Home › Forums › Infant Reflux Support › HELP!!! › worst night ever- what is going on?!
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June 15, 2009 at 7:57 am #62925
Anonymous
InactiveI do not understand what is happening. Bo is doing worse at night than ever before. Just some history: a lot of ear infections from 10 weeks on, had tubes at 5 months; congested from about 1 week on (this is now actually better since I started the mspi diet and current meds). He has slept in his swing since a few days old and would wake about 2x night from 3-5 months. Starting after the day he got his tubes in, he has become this different sad child. He wakes all the time, thrashing in our arms, arching his back, kicking his legs, etc. We have been trying the crib elevated, but no, this is worse yet.
We gave him 2ml of mylanta last night, and he had his worse night – was it the mylanta?I am doing the mspi diet (for a week now) and Bo just got changed to the prevacid dose a little over a week ago. I have talked to his NP and she said he is on an average dose based on the national standards. He is going to children’s hospital in Milwaukee to their acid reflux clinic.Please help – we are in such a vicious cycle. He is in pain at night, doesn’t get enough sleep during the night, then crabby during the day.Thanks, Suzannemomsuz123 2009-06-15 07:57:45 June 15, 2009 at 8:42 am #62927hellbennt
Keymasterwhat is is current prevacid dose now? you say it was changed?
also, is it the liquid? I know you don’t want to hear it, but maybe another form of prevacid is the way to go?in the meantime, TELL the dr you want to try carafate. this is a short-term solution- carafate is like a prescription mylanta- it’s used to treat ulcers- it coats the esophogus and gives it a chance to heal- it cannot be given at the same time as prevacid- it needs to be spaced 2hrs from the prevacidI am sorry for your sad little one
I also mentioned in another post trying something like pepcid ac to get him comfortable…you say your dose is average, but have you checked outhttp://www.marci-kids.com? I would contact them directly and see if they have connections at the Milwaukee Children’s Hospital acid reflux clinic…here is dr philips’ contact info:Dr. Philips: phillipsjo@health.missouri.edu
Office Phone: (573) 884-0672June 15, 2009 at 10:14 am #62929Anonymous
Inactivehi, Bo has been on prevacid solutabs since 6/5/09, I started my diet the same day. He is on 7.5 mg 1x/day. I know that based on marci kids it is very low, but the np said it is the national average dose for a 17 pound baby. She also said she never heard of marci-kids. Who runs it? Do we know their credentials,etc?
you know, I had a hot dog at a cookout yesterday. I read the ingredients, but maybe I missed something. If I switch to formula, which is a good one to try?Thanks.June 15, 2009 at 11:15 am #62932Anonymous
Inactivehi all, I got an appt for Bo to see his ped. The np called and said since we gave him mylanta last night, that should have helped him if it was due to acid reflux. So, she recommended we go back to the ped. I am going to bring some of the marci kids stuff too.
I just got off of the phone with the pharmacist (I can’t believe I didn’t think about calling him earlier!!!). Anyways, he admitted that Bo was on a really low dose, and that this is such a safe medicine. So I am going to see the ped today, and am hoping for some changes!momsuz1232009-06-15 12:01:05
June 15, 2009 at 7:53 pm #62934hellbennt
Keymastermarci-kids is reputable. check out their site
. they are at the forefront of research in the field of PPI dosing and administration for infants and toddlers/children. they are based out of the U of MO. Dr. Philips is a dr of pharmacology.Our ped GI coincidentally did some time (Internship? residency? fellowship?) at U of MO and thankfully was open to looking at the research. this was 5 yrs ago.as for formula, if you get things more ‘under control’ with the meds, you might see that diet may not be an issue…Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
hellbennt2009-06-15 20:23:23
June 15, 2009 at 8:14 pm #62935Anonymous
InactiveHi thanks for replying. I got Bo in to see his regular ped. She didn’t know about the solutabs (the acid reflux np put him on the low dose). She had no problem with upping his dose. So now he is on 7.5 mg 2x/day. Now, this still seems low, right? She wants me try it and then let her know on Friday to see if she should do more, hopefully.
I am giving up my diet tonight also, I hate it and am going crazy. He is doing worse now more than ever, so I don’t think it is the diet, could be wrong though. I also don’t think my milk production has been the best on this diet.Well, let’s see how all our little ones do tonight!!!!!June 16, 2009 at 7:12 am #62940Anonymous
InactiveMy LO had a reaction to Prevacid. It started around the same time frame you mentioned. I noticed that his screaming was happening for a few hours each night. Then it happened all night and an entire day the next day and was accompanied by abnormal bowel movements. As soon as we stopped the Prevacid the screaming stopped.
