MSPI and Villi blunting

[Anonymous]

Does anyone know if undiagnosed MSPI can end up damaging the stomach lining?

Our 18 month old had a scope done 2 months ago and it showed this. The GI was suspecting celiac but it couldn’t be confirmed. He is an adopted embryo and the donor family tested for celiac and it was negative…His IGA that was low is now also normal …still waiting on IGG to come up….so…there is nothing pointing to celiac.

Now, when he was on formula..he never handles it well..it wasn’t bad, but not great. He always had mucous stools, sleep disturbance…when he was 11 months old, we put him on rice milk because we thought he was having some allergic reactions..his tummy did much better…oh and the two times we tried giving him soy formula, he threw it up….he also developed eczema and a rash…fast forward..he had all kinds of allergy testing done, all negative so we gave him cow milk…. he had sleep disturbances and a runny nose, I recently changed him to goat milk, the runny nose went away and he is sleeping 11-12 hours straight now…not a peep.Ever since I took him off of Zegerid and he is now on goats milk, he acts so much better…he is also FTT and recently gained 1.5 lbs…

I just want to know if MSPI can cause all of this, but mainly the villi damage…

[Anonymous]

i do believe that problems with milk can cause damage to the villi. i’m a bit older than most of the moms on here—-so i had a child that i am sure had MSPI—but this was before it was even anything they talked about—all they thought about back then was lactose intolerance. (he will be 22 this month) he cried all the time, spit up all the time and had rosy red rashes on his cheeks. also, his diapers never looked normal. i was on medication, so i couldn’t nurse him. i put him on soy formula because one of my older children had some problems with milk.

it sounds like your son is doing great on the goat milk—i would leave him on it. when i had my twins, i nursed them mostly, but when i gave them a bottle i gave them goat milk and they had no problems with it.

i can remember as a teenager (in the 70’s) there was a family at church with a baby that just was struggling—she ended up on goats milk. one of my step-sisters also had a similar problem as an infant and had to be fed goat milk.

as far as i know, MSPI does not damage the stomach lining—plus, there are no villi in the stomach. damage from celiac is not seen in the stomach it is seen in the small intestine—that is where the villi are. i had villi damage at one time in the duodenal bulb from taking alot of NSAIDS—they tried to tell me i had celiac, but my Ttg test was negative. this year i had a scope again and there was no more villi damage.

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