I wanted to touch base with you and update you all on the status of my now 4.5 year old son that is the original subject in the video posted. His EEG results did come back “normal” which the MD at Marci Kids said it would likely do if it was Sandifer’s. His Pedi Neuro says that his seizures are a form of dyskinesia.
Ironically at 18 months old he was on Reglan for his Sandifer’s seizures. ( He esentially has involuntary movements that is characterized by repetitive, involuntary,
purposeless movements such as grimacing, tongue protrusion, lip
smacking, puckering and pursing, and rapid eye blinking. Rapid
movements of the arms, legs, and trunk may also occur. Impaired
movements of the fingers may appear as though the patient is playing an
invisible guitar or piano).
At 3 years and 3 months old he was also diagnosed with High Functioning Autism. The journey continues.