Thank you all for your support. I guess I’m in some kind of denial stage right now… I understand that she has epilepsy, but I can’t accept that medicating is automatically the right decision. I understand that it probably is the right decision, but certainly not the only one when we’re talking about 2 seizures a year at this point, sometimes even less in the past. I’ve decided that I need another opinion, just so that I’m prepared. I know that our regular neuro wants to do meds, our ped thinks that we now have to do meds, and I got a second neuro opinion in September, but wasn’t sure where he stood.
Christine/Sheri- I’ll definitely ask for the celiac testing to be done. I also want other bloodwork to be done to r/o any potential organic causes that could be provoking the seizures. Since I’m asking for bloodwork already, it doesn’t hurt to ask for a celiac test. Especially with Hailey’s history, and our family history of bowel problems. But, from what I’ve read, it’s complex partial seizures that are thought to be associated with celiac, and not generalized seizures like Sarah has.
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