Lactose Intolerent + Reflux – HELP

[Anonymous]

Yes, I was going to say the same thing… if you have a prescription from the doctor, WIC will pay for any formula your baby needs. Good luck!

[Anonymous]

mom_ona_mission wrote: We needed a prescription for Allimentum to give to WIC and they covered it with no other questions. So I’d ask your ped to fax one to your local WIC office. They will also pay for other formulas but I think they all need a doctors prescription. Good Luck.

YEs ~ You just need a perscription, ask you PCP for a perscription WIC form. WIC pays for Katie’s Neocate I am sorry for all you ar going through *HUGE*HUGS*

[Anonymous]

Hello and welcome! So sorry to hear you and your daughter are having such a rough time, but you have definately come to the right place. Unfortunately we have all been there as well, but hopefully we can provide you with some help and support! I have 2 children, both of whom have (or had) reflux and multiple food protein intolerances (MFPI). My son also has lactose intolerance.

First I want to say that I agree with Laura (hellbennt) that unfortunately it is practically impossible to test for MSPI (milk soy protein intolerance) in infants because in the vast majority of cases it an intolerance that they will eventually outgrow and not a true allergy. If the doctors did allergy testing on your little girl and they came back negative, that does not rule out intolerances. So it may be very likely that your daughter has both lactose intolerance and MSPI. In that case, she will still have trouble with lactose free formulas because of the protein, and she may have trouble with hydrolyzed protein formulas (like Nutramigen and Alimentum) because of the lactose. This was the dilemma we were in with my son Ben. However, you still have a few formula options, particularly Enfamil Pregestimil and Neocate (or Elecare).

Enfamil Pregestimil is similar to Nutramigen or Alimentum in that it is an extensively hydrolyzed milk protein formula, however, it is also lactose free, sucrose free, and has a different source of fat to help babies with fat malabsorption. That wasn’t a problem for us, and likely not for your little one either, but the main advantage for us was the hydrolyzed protein and the lactose free. This is the formula we eventually settled on for our son Ben (after trying many, including goat’s milk). However my daughter Paige still reacted to this one, because she couldn’t even tolerate the hydrolyzed protein.

This is where a formula like Neocate or Elecare comes in. It is the last resort that I know of. It has absolutely no protein whatsoever. Instead, it is made up of individual amino acids. It is also lactose free. This is what we ended up putting our daughter Paige on. Before Neocate, she was a projectile vomiter, and had extremely mucousy stools, but both stopped shortly after switching to Neocate.

That is the best advice I can give you on formulas, based on my own experience and research, and the information from our pediatric gastroenterologist.

MFPIx22007-6-18 13:14:58

[Anonymous]

As well, I was wondering what dose of Zantac (ranitidine) your daughter is taking? Is it the 15 mg/mL strength, and how many mLs how often? And what does she weigh? Hopefully I can help you determine if her dose is appropriate for infant GERD, as I am a pharmacist.

If the Zantac isn’t helping with her reflux symptoms at the appropriate dose, the next step would be to try a PPI medication, such as Prevacid or Zegerid.

Unfortunately, none of these medications actully reduce or stop the reflux, they are meant to reduce the acidity so that the reflux doesn’t hurt them or damage the esophagus any longer. That in turn often helps quite a bit with the inconsolable crying, and the feeding and sleeping problems.

MFPIx22007-6-18 13:53:3

[Anonymous]

Thank you for the replies!

So updated on how she is doing.

We had two horrible days with no sleep, she wouldn’t stop vomitting and wouldn’t stop crying for a second to sleep. After she was awake for 8 straight hours with no sleep at all we had to do something and took her to Urgent Care. The doctor there was shocked that all she was on was 0.8 ML twice a day of the Zantac. He told me my doctor was basically a idiot and that she needed PI’s immediatly. Wow! I thought that was amazing how he was willing to actually listen, he told me he was putting in a referral for me to change doctors for her as well.

She weights almost 9 pounds now! (8.9) Which meant despite the vomitting she was still eatting well. Of course she is, she drinks 6 oz. every feeding every three hours. Well her prescribed her Prevacid and oh my god I tell you she is a new baby again. She sleeps like a angel, all the time now. She only cries when hungry and has only spit up, not throwing up oz. and oz. anymore. So only 24 hours later she is content and sleeping. I actualy got to sleep for FOURTEEN hours. Omg I love my fiance for that. lol He’s sleeping now.

Well thank you ladies for your advice and replies. If you all hadn’t suggested more medication might be needed I most likely would have never tought to ask about them because my doctor only said he might need to change it. Never really said what to.

And as for the intolerance things, they tested her for protien and it came back negative is how they just figured it was lactose. Her father is lactose and so is a few people closely related to him. (His mother and sister) They said Lactose is kind of inherited. So that is how they determined its Lactose. She’s doing great back on her ProSobee.

So thanks ladies, I’ll be sure to come back with more updates! <3

[Anonymous]

what form of prevacid did you get prescribed? if you got the solutabs or capsules-did they tell you to give it 30-60 min before a full meal to get the full effect? they usually dont bother to mention that.

if you got a compound-make sure its made every 14 days with no flavorings and with 16.8% sodium bicarb, otherwise it looses stability in a few days.

ftr-allergy testing in children under 5 is highly innacurate, and there is no test to detect protein intolerances, which is what most reflux babies have. but since you say the lactose intolerance runs in the family, that could very well be it.

[Anonymous]

I got the solutabs and yes I am pretty familuar with my pharmacy and she told me to wait 35 minutes before a full feed. She said yes a little to help her choke down the medication is okay but not more then half a ounce. ^_^ But thank you.

[Anonymous]

actually the solutabs should only be given with water, not formula.

[Anonymous]

The solutabs have lactose in them. Just thought you might want to know that just in case things get bad again.

[Author]

Posts