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It’s so hard, isn’t it? Elijah was/is teething, got a cough and clear
runny nose, red checks, stopped reglan and got a new jumper for him to
play in. He also had just started Prilosec Suspension.His acid reflux got worse and all these things we were new. So I put
away the bouncer (he absolutely loves it) his nose runs occaisionally
and he had dark circles under his eyes and I thought perhaps he was
just having an allergic reaction to spring pollens . It lasted longer
than a virus would and the pollen has been down with all this rain. He
is better now, but he is mouth breathing even though it doesn’t seem to
have a stuffed up nose.Then mom gave him the reglan again and tylenol for teething pain along
with teething gel and gripe water. Or maybe the Prilosec started to
work?Who knows, we changed to prevacid solutabs without any regression and he’s been doing pretty good.
He is still waking up in the middle of the night or early morning,
usually to eat and falls back to sleep but sometimes it’s bad because
the acid comes up and he cries.My video camara is not working correctly or I would tape him when he is
having problems (I pray he has no more and this will wind down.) I can
take a small vidoe tape woth my digital camera though the video is not
as good as a real video camera.Could you video tape (useing a tripod) a day in he life of your
daugters misery and how she reacts to food or bottles? Take a whole day
using amny tapes and put together a video of all of her pain for the
12/24 hours.Tape each 3 or so hours that she screams while you try to comfort her,
They say a picture is worth a thousand words.
Elijah was absolutely perfect at the pedi sick call we went to after
one heck of a weekend. He had been coughing and rubbing his ears,
whining, moaning, refluxing, had Sandifers symptoms for days and we get
there and he is quiet and the perfect gentleman when the pedi listened
to his airways and then he had to sit still so she could pull a piece
of wax out of her ear. He did not whine once.I am sure she thinks we are nuts
Tracy- Thanks for asking about Claire. She is up to about a dozen different foods now, all table foods! She failed trials of eggs/wheat/beef and is at least 4 months away from attempting dairy and soy. About 2/3 of her calories are from Neocate Jr. (sippy cups!) still. Developmentally, its a mixed bag… she is saying tons of words and even using some short sentences, but she isn’t walking yet. I see her progressing in that direction a little more every week though. Medically, she’s still dealing with reflux and DGE plus what appears to be easy fatiguability and lately, this occasional strange trembling/tremor of her jaw and arms. The neurologist suspects she may have a mitochondrial disorder (probably worst case scenario) or just several unrelated “fluke” symptoms that will turn out, in the end, to be nothing to worry about (best case scenario).
The allergist does suspect EE, the GI doc is reserving judgment. My own “glass half full” opinion is that she probably does not. After all, what are the odds that one kid could have some many unrelated medical issues?
On a happier note, 16 months is an absolutely delightful age. Claire is a really happy, affectionate, playful girl. She loves to read books, play babies, take off her clothes (
), and imitate anything her big sister does. I hope Ian does okay with the endoscopy. I’d try mixing just a smidge of squash into the bananas and see how he does. Maybe he is just unhappy with squash. After all those yummy bananas, maybe he just finds the squash disappointing now.
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