I thought my days posting here were over!!!!

[Anonymous]

Hey gang. Not having a good day. NOt sure if you recall, but Evie’s ped GI’s office closed and I was referred to the nearest children’s hospital, which is quite a hike for me. We don’t have an appt. until mid Feb. We were supposed to go in Dec before the clinic closed. Anyhow, our regular ped. said he would write the Rx for neocate if we needed. Our insurance has a new billing company who is requesting additional info on Evie’s Dx of MSPI and they haven’t paid our local pharmacy in like 4 months. It was a real pain to get the old GI records sent to them, but we did it. In the meantime, I kind of thought, well, why don’t I try a formula trial on my own because we may no longer be getting Neocate for free. Evie has been doing excellent on all of her foods, including hidden dairy/soy, even yogurt and cheese, so I decided to skip the Nutramagin and go straight to Good Start. I started super slow. In fact, since Saturday, I’ve given her 3 bottles a day of 7 scoops Neocate and one scoop Good Start. Well, today our babysitter said she almost called me at work today b/c she has pouring mucous diarrhea. I picked her up and she had one more stool of so much mucous. She was soooo crabby just like her newborn days. I can’t believe it! I thought we made so much progress since we switced at 3 1/2 mos. I guess my post is mostly to vent but I guess I have a few questions:

What could the intolerance to formula but tolerance to yogurt/cheese mean ? Are the protein’s different? Just that they built up, maybe?

Should I wait a bit and try a nutramagin or allimentum trial? Should I hold off until she’s over a year? She’s 10 1/2 mos now.

Does anyone have issues with milk only, or can anyone relate?!!?! Thanks, my friends

[Anonymous]

I wouldn’t give up yet, she just may not be quite ready for the change. I was almost hopeless at 9 1/2 months when we trialed the lower prevacid dose, but now Dagney’s doing great on yogurt. How long has Evie been on hidden dairy/yogurt? Did you give yourself at least 2 weeks on that before moving on to the formula trial? I’ve always been told to allow at least 2 weeks to see if the building up of the proteins would have an adverse effect. Other than that, I’m not sure about the cheese/yogurt vs. formula. I kind of was wondering myself, but this time on our trial the pedi gi said we could do either yogurt or milk, so that made me think there was not much of a difference… I think others here may know more about that…

Good luck with the Neocate, too, I know how stressful that can be.

[Anonymous]

Hmmmm…. interesting.. we are still only giving yogurt and hidden dairy to Ben, though I have started to add in some cheese, but I have long wondered if there isn’t such a thing as a tolerance level. You know, like they can have so much up to a certain point and then the body reacts???? I may be weird, but that’s how it seems with Ben.

[Anonymous]

I think that it has a lot to do with the amount of the protein that is “attacking” their system. Kaelyn had the same symptoms for months on Nutramigen, even as we started trialing foods containing milk. Then we added in whole milk and she just fell apart. So, the amount of milk protein definitely made a difference for her.

[Anonymous]

We deffinately had a bad reaction to milk when I tried to add some into her diet, but it was day two into adding it that we had problems. Tolerance level, humm. I think Naomi is on to something there!

[Anonymous]

i too think there are different levels of intolerance.. sometimes a bit here and there doesnt seem to bug them too much.. but maybe when you give the dairy formula for 3 days straight… which has probably been 9 ounces .. it was too much? i am not sure. .. but i would try alimentum. i would think if she could do yogurt the alimentum would be perfect for her.

as for us.. shane can do hidden dairy but no yogurt or cheese. i think he does o.k with yogurt or cheese if its just once …but if i try and give it back to back its horrible.

[Anonymous]

We just recently tryed dairy with Justice. Not something I had set out to do it just happened. We were at a friends house and she had made mac and chesse for her son, well Justice got ahold of some of it. I figured since he was so close to two I would let him try it. He took maybe 5 bites. Then at church all the kids in his class got goldfish and he wanted some, so I let him have 4. Then I let him have a lot and I do mean a lot of regular goldfish that have very little milk in them. It may even be whey. Then since it all seemed to be going well I let him have 3 small cheesy chips at sams. You know they have those stations set up with food samples. Wouldn’t you know later that day he broke out in exzema on his face. Something he hasn’t done in awhile and his sleeping is horrible again. For us the sleep is the most tell tell sign all though he did have one bad mucousy diaper. All of that was spread out on different days and other than the original goldfish he really didn’t have that much. I think it all has to do with it building up in his system. So, maybe it’s the same for your lo.

Do your little ones sleep horrible after having dairy?

Justice’smom2008-01-17 17:49:33

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