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susan,
it’s been a while since i posted as well. i am with you that this is all so hard to figure out. i’ll just explain about what’s been going on here.
once julianna was diagnosed with reflux, we also found out that she is very lactose intolerant. she now can drink lactose free milk or take a lactaid chewable tablet if she is going to have dairy such as ice-cream or pizza. for a while she would react (increase in reflux, diarrhea) if she had ANY milk product- even in processed, baked ect. foods. once we stayed away from any lactose at all her symptoms went away. now if she has several days in a row where she has milk products in food such as milk in the chicken nugget batter, or milk in pancakes when we go out to breakfast without a lactaid, in the following days all of her symptoms come back. we are now going to trial a new product where she will only have to take one pill a day and it should give her enough of the lactase enzyme so that dairy will not effect her.
now onto the boys… both boys are lactose intolerant as well and same like julianna, too many milk products in processed foods, too many days in a row and lots of messy diapers. both boys have been prevacid free since feb. they have been ok reflux wise, needing mylanta after ear infections- or while on anti-biotics or the several times i’ve trialed foods that contain regular milk (yogurt, parmesean cheese, milk in baked goods ect.)
i can relate that allergy testing is always accurate. at first the blood work said that julianna was allergic to milk. then the skin test said she wasn’t, then when she had her endoscopy and colonoscopy they said it was lactose intolerance. as infants the boys reacted to almost every food we trialed. blood tests all came back negative, skin showed egg allergy for matthew. and same like julianna they were diagnosed with lactose intolerance through endoscopy. both the ped gi and our regular ped said that it is rare for kids this young to have true lactose intolerance, but they certainly do. and they will most likely not outgrow it. thank goodness for lactaid!
so now that i’ve rambled on i am not sure if this helps you- other than to say that i am confused too.
but i don’t think that it’s temperment. based on the fact that julianna is 4 and still has reflux episodes on occasion i am preparing myself for the long haul with the boys. i hope that you can figure out the mystery soon! 
Thanks Ladies,
Boy where to start…
Thank you for checking in on me. I really needed a pep talk. As all will understand when you get to the point where you realize this is not going away quickly, you are okay with the doc’s and all the trials start, etc. You begin to wonder should they just go to bread and water and then you think. NO, what does the bread have in it, all right to much added stuff that is off limits. Fine I’ll make the bread, then your mind starts working over time…is the flour really just the stated flour or is something hidden in it! and then the water has extras too. And by the time one is done…the men in little white coats are waiting for you as you try and figure out what to feed your gredling for breakfast that lacks milk, soy, eggs, etc.. UGH.
See here is the other thing I left out…the only time I get even remote loose stool is if he has gone on food strike and will only eat his fruit. This only adds to my confusion.
Patty thanks for the heads up… when we come off this trial Andrew will go back on Probiotics (I even found them in goat milk formula… of course they are triple the $, any body else notice our gerdlings are already running into thier college fund…
) and he takes coral calcium. For this trail I wanted him off everything to see if I couldn’t get a baseline. If that makes since, I am getting to the point where everything we do seems to run together. Laurie, it was great to hear from you I often find myself thinking of you and all 3 of your little ones. Actually, you are my inspritation in a way…When Andrew has driven me to my whackiest (and not just from reflux, he would be all boy with an added side of cling wrap for mom), I think okay Laurie has 3 and seems to still be sane be Thankful you only have 2!. In other words quit whining. So thanks for parting the waters first.
Hey if you get a chance I would love to catch up and find out why the colonoscopy. dswarren@goldrush.comStacy, I am soo glad to hear about Hailey. I bet she is a pistol. I get to check in on you occasionally, when I get to check to boards. I can’t wait. For those of us that still live in the sticks and have dial up which takes forever are getting DSL, which will hopefully allow me some more time on boards to check and actually post instead of just snoop. I soooo hope to that Andrew will get a total turn around when all of his teeth are in, but at this point I haven’t allowed myself to much stock in it, just in case it doesn’t happen. So, now that Hailey is about to be 2, and can eat does mom have a big birthday bash planned?
Well the troops are tromping up the steps…which means bath and bed time, which means moms quite time is up, ah sigh.
Thanks again to all, Take care
Susan
susan- i will e-mail you.
stacey- i am so happy to hear that hailey is doing so well!
it’s amazing how much teething can effect so many things. Susan! I can’t rememer if I emailed you about this but Lucas’ BIG breakthrough came when we removed GLUTEN from his diet.
Okay so he and I are dairy, soy, and gluten free. What do we eat…? I know that’s the next question. Well, he does eat eggs, so it’s eggs with spinach every morning. There are gluten and dairy free waffles at Trader Joe’s (do ya’all have one up there?) that are banana flavored to boot. You can do all the fruits and veggies, we make all fruit smoothies and Ryan has gotten really good at doing the rice milk, banana and strawberry smoothies. Ryan’s smoothies have been a big hit with those blessed to be NOT on our special diet, as well. Lucas loves his rice milk nad we tell him that everyone else is drinking it, too. I asked him what the baby calf at my parents’ house was drinking (the calf was being bottle fed as the mother had died) and Lucas immediately said, “Rice milk!”
There are pancake/waffle gluten free mixes, and I use gluten free bread, brownie and cookie mixes as well. He eats a lot of hummus, it’s really a staple of his diet. And his other staple are these little chicken breakfast sausages from Trader Joes that I fry in olive oil. Stores like Whole Foods and Wild Oats have been a salvation, and yes, there is no college fund cause it’s all being spent on food right now! haha. But at least he is sleeping better. We also do probiotics, I just found a chewable tablet that is flavored nad I called it “candy” and he was asking for “more candy” after chewing the first one. BIG SCORE! he had started refusing to take it from syringe, lately. This was Primodophilus for kids (age 2-12), by Nature’s Way brand. We also just did the RAST blood testing for major fod allergies, and our allergist (who I loved from the first minute, even though I am completely suspicious of docs now)– said even protein intolerances can cause these fitful sleeping and sleepless night reactions in kids. We also had the blood test done for celiac disease just in case, cause he improved so much when off gluten. We get the results this week Friday.
As you have read, wheat is a common food allergy in children. Problem with removing wheat is that from what I’ve read, the way wheat flour is processed in our country, often other grains that should be safe really aren’t cause they are all done up in the same facilities. Also, if you can’t do wheat, there are a bizillion other grains that might also cause a problem. So, I opted to do gluten free from the get-go when I looked into this possibility. Gluten free things are labeled very clearly now-a-days in a lot of stores. We can always add back in other grains if we get cocky and want to get scientific about adding things back in.
We’ve also been going to my chiropractor, who is amazing with kids. She’s trained in working iwth babies, toddlers, andpregos, but has a family practice. She’s been a big help as well. SHE mentioned wheat as a possible cause for night waking a year ago, when I thought I would starve if I tried it, and when the other docs weren’t saying anything remotely like that.
Ditto is what I say about teething. It’s a complete nightmare. We’re throwing a huge “Lucas has all his teeth” Party when the day finally comes.
You should call me or email for more info on all this. We’ve done the food trials, too. It really su*!%#& to do all this, I’m so sorry to hear that he’s still having these issues! Hugs to you all!
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