Ok – i have to start by saying i absolutely LOVE our GI. She is wonderful, she is so sweet and caring and she is such a good listener!!
Sorry about that – good doctors are so hard to find.
For those of you who follow Matthew, we went to a feeding clinic a little while back and they suggested helping him with his stools by giving him some Mylanta…Gi laughed about it and she said that if they want some help, she wants me to give him some MIralax… so we now have a bottle and have to start giving it to him… she is great.. rather than wait and try different things, she just went for the real stuff!
She said feeding will take time to solve… she said she just got back from the Gi conference (i know that every GI on the other forum i go to was there too as nobody could see people last week)…. she said that they discussed feeding issues a lot and had feeding teams present and that she understands that a lot of it is trial and error etc but she truly believes that these people will help in the end.
On the GTube – she is all up for it. Did not have to say anything. She just checked on the computer the blood test results from ped (I love their system) and they are great so she does not need further work before surgery. We need to check with the ped because the tube can be inserted via endo or surgically and each has pros and cons. She said if it was her son, it would be endo so we are leaning towards that. She also said that we can then take a look down there and have some biopsies now that he eats everything… she said to talk to ped, discuss with husbadn over the weekend and call on tuesday and we will have it done in the next couple of weeks.
On the downside, she wants a tube first and then wait 3 to 6 months for the button but that is as long as we have had the NG tube and time flies…
On the crawling… cannot hurt to exercise upper body but our baby is about to walk so will be hard for him to go down on the floor, she thinks.
Sorry for the long post – i know it is hard to believe we are pushing for surgery but trust me, if your baby had had an NG tube for 5 months you really would be pushing too and we are SO excited.
Thanks for listening
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