Quinn’s GI appointment

[Anonymous]

I’m so glad that your doctor is taking things seriously and that he is looking into things for you. Good luck. Keep us posted.

[Anonymous]

I agree with christine…the first time my ds was tested they didnt do the full panel…

good luck with all the tests..hope you get answers soon!

[Anonymous]

Hey, thank you all for your well wishes.

the doctor ran a test called Prometheus Celiac PLUS. It includes both antibody and genetic tests.

tTg lg A, EMA lgA, Total Serum lgA, AGA lgG, AGA lgA, HLA DQ2/DQ8. Don’t know if that helps.

Oh man… i just hate seeing those words Failure to Thrive. That is what her GI diagnosed her as too and I found the words right on this sheet of paper I am looking at. It just stinks.

-Sarah

[Anonymous]

Glad to hear you got the testing done. I hope the results are good, and you get some answers.

Isn’t “failure to thrive” the most horrible phrase?? I don’t like it either. In my mom’s parenting days they called ftt babies “non-survivors”. It scared my mom to death when they called my little brother that!

[Anonymous]

non-survivors? That’s terrible. I guess failure to thrive is better than that (on the bright side, I know.)

[Anonymous]

yeah non-survivors sounds horrible!

Well, I have some great news! Quinn’s sweat test came back normal. She does not have cystic fibrosis. Whew… what a weight off my back. They are testing her for celiac still and we should get the results sometime this week.

Sleep study and PH probe placement is on the 22nd!

-Sarah

[Anonymous]

Hooray for the negative sweat test! I’m so happy for her!

[Anonymous]

YEAH!!!! I am so glad the sweat test was normal!!!!!!

[Anonymous]

What a huge relief!! That is such great news!! Good luck with the upcoming tests on the 22nd- please keep us posted. These little ones become like family to us

Robin

[Anonymous]

Congrats on the results so far, and the tests they are running for celiac are awesome…you have a good dr.!

[Anonymous]

sarah, i don’t know if this will make you feel any better, but sylvia was failure to thrive, also. she was below the 3rd %—-we felt like she was doing great when she got to be around the 17th%. i’m not sure if she is much above that now. i worry some about her also getting celiac disease like my other girls—-she has enamel hypoplasia and has just recently had some rashes show up that look alot like rashes that 2 of my celiac kids have had. so far, though, she has tested negative.

[Author]

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