Anxiety Attacks

[Anonymous]

My son has got diagnosed to Vascular Rings, Right Aortic Arch- The past two weeks have been tests after tests to confirm his diagnosis which is pinching his windpipe and esophogus causing him not to be able to breathe. Surgery needs to be done.

I have never felt so scared in my life- I’m trying to hard to be strong so the children will be happy but my poor little boy. They said it was asthma but i knew as a mother that there was more. I got a new doctor and demanded new tests. Everyone should go with their instincts.

I feel as though I can’t fully just cry to my husband because he’s emotionally drained as well. i feel as though i’m having anxiety attacks and the thought of anything happening to my son, i start to shake and i can’t stop crying.

His name is Christian Laeno- Please pray for his surgery to go well and for a quick recovery.

[Anonymous]

Hi there. I don’t have much to offer by way of knowledge about having a pinched esophagus and windpipe. But I can understand your fear. Any time we hear that there’s something wrong with our kids it’s hard, and surgery is hard as well. I know that there are some moms here who have had to go through it with their little ones.

I’m so sorry to hear about your son and what you’re going through. I understand being told one thing, and knowing in your heart something else, and having to push and push to get results. You should be so proud of yourself as a mom. Your efforts resulted in them finding out what’s wrong with your son, and now they can help him properly.

My daughter has had seizures since she was 11 months old, just recently diagnosed with epilepsy. So I understand fear of something happening to your child. I have gone through periods where I’ve been terrified to leave her, afraid that something would happen when I wasn’t there, being unable to stop crying. Periods where every time the phone rings, my heart stops, afraid that something has happened. In fact, many days are like that for me. I understand feeling overwhelmed with anxiety and feeling terrified, and wondering “why us? why my child?”. I also understand wanting to cry and being emotionally drained, but having to put on a brave face for your family. I think that’s all normal. But you also need to have someone to talk to. If you can’t talk to your husband, then maybe a good friend, or moms from a support group who are going through the same thing, or even a counsellor or therapist or doctor. If fear is overtaking you, then it’s too much. Sometimes the unknown can be scary. I’ve found that sitting down and making a list of questions and asking them to the doctor helps a lot. That way you get your answers and that helps to alleviate the fear. Also reading up on the illness. Knowledge can help to empower you.

It’s okay to feel scared. Surround yourself with people you can lean on. Surround your son with people who will pray for him. In the end, it’s really great that they’ve found something that can be corrected. Surgery can be scary, but often it’s over quickly, and the kids get on with being kids. It’s us parents that have a hard time. I’ve found that when I’m feeling really down, I try to remind myself that there are so many people who have to deal with so much worse, and remind myself that God is watching out for my child. I hope that you can feel the same. I’ll be praying for your son. Good luck. HUGS.

[Anonymous]

You don’t know how much I appreciate you taking the time to write to me and share your experiences as well. I am in tears as I’m writing this because you’re right, sometime you need to just let it out. Maybe I seeked other forms of median because I was afraid that my friends and family would worry that I’m not being strong enough for my family.

I do have to realize though that finding this vascular ring was a true blessing in disguise- I feel as though I can write a book on this disease now that I’ve researched it so much. It stated that kids have ofter died from this disease if not found. I thought to myself how easy it would’ve been to just listen to that other doctor and say it’s just asthma and what would’ve happened to my son? It breaks my heart to notice his cough and wheezing that we have gotten used to because we always thought it was asthma. In the end there are people going through a lot worse then what we are but as mothers I am so happy that we can share this with each other and understand even if we’re not going through the same diagnosis-

I don’t know too much about epilepsy but my sister has a child that is 2 and we believe she has autism. The therapy place that she goes to has children with epilepsy and autistic children. Her daughter is not able to talk, crawl, walk or stay focused- almost like she’s in her own world. As of right now they tell her that she’s just developmentally delayed. With epilepsy was your daughter delayed? I’m sorry to hear that your daughter has had all those seizures, my heart stops every time we get a new phone call or a new doctor’s appt with results.

I will pray for your child as well- it’s all in God’s hands now and all we can do is pray. Thank you for listening, it means more then you know-

With love,

[Anonymous]

Lori-I just noticed that you have a 6 year old and a 3 year old as well 🙂 My son is 6 and my daughter is 3.

All the best,

[Anonymous]

All the best. Please keep us posted. Feel free to PM me anytime you need a shoulder to lean on.

[Anonymous]

It’s been a little bit since we found out that Christian has the vascular ring and right aortic arch. The surgery is set for July 15th and he’ll be in the hospital for about 3-5 days. Lori, you were right, the more knowledge I found about this disease I started to get less scared. Although it’s rare, they said it’s not going to be difficult and after 5 opinions being the same later, i feel okay going into surgery. Still so scared for my son but i know that one day this will just be fuzzy memory and i’ll remember how i got through it.

Thanks again for lending me your ear!

[Anonymous]

We will all be thinking about you and praying for your little one. Hang in there!!!!!!

[Anonymous]

I appreciate it Anne Marie and Thank you for your thoughts- this forum is making me that much stronger and I’m so happy to have found it!

[Anonymous]

Hi,

My son’s open heart surgery is scheduled for July 7th- please keep him in your prayers for a safe surgery with no complications and a quick recovery.

God Bless,
Linda

[Anonymous]

Definitely! Good Luck!!!!! Hang in there! It will be over before you know it……..

[hellbennt]

Sending goodvibes & prayers !

[Anonymous]

I hope the surgery goes well. Big Hugs.

[Anonymous]

I will be thinking of you and sending prayers for your little guy! HUGS. Please keep us posted.

[Anonymous]

Hi everyone.

I appreciate so very much the thoughts and prayers. We we’re in the hospital for a week because a few complications but my son is finally at home. I haven’t seen any drastic changes as far as him breathing better but hoping it will get better since it will be a 2 month recovery.

Remember to take care of yourself when times are tough with your children- I haven’t done so, and it’s really taking a toll on me now. Although it’s not about you, it’s okay every once in awhile to talk about your feelings.

I hope everything is going well with your children as well- please don’t hesitate to talk if you need too..

All my love,
Linda

[Anonymous]

So glad you are home!!!!! Hopefully every day he is better and better! Hang in there!!!!! And YES it is very important to take care of yourself so you are your best for your babies….

[Author]

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