Neocate HELP

[Anonymous]

Hello Ladies… I am in desperate need of help Where I can find Neocate infant formula at the lowest cost???

A little about us. My name is Heidi My DD Kaitlyn is 5 weeks old. Her history…

Born @ 35 weeks ~ Birth weight 6-4

31 Day NICU Graduate

Respitory Distress ~ Ventalitor for 3 days * oxygen via nose canula for 4 days

Milk Soy Protein Allergy Diagnosed at 1 week of age

treated with zantac for week

Anti-fungal meds for loose BM’s

Tried on nutramigen but was unable to gain weight and diagnosed-Failure to thrive @ 2 weeks Weight 5-15

blood in stool remains although only + on PH paper

Neocate ~ finally putting on weight. Weight as of last thursday 7-3

Loose stool/blood in stool

Does anyone Know if Health insurance covers Neocate since it is by perscription???

Thanks In Advance ~ Heid

[Anonymous]

welcome!

yes some health insurances will cover it but you may have to fight with them and write letters. some will try to argue and say it is a supplement but you have to tell them IT IS MEDICAL FOOD and your child needs to to live.

we order it through our pharmacy. i have called all the pharmacies and they are all pretty much the same. the neocate website also has it but its about the same. the cheapest is ebay, not sure if you are comfortable with that though.

[Anonymous]

Hello and welcome,

I’ve read a few posts of moms getting Neocate covered through a company called Apria. I’ll see if I can find some links on it for you.

https://www.infantreflux.org/forum/forum_posts.asp?TID=5603&a mp;KW=apria

Ok, there’s one. I hope that helps. (page two seems to have the correct number. A wrong number may have been posted on page one).

[hellbennt]

also: many have had sucess w/ getting insurnace to cover it:

Going to the Top: https://www.infantreflux.org/forum/forum_posts.asp?TID=2607&a mp;a mp;KW=going

[Anonymous]

I believe WIC covers it if you are eligible. See if your Dr. will write an Rx stating that Neocate is necessary for your child to thrive.

[Anonymous]

yeah. WIC gives us 8 cans a month. medicaid picks up 5 more.

[Anonymous]

Unfortunately, our health insurance does not cover it. It is actually written into our policy, the namebrand Neocate is not covered!

I have resorted to buying on e-bay, but try to find “company” sounding names not just random people… If you understand what I mean. I was paying $30.79 a can and we were going through it like crazy, but now my son is almost 8 mo and has slowed a bit so it’s somewhat better.

I think the last I got off e-bay was $23 per can.

But insurance, medicaid, wic, etc would be where I would start. Also a thought is your local health dept. We didn’t qualify for any of these as they are income based.

Good luck!

[Anonymous]

Thank You SO Much I have to call her insurance company tomorrow. (Keystone Mercy) How would I go about finding out who the CEO is if there is a problem??? She is on Medicaid & our state’s insurance. We have WIC and are waiting for them to get shipment.

Erica ~ Who do you buy Neocate from on E-Bay???

[hellbennt]

SAHMtoAZL&K wrote: … (Keystone Mercy) How would I go about finding out who the CEO is if there is a problem??? She is on Medicaid & our state’s insurance. We have WIC and are waiting for them to get shipment…

From ‘Going to the Top’ Post (link above):

here’s Keystone Mercy Health Plan http://biz.yahoo.com/ic/110/110137.html

Phone:

215-937-8000 President and CEO: Daniel J. Hilferty

Help From Companies:

http://finance.yahoo.com/search

(1) If you go to the website & look for the company, you’ll find the main switchboard ph # plus the names of the higher ups (CEO, etc.).

2) THEN, you find out the name & fax # of the SECRETARY (now called administrative assistant?) to the CEO…

3) THEN, you FAX everything to HER (usually it’s a ‘her’ – might be a he

4) THEN you get RESULTS!!!!!!!!!!!

~~~~~~~~~~~~~~~~~~~~~~~~~

Here’s more insurance related info:

(dealing w/ Neocate) https://www.infantreflux.org/forum/forum_posts.asp?TID=2291&a mp;a mp;a mp;a mp;a mp;a mp;a mp;PN=1&TPN=1

tips on how to write an appeal to insurance: http://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/insura ncedenial.htm?OpenDocument (thanks Emmy!)

how to get insurance to cover neocate, etc: https://www.infantreflux.org/forum/forum_posts.asp?TID=5603

contact your congressperson: http://www.aarda.org/congress_connect.php

[Anonymous]

It was also written in our policy that it was not covered (it strictly said Neocate was an RX not covered BUT…you don’t know me )…it is covered now. I appealed it. It is FOOD for crying out loud! And my baby needed it to thrive. I fought them. I had to buy a months supply on my own and fax the receipts, but I was reimbursed FULLY and will be for each supply I buy. Sometimes you just have to fight them on it. If they say no, tell them you need to appeal it and get your GI doc involved, they will usually cover it if GI tells them that the baby will end up in the hospital without it.

HTH!

[Author]

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