reflux snore….

[Anonymous]

Hailey had the most awful reflux snore for the first few months of her life, accompanied by that lovely high pitched stridor wheeze. She was diagnosed with larygiomalacia (floppy airway) and stridor. She used to wake up each morning sounding like she had a terrible head cold. Also when she would choke on her bottle, she would have the stridor sound. We haven’t heard this for ages, so I thought it was gone, but it’s now back with a vengeance!

Lately she’s been choking again on her bottles. Also she’s been choking on her “reflux” and coughing and gagging etc. She’s been waking up sounding gurgly and during the day when she breathes it sounds like she’s snoring.

She hasn’t been on a proper dose of meds for over 2 weeks now, and now we’re waiting to get some CaraCream so we can get the right dose into her. Any ideas. Why would this suddenly come back?

[Anonymous]

You said it yourself, she isn’t on the proper dose of meds. Once they “outgrow” the PPI dose, more acid will be produced causing more problems. Whenever my son would show worse ‘malacia’ symptoms, I’d give him a higher dose of PPI and I would notice improvement within 24 hours.

The PPIs cut down the amount of acid that comes up to the larnyx. if the dose isn’t high enough, it’s hard for them to control the acid from going down the wrong pipe which causes all kinds of interesting noises.

I would suggest to up the PPI dose and make sure you’re giving it at least twice a day. My son’s malacia symptoms got way worse in the evening until I started splitting the dose into AM and PM.

[Anonymous]

Lori, that is exactly how Ryann is. She really doesn’t have the typical problem I hear about, the sounds when she is drinking. Just some nights when she is sleeping, I hear the horrible sounds and in the morning it sounds like she has a bad cold.

Sorry it came back! The ent told us that it really is enflammed tissue that flops over the airway. I can’t wait for it to go away! But, I guess it won’t until the reflux is gone. I hope it goes away again and she doesn’t get any flare ups!

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