scared to wean

[Anonymous]

So, do you think we should try it? I haven’t seen any change in her reflux in a few months. We’ve been on 10-15mg/day for a while now. I’m just petrified to take that last leap. I’m scared of jumping right back into that very very bad place. I know that if we don’t try we’ll never know. I planned to keep her on the prevacid until age 3, but we’re now running out of CaraCream and I need to order more if we’re going to continue on that path. I only have enough left for a 2 week supply. Her desire to not be medicated so many times a day has been my primary motivator (we just do the reflux med before bed, but she recently came off antibiotics, and also gets numerous laxatives via syringe). Any words of wisdom? Should I go for it?

[Anonymous]

I would try it b/c there is a good chance that she will do just fine w/out it. Good Luck! I hope the transition goes very smoothly

[Anonymous]

How are you Sarah! How is Isaac? What med is he on now? I’m scared of the feeding aversion resurfacing if she still has pain.

[Anonymous]

We’re weaning Dagney right now, and I was very anxious, but VERY scared to start. So far so good, it’s been 2 weeks down from 20 to 10mg prevacid. Good luck whatever you try, we’re here for you!

[Anonymous]

Oh I couldn’t believe it when I saw your title for you post! 😉

I am so excited to find out how it goes.. I think you should go for it!! She is on a really really low dose as it is.. so I think she would do fine.

Let us know how it goes!

[Anonymous]

Hi Lori! How are you? I was just thinking the other day that I hadn’t seen you on here or the other board lately.

Isaac has been making a little progress lately with his feeding-finally! We have taken him off of pediasure and we are going to see if he will start eating enough to not need it…so far my best guess is that he is taking in about 700 calories a day but I am totally willing to see if his apetite picks up. I am guessing he will be much like Hailey in that he will always be very picky and that is ok as long as he gains weight for us. He is still on prevacid but we are thinking of switching to something that doesn’t have food time constraints soon. We will try weaning him off of the ppi at 3yrs old b/c he had an endoscopy 2 months or so ago and had damage that was healing. I really hope that the weaning goes well! I am very excited for you! The feeding aversion is a very scary part of weaning but just think if she does fine without the ppi!

Oh I am having another boy! We are so excited about the new baby coming in June and my pregnancy is becoming more normal so it has been so much easier!

[Anonymous]

Hi Lori,

Just wanted to say good luck, whatever you decide to do. I hope she is able to get off her meds and the transition goes smoothly.

[Anonymous]

I don’t have any advice Lori, but with all you go through every day, I would hope this would work foryou and Hailey!! Best of luck!!

[Anonymous]

I can only imagine your fears. I guess the only way you’ll know is to try. HOpefully, if she’s not ready to come off of it, you can catch it sooner, rather than later and it won’t influence her eating habits. Good luck!

[Anonymous]

Thank you all so much for the advice. I’m not sure what to do. I’m REALLY REALLY scared. It’s the feeding aversion of course that complicates things so much. But thanks for all the well wishes. I’ll keep you all posted. Not sure what to do. REALLY not sure, but I don’t have much time to decide, as it takes a while for CaraCream to get here.

Sarah- WOW!!! Another boy! What a treat for Isaac. That’s going to be so much fun. I’m glad that you’re starting to feel better and also glad to hear about Isaac’s eating. The unfortunate snag for us is that we’ve been dealing with weight loss. I weaned Hailey off her bottles two weeks ago due to her pneumonia. She was coughing so badly that I knew that she would vomit up milk, so I stopped giving it. Now I don’t want to go back, because bottles really aren’t age appropriate, but she won’t drink formula from a cup and won’t drink any of the other supplements all together. So pretty much we’re on water and soy milk from a cup, probably only about 6-8 ounces of soy a day. Total calories probably don’t even touch 700 calories, but I don’t know that she ever will. It’s really hard. I’ve started to worry about growth and gain again, now that she was 28 pounds at her 2 year appointment and is 28.4 pounds now, 9 months later. When did Isaac have another scope done? I didn’t know. About me not being around much on the forums these days, life has really gotten busy with the kids and work, and I found that this was kind of an addiction for me. I spent way too much time and it was starting to affect me at home and with the kids… not enough time to do other things i had to do.

[Anonymous]

lori

Good luck with what you decide. Hope everything goes good for you and Hailey both.

[Anonymous]

This would be great!!!! Keeping my finger’s crossed for you and saying “GO FOR IT!”

I’m rooting for you guys!

[Anonymous]

It IS very scary to try to wean. I wish you ALL THE LUCK in the world! I hope everything goes well. Keep us posted!!!!

[Anonymous]

Lori, she may be ready for it. She is actually on a really low dose for her weight (I’m guessing). Our GI told us that you technically are weaning when they grow but you do not have to increase the meds. accordingly if that makes any sense. He said at some point if the dose is too low, then the meds really aren’t effective anyway. Wasn’t she on a higher dose at one time? I totally understand your fears but are excited that she may be ready. Definitely keep us posted!

[Anonymous]

Lori,

We are weaning Gabby from her meds currently. She was on 30mg, we did two months of 22.5mg, and we have just started 15 mg 2 weeks ago and we plan to do another two months of that. Our GI just suggested going slowly as all the illnesses out there in the winter really affect reflux. But, it sounds like Hailey is really low on her meds now. So, it’s worth a shot.

When we first started weaning, Gabby screamed for a week straight and I wanted to up her dose again. Turns out she was getting a tooth and the stomach flu. I know there are tons of variables that will make you doubt yourself. I”m still on pins and needles over here. Good luck. Please keep us posted.

Kathy

[Author]

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