FPIES and modular formulas?

[Anonymous]

Hi there…so after 2 months of mulitple failed formulas and continued GI symptoms, the GI thinks my babe may have FPIES (this is food protein induced enterocoltits syndrome) He is 3.5 months old. We are having an endoscopy and flex sigmoid next week to evaluate whats going on in there. He does not have the “classic” symptoms of the fpies, with the severe vomiting and shock, etc. What he does have is awful reflux, nasal congestion, spitting up mucus, very thick mucus in his stool which is very difficult to pass, and blood in his stools. his belly always seems to hurt. he does not do well on elemental formulas…

so my question is, does anyone have experience with fpies and modular formulas? GI says we may need to do a modular formula since he cant tolerate these elementals which is pretty rare

[hellbennt]

use the search button, upper right-hand corner of the page- go back over a year…

also:

Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660

there are recommendations for ped GIs in your area…

and:

probiotics, brands used:

https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

[Anonymous]

Julie—-a friend of mine that used to be on this board regularly when I was on here regularly has a son that had FPIES. I am sure she would be happy to give you any info you might need. Her name is Tracy–I can’r remember what her screen name was—maybe Laura can remember–I will try and get a hold of her and have her look at your post–she is so busy these days I haven’t talked to her in ages—and she has had her colon and stomach both romoved since she was on this board—-amazing woman!

[Author]

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