lipids have helped him to really start gaining weight. He’s been gaining about 1/2 lb. a week!

[Anonymous]

Heather,

That’s such great news! I’m so glad to hear that the med changed has been working so well. And what a great weight gain!!!

[Author]

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