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May 27, 2006 at 9:45 am #8674AnonymousInactive
Oh Christine – I’m sorry you had to leave Tianna in Seattle – I know
that must have been so hard. Thais has some good ideas – I hope they
can be of help. I’ll be thinking of you and your family and hoping for
a speedy recovery. Big hugs.May 27, 2006 at 10:33 am #8677AnonymousInactiveChristine, your family will be in our thoughts and prayers. I hope that they are able to help Tianna.
May 27, 2006 at 12:58 pm #8680AnonymousInactiveChristine,
I hope she’s in a better place when you return and they don’t have to give her a feeding tube.
I was severely anorexic and bulimic at one time and I recovered. There is hope and very good treatment for this condition. I will keep her in my prayers.
If you want to understand a little about what’s it’s like for her, think of an addict. It’s not that she wants to starve herself. Anorexia is an addiction. Just like a drug addict gets a high from his or her drug, an anorexic gets a high from not eating, or from getting on the scale and seeing another weight loss, or from purging (if they are bulimic). It often starts from the desire to fit into society’s standards of super thinness, but then it quickly spirals out of control and into an addiction. People who develop anorexia or bulimia often have “addictive/compulsive” personalities or tendencies. (This is probably biological).
There’s also a very strong element of control. They have a strong need to be in control, and they quickly learn that they and only they can control what they eat or don’t eat. This need to control or to be in control also becomes addictive.
Often there is a strong element of perfectionism. The anorexic often believes they are not good enough unless they are perfect, and perfect in our society is super slim.
Sometimes there is anxiety and the anorexic or bulimic becomes addicted to this behavior becuase it becomes an anxiety reducer (this was a big element for me).
I hope that helps some. I know that when I was sick no one around me understood why in the world I would do what I was doing. Of course, I didn’t understand it either.
My thoughts and prayers are with you.
Christine
June 5, 2006 at 7:58 am #9133AnonymousInactiveChristine,
My thoughts are with you and your family. I was gone myself, so I’m just now seeing your latest news.
And I have to add, your info about celiac and removing gluten have really saved us here. We just had Lucas RAST tested for food allergies and also did hte celiac blood test. We are waiting on results. WIthout you on this board, I might have never figured out hte link with gluten/grains. And for this I cannot ever thank you enough. Your other ideas on surgery were also such a blessing at the time.
I hope things are improving with your daughter.
June 6, 2006 at 2:39 am #9186AnonymousInactivetianna is still struggling. she seems to be teetering on the edge of getting a feeding tube. this last weekend she went 2 meals in a row without finishing her meal and refusing boost which is usually when they put in a feeding tube, but they are going to try one on one feeding with her and a mild sedative for the anxiety she has about eating before they do a tube. her clinician feels like she is making some improvement. i was told today that they will probably want us back in seattle in 3-4 weeks to start meal support training. she is at 72% of her ideal body weight. they want them at 80-85% before they leave. her ideal body weight would be around 103 lbs—right now she is just below 75lbs. kassie only weighs 87 lbs—-the ped gi is just a little worried about her since she has lost 3 oz since feb instead of gaining any weight. he said she looks healthy, but is concerned because they are twins. there is a higher incidence of eating disorders in identical twins.
kevieb2006-6-6 2:40:15
June 6, 2006 at 6:49 am #9190AnonymousInactiveI hope the meal support training works and that things turn around for her and your whole family soon.
June 6, 2006 at 8:06 am #9194AnonymousInactiveChristine,
I’m so sorry. I hope and pray that the meal support training works for her.
June 9, 2006 at 7:28 pm #9471AnonymousInactiveChristine,
I have a friend who was the director of a residential program in southern California focusing on eating disorders (until having a baby)– she’s worked in this field for many years. I ran your situation by her and she suggested I email you the link to the facility where she worked. I know it’s a long way from you, but they have just opened a facility in Menlo Park, CA, which is in northern CA, as well. They are hoping to open one in Seattle, but not sure when this would be. She said they are recognized as one of the best residential programs focusing on eating disorders in the country.
