tube feeding?

[Anonymous]

Wow.. i’m sorry that i didn’t find this thread soon enough!!! I strongly believe that if Quinn’s pediatrician did not put her on a PPI on the highest dose by the marci-kids website, she would surely have developed a full blown feeding aversion. This was when quinn was around 5 months old. I think the PPI helped her alot in those terms. In other terms… as Q got older… she wasn’t able to sustain her weight and eat enough.

The theory before was that she had lots of swallowing problems and tounge cupping a protusion and pocketing food… just lots of problems eating. So she worked too hard to eat and just got tired. Well most of those problems are now gone. After much debate, we now know that she doesn’t eat enough to sustain her growing body. She doesn’t take in enough calories and her choice of food is not good. So we are on our last ditch effort before tube placement.

This could be in part due to reflux… perhaps she’s had it for so long that she knows if she gets a full tummy then she will reflux. i don’t know but the reason why tube placement is so close to us is because she doesn’t take in enough calories… she eats… but not enough. With meds even, we find that she has very minimal pain eating.

Something funny about the talk with the 2 kids, same ph probes on aversion and one not… Quinn had a ph probe at 13 months old. I really strongly believed that her reflux was almost gone. She was having problems, but I didn’t think it was reflux related.. her problems consisted mostly of sleep sickness and weight… but she was eating and only appeared to be uncomfortable for a portion of the day, so I thought the probe would show minimal reflux and the sleep study would show lots of problems. We had just the opposite. The sleep study was completely normal and the probe showed severe reflux. So severe that the GI doctor got back with me quickly and admitted her right a way for a repeat probe study because he didn’t believe it. He said that with reflux that severe, he was surprised she didn’t develop an aversion. that was when we did the calorie count and found out that her sleep problems were reflux related and she didn’t take in enough to keep her growing and her mild delays were all from the reflux. Anyways, the point is that reflux can be severe and the child can still not have an aversion. I guess I was just reinstating what was said before, only from my personal experience.

-Sarah

[Author]

Posts