Cleft palate baby with bad reflux! HELP!

[Anonymous]

Hello! I have a 3 week old with cleft palate and because of her cleft, she swallows more air and has more gas than usual. She is miserable all the time and screams mid-way or after a feed. We have had her on 4 different formulas and finally ended up at Soy only to discover she was allergic. We went back to Allimentum (even though it gave her diarrhea before). We have been on that for 2 days now. The gastro put her on prilosec (Zantac I could not get down her throat) and she has been on that about 10 days with no real relief (7.5 mg once a day). He then put her on Carafate, but no real results have been seen because you are supposed to give it 5 minutes before a meal and she eats constantly. Because of her cleft she has little meals that are more frequent. Soooo I am at my wits end with what to try. The poor thing screams the majority of the time and is so hard to soothe. I don’t know what else to do. Any suggestions? Thanks!

[Anonymous]

Oh, I am SO sorry your little one is struggling so much! My heart truly goes out to you! (((HUGS))) to you and your baby!

It could be that your little girl is low on probiotic and enzymes.

My children suffered severely from digestive problems and food intolerances.

I would love to write a detailed post to you but because of lack of time today I am going to just refer you to my blog that I created to share with people! http://help4acidreflux.wordpress.com/

I wish you the best in finding help for your little one!! Feel free to ask any questions you would have. I will try my best to answer them.

[hellbennt]

I have a LOT to say and most of it’s here, in a link called ‘groupie intro.‘
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853

Prevacid 101:

scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660

there are recommendations for ped GIs in your area…

Carafate spacing from PPI:

okay I did a quick search and here is what I found… 3rd post down from Sheri who unfortunately isn’t on much anymore… says space it 2hrs apart.
https://www.infantreflux.org/forum/forum_posts.asp?TID=10620&KW=carafate

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