She said she would be happy to talk to you on the phone and answer any questions you might have– general questions or questions about the facility. Email me at my personal email and I will send her home phone number: annec oy ner@ yahoo. com (without spaces). She is very nice, and if anything could be a resource for your questions. She’s in her early 40s and devoted much of her career to working with youth with eating disorders, and she helped to build the program at the following site:
http://www.centerfordiscovery.com/
I don’t know how you feel about these kinds of options, but just thought I would offer her as a resource for you since this is all new for you and your family. I continue to keep you in my thoughts and hope things are improving.
ps. Sorry for not sending this directly to your email, I have misplaced your address!
June 21, 2006 at 12:21 am #10181AnonymousInactiveChristine,
I am really at a lose of sorts. Just know you are all in our prayers and thoughts often. I am glad to see that alot of seniors do check in. And your information is important, I think new and old alike need to bring all the prespectives and I have (thankfully) never seen you hold back for a question or concern.
It seems as our kids get older and we get a wee bit wiser it is easy to get caught up and visit less but I know I still need everyone and wish I had more time to fulfill my curiosity on how everyone is doing.
Please keep in touch and I hope your family will over come this in Gods grace and Love.
Take care,
Susan
June 21, 2006 at 8:48 pm #10254AnonymousInactive((((HUGS)))) Christine…
I am praying the feeding tube was not necessary & that Tianna is doing better. Praying for your other daughter. Praying for ALL of you that you continue to have the strength, courage, & wisdom to get through this. I know it is a long road ahead, my thoughts will be with you throughout. Please, again know I’ve always got an open ear for ya.
Take care. (((HUGS))) & prayers….
June 21, 2006 at 11:35 pm #10263AnonymousInactivewell—–we are headed back to seattle on friday. tianna did not get a feeding tube, but we have learned that, even with their close supervision, she has managed to find a way to purge 2-3 times a day for the last 2 weeks. her O2 levels are high, and her orthostatic blood pressure measurements are off. they also told me yesterday that she may not be ready to return home with us. she is only at 74% of her ideal body weight—they want her at 80-85%. they say she is doing better, that it is a good sign that she told them about the purging. i am afraid to bring her home.
we don’t even know yet where we will be staying. the ronald mcdonald house has been running full—they will call me tomorrow and let me know if there is a room. my dad will be picking us up from the airport, but he lives 1 1/2 hours from seattle, so staying with him is not an option.
tianna seems to be angry when i talk to her—but she doesn’t like it when i don’t call, either.
i’m worried about finding tianna the help she will need when she comes home. we’re a pretty small town and limited in who and what is available. i may end up driving tianna to boise weekly (2 1/2 hrs) to see the ped gi, a counselor, and a dietician.
kevieb2006-6-21 23:36:10
June 22, 2006 at 5:51 pm #10331AnonymousInactiveOh Christine – I feel for you and your family. Hopefully things
will all work out. Hugs to you all. You are in our thoughts
and prayers!June 22, 2006 at 6:21 pm #10333AnonymousInactivethe ronald mcdonald house called and they have a room for us!! one less thing to worry about!
June 22, 2006 at 9:31 pm #10340AnonymousInactiveGlad to hear that they have room for you Christine. I’m so sorry for all that your family is going through. I hope that Tianna gets over this soon. It sounds heartbreaking to hear what you are dealing with. How is Kassandra coping?
June 22, 2006 at 9:50 pm #10348AnonymousInactivekassie is doing well. she and ian just went on a 4 day pioneer trek with a large church group—–they tried to make the whole thing as realistic as possible—-so they came home stinking! LOL!!!! i know the girls’ church leaders were worried whether or not tianna would be able to walk 10 miles. i’m really glad we discovered her condition before this trek—–i think it could have killed her.
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