Eosinophilic Esophagitis Question

[Anonymous]

My friend’s dd has just been diagnosed with Eosinophilic Esophagitis through a endoscopy and biopsy. I read Laura’s info (Thanks Laura ) on EE and was wondering if anyone currently on the site has a lo diagnosed with this or knows a lot on the subject. Any info would be super helpful to her. Thanks so much! addysmommy2007-6-15 12:40:3

[Anonymous]

Direct her to http://www.parent-2-parent.com/forum . There is a whole section addressed to EE, and some very knowledgeable people on the topic. Good luck.

[Anonymous]

Thank you, Lori!!!!

[hellbennt]

yahoo group:

http://health.groups.yahoo.com/group/ACED/ these kids have a LOT of food
intolerances, lots have reflux and react with GI issues, and the moms have a
lot of coping strategies and food trial experience.

“Our discussions include topics like symptoms (feeding problems, reflux, allergies, failure to thrive, vomiting, diarrhea, etc.), how to get a proper diagnosis, where to find treatment, feeding tubes, going formula only and many, many other issues relating to Eos Disorders. Please join us at our new location and share your advice and struggles.”

[Author]

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