is this sandifer's?

[Anonymous]

i took my 4month old to pedatrician with what was like seizure like attaches she stiffen up arch her back turn her from side to side jerks her arms about and sometime she gags as if she can’t get her breath and also sometime vomits as it’s happening, he said he thinks it’s reflux he has given her antacid medine, but i looked up bout reflux and this sandifer’s is the only sort that causes these seizure like symptoms so can anyone please tell me if what i have described sounds like this, can anyone who’s children are going through this please give me any info to help me please thanks tawny2nat2008-05-29 09:50:30

[Anonymous]

This sounds like it could be Sandifer’s symptoms. My daughter did this when she was small and her reflux was quite bad. She would stiffen up, arch her back and throw her head to one side. In some children it can appear as if it is a seizure. Once we had her on a formula she could tolerate (for her it is Neocate) and a good dose of a PPI (Prevacid) these symptoms stopped and she wasn’t in as much pain.

[Anonymous]

It does sound like it could be Sandifer’s. The problem is that it’s hard to tell sometimes. I have heard of doctor’s thinking that kids were having seizures when they were really having Sandifer’s symptoms, but I’ve also heard the reverse. I would try to videotape the episodes and then show it to your doc. If it persists on a good dose of meds, and if you’re still concerned, then you can ask your doc for an EEG. If it remains normal, then maybe that would offer you some peace of mind.

My dd had very severe Sandifer’s. Our doc worried about myoclonic jerks, and I was pretty sure it was Sandifer’s, but went for the EEG anyhow. When it came back normal, they were more comfortable assuming that it was actually Sandifer’s. The behaviour did stop as her reflux pain reduced.

[Anonymous]

My ds did thesamething very scary. I never caught in on video. he did this at 6 weeks old I called 911. I would really get a ppi drug my poor baby still is having issues that lead to a bottle aversion. also has a milk allergy not to scare just want baby comfortable. nobody believed my husband and i until this week being evaluated by EI early intervention. he is 7 months old now but i think his priolsec isn’t working or teething? They say it is rare but what your baby is doing is trying to elongate {is that a word?} her esophagus because the acid is so painful hits their nerves then they stiffen up. poor babies i hope you get some relief. I would see a GI and neuro to just to be safe.= hugs Danielacupcake2008-05-31 21:30:55

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