MSPI (Milk/Soy Protein Intolerance)

[Anonymous]

So I think my almost 7 month old has this…we have been through every formula under the sun…she also gets my breastmilk…I have eliminated “most” dairy from my diet…I am still drinking Soymilk and eating Soy yogurt…however, we have her on Hypo formula now…Nutramigen by Enfamil. But she is not eating very much now…it is like she is hungry and then refuses to eat….not even my breastmilk…what is going on? Anyone elses LO going through this? My LO is only 14.5 pounds…she can’t afford not to eat. I have started her on cereal about 3 weeks ago…she eats about 3 tablespoons a day. This is all her digestive system can handle. She is still very wakeful at night as well. Usually at about 3 or 4 am. she is starving (as I try to get her back to sleep when she wakes earlier than 3…and she does down a 4 or 5 sometimes 6 oz. bottle.)….

[Anonymous]

did you ask your Dr.? for our son, his symptoms were: mucous in stool (later, blood) though we really couldn’t see either with a naked eye, lots of rashes all over, refusing to eat, screaming/colicky fits. but he also has reflux so some of the symptoms overlap i’m sure. our son was on soy and at 2 months all the symptoms started. well, he had rashes before that but the pediatrician wasn’t sure it was a milk/soy allergy at the time. so, he went from soy to alimentum for 6 weeks (still had blood in stools), tried nutramigen for a week or so, then to neocate. neocate has helped his intestines heal, he no longer has bloody stools, but his feeding aversion still comes and goes and we just found out he has esophagitus from the reflux- confirmed through endoscopy. good luck, let us know!

[Anonymous]

If you are giving a hypo formula & also nursing then you really should eliminate ALL dairy (including hidden) from your diet to match the hypo formula. You also might consider eliminating soy as well b/c up to 60% of milk intolerant babies are also soy intolerant.

HTH

[Anonymous]

Yeah, I have decided to wean so I will be stopping pumping and won’t be giving any breast milk as of today. Too many variables and I was fine with elimination of Dairy but Soy as well…too strict of a diet now and everything almost contains some sort of soy…she will be better of I hope now just on this formula…we shall see how she does. Someone also mentioned Necotate? Spelling not sure of. So there are options for other hypos. I hope this will suffice. Thanks.

[Anonymous]

Yes there are other formula options. Nutramigen & Alimentum are hypo formulas but Neocate and Elecare are elemental formulas. Hypo formulas work for most babies, but there are those that need the milk/soy protein taken out of their formulas completely(nutrmagin and alimentum still contain milk). Just from my experience…My DD reacted to the nutramigen, did good on alimentum(for the 1st mth), and has been on elecare since she was 8mths old. I think for her the broken down proteins in alimentum were still too much for her(they can build up over time). This may also be the case for your DD. Also, some ins. companies will cover elemental formula. Good Luck! valentine4mommy2009-03-12 13:19:18

[Anonymous]

Come to think of it..how do I know that she is reacting to the milk still in the nutrimigen formula…or the soy that I am eating….it is so hard with such a sensitive baby that just not breast feeding anymore seems like the logical thing to do at this point. I wish I didn’t have to stop…but it will take 2 weeks for it to completely get out of my diet and I realized that she is starting to get eczema…from the soy I am eating or the new formula??? Nuts.

[Anonymous]

I just wanted to chime in & say that you don’t have to quit if you don’t want to… if you are ready to then that’s completely okay too but based on your comment (“I wish I didn’t have to stop…”) I just wanted to let you know that you CAN do it & your baby will be fine/get better – it may just take some time. There are so many here to support you through it (dietary changes/breastfeeding) if you choose to. Again, no pressure but wanted to let you know that I/we are here to help you if you want. My son is a sensitive as they get (seriously-SUPER sensitive) & it was possible to continue – a challenge but possible.

As for how to tell if there is reactions… mucous in stool is a good indicator – also the eczema as you mentioned. There are many other indicators but those are just two.

[Anonymous]

Thanks for your kind words…I think I am ready to quit…it has been a very hard time this past few months and I feel she is not gaining any weight – she literally didn’t gain an ounce in a month from her 6th month check up to her 7th month check up..that was scary for me. I think with me being stressed as well, my supply has dipped and I can’t find the time to bring it back up as I want to spend the time with her and get her fed…so I think 7 months is a great amount of time for breast milk and now we shall move on and hopefully see an improvement. I will know for next time with my next baby (yes we want anohter one) LOL…that we will cut dairy out from the beginning.

[Anonymous]

7 months is a great amount of time indeed – you should certainly be very proud of yourself! I just wanted to offer my support in case you were interested :).

[Anonymous]

Well I pumped tonight I guess to start weaning as I don’t want to get blocked ducts. I have heard it can happen so need to slowly pump and eventually stop.

thanks for the support it is great to have this forum it has helped me a great deal with my DD and her reflux.

[Anonymous]

yes, definitely only drop 1 feeding every 4-5 days – you don’t want plugged ducts or worse mastitis- it sucks!

[Anonymous]

I had mastitis with my first LO and wasn’t even weaning. I thought I was dying!! It’s horrible! Definitely wean slowly, I dropped a feed about every 3 days or so and did fine this time. Good Luck!

[Anonymous]

Hi, I am wondering what your LO’s symptoms were when you had her on nutrimigen….was she very gassy? I am now wondering if this formula is any good for my LO…she is very gassy…just tonight she screamed for a few minutes then tooted….went to sleep in my arms…woke up 15 min. later, screamed and then tooted again…I have her on Rice Cereal as well…I wonder if this could be the case…or is it the formula. She has been on the formula for 7 days today. She was very gassy with Soy as well. But she isn’t constipated which Soy made her…in fact, she has quite loose stools now.

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