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February 14, 2010 at 12:50 pm #65803
Anonymous
InactiveHi, I had a beautiful baby girl who is now 6 weeks old, unfortunately since she was born it has been a rollercoaster of crying, screaming, hospital visits and trawling the net. Sorry this message will be long but want to tell our story. She started screaming and wanting to feed constantly around 3 days old (i was breastfeeding) when my milk came in and this carried on for weeks, was told many opposing things and eventually ended up in hospital with dehydration. Started formula feeding and things improved for couple days but they have been bad since. Her symptoms are crying inconsollably, screaming, gagging, choking, coughing, some vomiting, occasionally projectile, poor sleeping and constant waking, frequent hiccups, drooling and constantly irritable. Saw paedatrician and diagnosed reflux, was put on gaviscon over a week ago, this improved vomiting but none of the other symptoms. She was put on domperidone on Friday which seems to have worsened things, does anyone know how long this takes to work. She seems in constant pain (heartburn) but doctor won’t prescribe any acid suppresants and i don’t know what to do. She is obviously bringing up acid and swallowing it back down but doctor said nothing more can do. I’ve seen many posts describing acid blockers and so feel my baby is not getting full care. I have raised basket (doesn’t seem to help) and leave her upright for half hour plus after feeds. What do i do! I can’t bear to see my baby suffer any more! Help……
February 14, 2010 at 1:07 pm #65805hellbennt
KeymasterHI & welcome!
I don’t know anything about your medical system, but I would try and get to another doctor as soon as possible! if a pediatrician can’t help, you could try a family doctor…how could a medical professional tell you there is nothing more to do! shame on her/him!
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key to all of this is RESEARCH and, of course, support!http://www.marci-kids.com is at the FOREFRONT
of research of PPI use and dosing in infants/todders. You might want to
start there to see if PPI dose is ‘proper’then,
hop back here to learn HOW to get that proper dose, if need be, and what FORM of PPI and HOW to administer…Prevacid
101(last post on the page): https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1unfortunately
the majority of drs & pharmacists don’t know…babies metabolisms’ are much
faster than adults, so the drugs work differently with them…after
medication, you might then want to look at diet…I
have a LOT MORE TO SAY! and most of it is here: Groupie Intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853it’s
looong, but PLEASE read/skim/scroll through it & refer back to it, as it
TRULY will help you!so
glad you found us!~laura
ps: when you
get a moment, please go to the upper right-hand corner of this screen and click
on ‘settings’ and from there you can edit your signature and let us know how
old baby is, what formula or breastfeeding, MSPI or not, what meds and
what doses and form of meds and how you’re administering-thanks!hellbennt2010-02-14 13:08:45
February 14, 2010 at 1:42 pm #65806InactiveHi, thank you very much for replying and providing so much info. Yes the paed really shocked me, said if the domperidone does not work I should put symptoms down to colic and she will grow out of it! Usually our local doctors refer us on to a paed, I have seen 4 docs up to now, one said he would not be happy to px ppi in a child so young, other said babies cry! It’s Monday tomorrow so if no improvement on domperidone by then I will be on phone. Thanks again, no one really understands unless they have been in situation, Em
February 14, 2010 at 7:22 pm #65808Keymasterit’s so hard!
I would research all you can (here and at http://www.marci-kids.com)
and then when you are ready, I would FAX the doctor, rather than a phone call. With a written letter via fax, you can say all you need to say and I have found that somehow, perhaps because it is written, it is taken more seriously.I have trouble copying & pasting from my documents, so please ignore anything that looks like a link (is underlined) and is not!
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facts (no feelings and no rambling emotions)state
current meds, doses, symptomsmake
request- flat out- short & sweetfollow up by
calling office to say fax was sentsample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325
About faxing the doctor
(& more): https://www.infantreflux.org/forum/forum_posts.asp?TID=2841&TPN=1hellbennt2010-02-14 19:27:10
February 15, 2010 at 2:02 pm #65810InactiveUgh-I’m sorry you’re having difficulty w/ peds… w/ my 2nd son (who had severe reflux + VERY severe intolerances to foods in my diet) the 1st ped GI we saw said that a) prevacid wouldn’t work for him (it did), b) he probably didn’t have blood in his stool (he had blood in every diaper until 10 wks old) & c) he was just colicky & to wait it out… UGH!
Anyway, hang in there & just remember that you are the advocate for your baby. Research as much as you can, print out, take in info, fax, call, whatever you have to do.
I’m sorry & hang in there!
February 17, 2010 at 2:47 pm #65813InactiveHi! I went through all of this before with my 4 year old’s doctor when she was a baby. And my advice is…find a new pediatrician. As soon as I did find one that would listen to me and talk about a plan that would work for the both of us, my daughter got some much needed relief. Unfortunately, I waited until she was about 6 months old to find a good one…and went through about 5 doctors in between that time. Good luck and I hope that your little one feels better soon!
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