Hello,
I read this post last night, and I just haven’t been able to come up with appropriate words or any real help. I just want to say that I am so sorry for what you are going through as a family, and I will pray for you that your baby doesn’t have this serious condition and that he may have similarities to this disorder, but I will pray that he doesn’t actually have it.
I haven’t been able to stop thinking about you and your family, and I had trouble going to sleep last night, because I just wish I could help you out in some way. I can’t even begin to imagine what you are going through, and I just wish you the best and that you feel God’s presence in this difficult time.
You will be in my thoughts and prayers.
God bless,
Emily