Gi appointment w/ Dr. Putnam

[Anonymous]

Holden had a GI appointment with Dr. Putnam at Cincy children’s hospital. He got rave reviews on here under looking under GI specialist reviews. So I was expecting him to be on with Marci Kids dose, Right now my son is on a high dose at 15 mg twice a day along with Reglan. His last ped GI wanted to do a fundo on him (Thanks kevieb for the support you gave me then!) b/c of his probe results (202 episodes with only 2 being acidic b/c it was done on [revacid). we then had our doc changed to putnam based upon everything I have heard about him. Anyway, these are the recommendations

1) Prevacid is too high. You can only produce so much acid. Too much Prevacid can cause a lack of appetite as nausea is a side effect. Go down to 15 mg split and use Maalox for breakthrough acid the first week.

2) Increase Reglan. It has done wonders for Holden and he says it is weight sensitive and it needs to go up or it is pointless to give it to him. Also his gastric emptying scan showed DGE. With Holden’s problems he says the benefits outweigh the risks. I am fine with this change b/c without it things are horrible.

3) Try soy formula again to see if allergies are still an issue. Currently been on elecare and scope showed no damage and eos for allergies but this was on elecare.

4)Stop using simply thick. If this os motility then thicker liquids can worsen it.

I am to make these changes one wek at a time so I will know if he pukes his guts up (as the dr put it) what the cause is. I am to report back for a follow u[ in a month. He is so well respected I hate to not at least try all the suggestions and then tell him how it goes when we go back. I am very nervous about decreasing the prevacid and trialing off elecare. Has anyone still on this board seen this doctor and know about his dosing, etc?

[Anonymous]

I would be worried about trying the soy formula. First, soy is many steps down from Elecare – I would be more tempted to try the hydrolyzed protein formulas first (like Alimentum, Nutramigen or Pregestimil). Second, soy is really not good for boys. Soy is naturally full of phytoestrogens, which mimic female estrogen hormones. This can cause a lot of problems in developing children, especially boys. Also almost all soy is GMO (genetically modified) and really unhealthy stuff.

[Anonymous]

That is what our nutritionist says about soy. I don’t know why he said soy other than soy use to cause blood in his stools. Dr. Putnam is an EE specialist so I was wondering if he was really “testing the waters” so to speak on food allergies and maybe he felt like with Alimentum we may not see that big of a difference one way or another. I feel Holden will react to the soy b/c my oldest boy had severe food allergies until he was 4. We still have an epipen for him for some things. I also know Dr. Putnam said something about the taste (we put vanilla flavoring in our elecare so it doesn’t taste so bad) but I was wondering if he also though soy formula tasted better. I don’t know. I feel so certain Holden will still react to the soy formula I am tempted to try it for a week just so I can say I did and no go. I didn’t know until recently about soy and boys and I use to give my son soy milk since he couldn’t do cow’s milk or rice milk or goats milk. Yikes!! Soy was the one thing he wasn’t allergic too. Now he can have milk so thank goodness.

[Anonymous]

i would do things in this order…

stop the simply think..

then increase reglan a week later..

if things are still good..

i would decrease prevacid..

TWO weeks later.. i would then try soy. ..if you still want to.. though i dont see why you should switch.. maybe i would wait even longer 😉

shanesmom2009-07-23 22:24:04

[Anonymous]

i agree with shanesmom’s order. the formula would be the last thing i would mess with. i am not familiar with your son’s story so how long has it been since you switched to elecare? i would just go with the dr on this just to prove that he needs elecare. it will be rough but it does help to rule out things. we have had to do it with both of our boys.

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