I have been so busy lately. Sorry I haven’t posted anything. We had both our boys baptised on Saturday and it was Christian’s 1st birthday party. LOVED THE CAKE!!!
The button has been a godsend. So much more portable now that we are g-tube dependant. About 2 weeks ago Christian stopped eating entirely by mouth. Started off as tonsilitis, then to double ear infection, now he is back to eating a little bit – but NO MORE BOTTLES. Which is a huge struggle to get in enough fluids – thankfully we have the button for that.
We are starting home therapy this week Friday – we are excited about that. We are now on pediasure and no noticable reaction to that. We will reintroduce the carnation juice drink in a few weeks (highly concentrated 30cal/oz). He is loving juicy juice any flavor by mouth but the pediasure is a no go – just taking it through the tube. Thankfully it comes in lots of different flavors.
We have our follow up with the PED GI on the 15th – will be discussing milk and additives for that for flavor. We meet with the ENT on Friday to make sure all formations and such are of normal size/shape…still trying to figure out why eating is such a struggle.
I will update more a little later. Thanks for your concerns.
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