I’m not sure that is what you are experiencing or not. Prevacid works amazing for most people. It just didn’t agree with my little guy’s stomach.June 16, 2009 at 8:05 am #62941Anonymous
InactiveDid you LO have the reaction when he was on prevacid solutabs? That’s what Bo is on. He didn’t have this reaction when he was on Prevacid sol’n.
Last night was another bad night. Maybe I shouldn’t cheat the diet. I just figure that he is doing worse now than he ever has. I just don’t understand, he use to be a fairly average sleeper – woke 2x/night, nursed, and back to sleep really easily. Now this screaming, crying stuff and waking 5-10x night is just new.I really don’t think the mylanta helps when we add it either.Please help. Thanks.Should I go back on the prevacid soln?June 16, 2009 at 8:40 am #62943hellbennt
Keymasterthe prevacid solutabs should be given on an empty stomach, follwed by a ‘meal’ 30 minutes later.
is this how you’re giving it?I would give the increased dose a few days…(also: you could try giving 7.5 three times a day. DISCLAIMER: I cannot tell you to go against your doctor! but if you try it and it works, you can tell your dr after-the-fact. again: I am NOT telling you to do this…)you ask if the solution (called compound) is better? I would have to say NO. if you want to go the liquid route, I would get Caracream/BufferbabiesWhat is this? It’s here
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Prevacid 101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
as for the diet:how are his poops? ‘regular’ breastfed baby mustardy/seedy poops? or are they stringy or curdy (like cottage cheese curds)- this would be mucous-? are they frequently green (SOME green is perfectly normal)?how is his gas? foul smelling?does he seem to strain to poop?these things can point to dietIf poops & gas are normal then I would give the PROPER prevacid dose, ADMINISTERED PROPERLY, a few days before changing your diet…if you’ve eaten dairy or soy again, it will take 2 weeks to clear your system…you can do this!
June 16, 2009 at 9:40 am #62945Anonymous
InactiveOwen’s reaction did occur on the Solutabs. I wish they would have worked because people have such great results with them!
June 16, 2009 at 10:15 am #62949Anonymous
Inactivedo not get off diet yet! only because he might need a diet change and meds at the same time. since you just upted the meds… it will take a couple days to see effect. if you stop diet.. the meds might be helping and u dont know because the dairy protiens are aggrivating his reflux.
June 16, 2009 at 2:54 pm #62956Anonymous
Inactiveyep, i think i am giving the meds the right way. it is hard to do them on an empty tummy though when he nurses 3x/night. and since now they want another dose in the evening. how long in between feedings is empty? i justed posted a new post, but realize i should have stuck it here, ohhhhh, so sleep deprived!!!
his poops have always been great, until a few weeks ago when this flare up started, now constipated, but not severe.June 16, 2009 at 6:31 pm #62958Anonymous
Inactivejust a ?, again. if i do i have to give up nursing, which i don’t, what formula is good? also, right around the time of his flare up, is when he was eating more baby food. so, i am thinking maybe i should start all over with that??? momsuz1232009-06-16 18:31:27
June 16, 2009 at 7:55 pm #62964hellbennt
Keymasteryou do NOT have to give up breastfeeding…I gave a link about what/why the formulas do/aren’t necessarily the answer:
Misconceptions about how Neocate & Elecare work: https://www.infantreflux.org/forum/forum_posts.asp?TID=6013
if you quit breastfeeding and go to formula you might find yourself w/ continued frustration while you go about finding the right formula. it seems as though there is a ‘honeymoon’ period w/ formulas: you try it and everything is great for about 2 weeks and then all goes downhill again
…(build up of the proteins in the system after 2 weeks)…so then you try another one and so on.HOWEVER, if you truly want to give up breastfeeding after trying med changes (proper dosing, proper form, proper administration) and diet changes, then OF COURSE we will SUPPORT YOU
June 16, 2009 at 9:40 pm #62966Anonymous
Inactivethanks laura, you are wonderful. I feel guilty already that I gave up the diet. So, I think I am going to start again. (I ate half of a cheeseburger last night and had some frozen custard). One thing though is I really don’t want to stop breast feeding. With my dd2 I she kind of self weaned herself at 11 months and did not tolerate cow’s milk. She ended up on a soy free, lactose free formula (she too had reflux and tubes as a baby, but Bo is much worse).
I think I need more variety in my diet to stick it out. I am going to go to a local organic health food store this week to help me out. Any advice of on some sample menus for the mpsi diet would be great.I just want to enjoy my little guy more than I am. He took a lot of work to bring into this world (his name means “life”), but now I am not enjoying him as much as I want, plus my girls need me too.THANKS AGAIN! Sorry for so many questions, I am just not getting any guidance or direction.Oh, the ped office called back and told me I could give Bo 15 mg 1x/day in the am, instead of splitting the dose, what do you think? -
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