- This topic has 18 replies, 7 voices, and was last updated 6 years, 2 months ago by Anonymous.
December 5, 2008 at 3:04 pm #59249AnonymousInactive
Went to see if his meds were ready & told the pharmacist what the Sick Kids pharmacist told me. My local pharmacist said “that doesn’t sound right. I’m not sure what she means” referring to the fact that the Sick Kids pharmacy prescribes tablets & their pharmacist said parents can just dissolve them at home. It seemed like my local pharmacist was basically calling me a liar or in the least, was saying the pharmacist I spoke to at Sick Kids didn’t know what she was talking about. Remember, Sick Kids was the source SHE stated they use as far as recipes etc. are concerned.
It’s all VERY frustrating. I knew my stuff…I was pulling info out of my butt. Why would I lie about calling Sick Kids & why would I know the info I knew? Why would a mother lie & try to get the compounding done in a specific way BUT to make it better for her child?! :/
Anyway…the meds weren’t ready but she said they were not going to flavor it. I know there are also other ingredients that add a flavoring of sorts that could still change the effectiveness, but I’m not going to get anywhere arguing with this particular pharmacist, it seems. We’ll try this compound for a month & if it doesn’t help or helps but then seems to stop, we’ll call the ped & ask for something else.December 5, 2008 at 6:08 pm #59258AnonymousInactive
I’m sorry I know this is frustrating – been there done that.
Our pharmacist basically told me he really disliked the internet because of all the misinformation it gives and that the way they create the suspension is approved by BC Children’s Hospital yada yada yada.
In the end I went straight to Dr. Phillips at MARCI and then went to my ped and asked for the Prevacid Casules. NOT the Losec. I had given her one page from the MARCI site – the page that tells about Dr. Jeffery Phillips: http://www.marci-kids.com/jphillips.html and an LA Times article I found about him as the creator of Zegrid. Basically my strategy was to sell him before I told her I was in contact with him and he was sending me the most effective carrier available for the medication. It was basically made of the proper amount of sodium bicarbonate and surcrose to make it palateable for young children.
This worked for me. I received my BufferBabies Kits (The first two free) and got the Ped to perscribe the prevacid caps and away we went. (I even jumped the gun and completely went by Dr. Phillip’s dosing and told my Ped that after the other dose didn’t work I tried what was suggested to me and it works great!
When I took our capsule perscription to the local Pharmacist and he looked at Janna’s age and looked at me quizzically – “are you tube feeding?” he asked. “Nope” I replied with a big smile. We have the instructions on how to compound this properly at home along with a carrier to use with it.”
So whatever you decide good luck. Typically Pharmacists really don’t seem to be very much in the know about the best way to deliver PPIs. I’m very glad I chose to act the way I did. We’ve got great management of her worst GERD symptoms now.
Jsquared2008-12-05 18:10:02December 7, 2008 at 8:04 am #59340AnonymousInactive
We were told the same thing by the pharmacist and the GI on our team. The PPI suspension is only used there for tube fed children. The recipe is different, it doesn’t need as much bicarbonate because it is going directly into the stomach. The amount of bicarb per dose also doesn’t need to be the same because it goes directly into the stomach.In fact, in all my time on this site, I’ve only heard of a few people having success with compounded PPIs. One or two of them have had good pharmacies. The others have had their children on feeding tubes where they’re tubing the meds.About the pharmacist telling you that they send patients home with tablets and they dissolve them themselves at home, that’s true. When our script was losec (omeprazole) they sent us home with the enteric coated tablets called MUPS. They had us dissolve them in water to remove the coating, and then give it with a bit of applesauce on an empty stomach followed up with a meal 30 minutes later. Our GI told us at Hailey’s last appointment which was in early 2007, I believe, that they don’t really prescribe the losec much anymore due to the difficulty in administration. They try to prescribe the prevacid fastabs- they’re tablets that parents dissolve themselves at home. So you’re correct.April 4, 2015 at 12:31 pm #135560AnonymousInactive
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