Home › Forums › Infant Reflux Support › HELP!!! › Neocate HELP
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Anonymous.
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May 27, 2007 at 8:00 pm #34629
Anonymous
InactiveHello Ladies… I am in desperate need of help
Where I can find Neocate infant formula at the lowest cost??? A little about us. My name is Heidi
My DD Kaitlyn is 5 weeks old. Her history…Born @ 35 weeks ~ Birth weight 6-4
31 Day NICU Graduate
Respitory Distress ~ Ventalitor for 3 days * oxygen via nose canula for 4 days
Milk Soy Protein Allergy Diagnosed at 1 week of age
treated with zantac for week
Anti-fungal meds for loose BM’s
Tried on nutramigen but was unable to gain weight and diagnosed-Failure to thrive @ 2 weeks Weight 5-15
blood in stool remains although only + on PH paper
Neocate ~ finally putting on weight. Weight as of last thursday 7-3
Loose stool/blood in stool
Does anyone Know if Health insurance covers Neocate since it is by perscription???
Thanks In Advance ~ Heid
May 27, 2007 at 8:05 pm #34630Anonymous
Inactivewelcome!
yes some health insurances will cover it but you may have to fight with them and write letters. some will try to argue and say it is a supplement but you have to tell them IT IS MEDICAL FOOD and your child needs to to live.
we order it through our pharmacy. i have called all the pharmacies and they are all pretty much the same. the neocate website also has it but its about the same. the cheapest is ebay, not sure if you are comfortable with that though.
May 27, 2007 at 8:29 pm #34632Anonymous
InactiveHello and welcome,
I’ve read a few posts of moms getting Neocate covered through a company called Apria. I’ll see if I can find some links on it for you.
https://www.infantreflux.org/forum/forum_posts.asp?TID=5603&a mp;KW=apria
Ok, there’s one. I hope that helps. (page two seems to have the correct number. A wrong number may have been posted on page one).
May 27, 2007 at 9:36 pm #34650hellbennt
KeymasterMay 27, 2007 at 9:41 pm #34651Anonymous
InactiveI believe WIC covers it if you are eligible. See if your Dr. will write an Rx stating that Neocate is necessary for your child to thrive.
May 27, 2007 at 9:43 pm #34652Anonymous
Inactiveyeah. WIC gives us 8 cans a month. medicaid picks up 5 more.
May 27, 2007 at 9:52 pm #34655Anonymous
InactiveUnfortunately, our health insurance does not cover it. It is actually written into our policy, the namebrand Neocate is not covered!

I have resorted to buying on e-bay, but try to find “company” sounding names not just random people… If you understand what I mean. I was paying $30.79 a can and we were going through it like crazy, but now my son is almost 8 mo and has slowed a bit so it’s somewhat better.
I think the last I got off e-bay was $23 per can.
But insurance, medicaid, wic, etc would be where I would start. Also a thought is your local health dept. We didn’t qualify for any of these as they are income based.
Good luck!
May 28, 2007 at 6:43 am #34664Anonymous
InactiveThank You SO Much
I have to call her insurance company tomorrow. (Keystone Mercy) How would I go about finding out who the CEO is if there is a problem??? She is on Medicaid & our state’s insurance. We have WIC and are waiting for them to get shipment. Erica ~ Who do you buy Neocate from on E-Bay???
May 28, 2007 at 9:01 am #34667hellbennt
KeymasterSAHMtoAZL&K wrote: … (Keystone Mercy) How would I go about finding out who the CEO is if there is a problem??? She is on Medicaid & our state’s insurance. We have WIC and are waiting for them to get shipment…
From ‘Going to the Top’ Post (link above):
here’s Keystone Mercy Health Plan http://biz.yahoo.com/ic/110/110137.html

Phone: 215-937-8000
President and CEO: Daniel J. Hilferty
Help From Companies:
http://finance.yahoo.com/search
(1) If you go to the website & look for the company, you’ll find the main switchboard ph # plus the names of the higher ups (CEO, etc.).
2) THEN, you find out the name & fax # of the SECRETARY (now called administrative assistant?) to the CEO…
3) THEN, you FAX everything to HER (usually it’s a ‘her’ – might be a he
4) THEN you get RESULTS!!!!!!!!!!!
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Here’s more insurance related info:
(dealing w/ Neocate) https://www.infantreflux.org/forum/forum_posts.asp?TID=2291&a mp;a mp;a mp;a mp;a mp;a mp;a mp;PN=1&TPN=1
tips on how to write an appeal to insurance: http://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/insura ncedenial.htm?OpenDocument (thanks Emmy!)
how to get insurance to cover neocate, etc: https://www.infantreflux.org/forum/forum_posts.asp?TID=5603
contact your congressperson: http://www.aarda.org/congress_connect.php
May 28, 2007 at 10:04 am #34675Anonymous
InactiveIt was also written in our policy that it was not covered (it strictly said Neocate was an RX not covered BUT…you don’t know me
)…it is covered now. I appealed it. It is FOOD for crying out loud! And my baby needed it to thrive. I fought them. I had to buy a months supply on my own and fax the receipts, but I was reimbursed FULLY and will be for each supply I buy. Sometimes you just have to fight them on it. If they say no, tell them you need to appeal it and get your GI doc involved, they will usually cover it if GI tells them that the baby will end up in the hospital without it. HTH!
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