Home › Forums › Infant Reflux Support › HELP!!! › I feel CRAZY, please help me!!!
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January 30, 2008 at 6:02 pm #47830
Anonymous
InactiveSorry to sound so desperate but I think I’m going nuts from the 8 week old that wont stop crying in severe pain and the 2 1/2 year old that wont mind.
if anybody does read this, there are a lot of questions- please if you only can answer one question it will help, dont feel obligated to spend your time trying to read all my blabbering
I have looked at Laura’s post, THANK YOU SO MUCH, how amazing of you to try and help us all out. It has a wealth of information but I still have some questions.Background: Sweetpea is 8 weeks and 11 pounds, was recently on zantac and reglan now has been switched to prevacid 15mg solutab and ped wants to continue on reglan to strenghen les, we havent started prevacid b/c i just got the script today. I know she is refluxing we had an upper gi that showed anatomically she is fine but she is definitely refluxing, moderately.
Questions:1. Any suggestions for the best way to deliver the prevacid, so you just mix it with water and syringe it in?2. Maybe its MSPI- is there a test for this or is it just by the elimination diet?? The ped said we could do an allergy test in 3 weeks ( where he puts milk on her back with the allergy tester and sees if she responds) this doesnt seem to be the same kind of allergy to me, its a protein intolerance, i think he really didnt know that much about mspi when i brought it up and this was his lame solution ( but if not hooray for such an easy test)3. mspi symptons that sweet pea has:green stools, no blood- stinky poos- crying 20 minutes or so after a feeding and then the crying continues and continues……little to no napping, she just wakes up in pain- mostly diarrhea without many mustad seeds, she is breastfed.4. should i just try the meds for a few days and then try the diet- if i start both how will i know which it is??? how long does prevacid usually start to work?? am i a mean mommy to not start the diet immediately?? ( i live for chocolate
scared to go without it.)Thanks so much, I’m so glad i found this website- there really is not a lot of information out there on mspi, boo to the doctors but yea for other mommies who care
January 30, 2008 at 6:42 pm #47831Anonymous
InactiveFirst thing is, did she have a test that showed she had delayed gastric emptying? If not then she probably doesn’t need the reglan. Like Laura says most Drs. give it just because. Reglan can be helpful, but can also be harmful. A few moms have taken it to increase their milk supply and said they feel like they are coming out of their skin and one mom went into a major depression while using it. Reglan can be helpful though if that is what she has.
Yes, you just mix it with water and syringe it in. I haven’t done the solutabs so I don’t know a lot about them, but I think you do have to make sure you get it all in, or as much as possible.As far as I know there is not a test for mspi. My understanding is that Allergy testing under two is worthless. I am no expert though. I do think your best bet is to do the elimination diet.Would you describe her poo as snoty? I know you said dirrhea, but snoty poo can look like dirrhea.I would give the meds a go before trying to eliminate anything. That is just my opinion. I say get the reflux under control with meds if possible and then if that doesn’t work try the diet. It usually takes a good 2 weeks for the meds to kick in and sadly two weeks to know if the diet works. Oh, I would also check out marci-kids.com and make sure your baby is on the correct dose of meds. If your baby is not on the correct dose then she won’t feel better no matter what you do. I’m glad you found us.One last thing I will say is don’t let anyone talk you out of breastfeeding. Breastfeeding is one of the best things you can do for a reflux baby. Your milk acts as a natural antacid. Not only that, but when your nursing their are hormones that are released that calm you down. I know that’s probably hard to believe given how you feel now.
Oh, I also had a two year old and a reflux baby and it is hard. There is nothing easy about it, but know that before you know it it will all be over. I wish I could do more to help. Your doing a great job mama.
January 30, 2008 at 7:34 pm #47833hellbennt
Keymasterwhile you are switching from zantac to prevacid, keep giving the zantac (4 hrs seperate from the prevacid) bcse it can take up to 2 weeks for you to see the full effects of the prevacid & without the zantac, it’s as if baby isn’t on anything at all.
to give the solutabs, it has to be on an empty stomach & then followed by a meal 30 minutes lateryou can give the solutab in as much or as little water as you want/find you need/like- you can try using a skinny syringe (1ml), medium 3ml syringe or even a dropper like that comes w/ the tylenol or mylicon…you can even place the solutab (or half or whatever it is your dose is) on the inside of baby’s cheek & hold it there to dissolve- parents who do this try & switch the location of the solutab from dose to dose so as not to irritate any one spot over time…MSPI:Mspi/allergy info(‘main page’): https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=1&TPN=1there’s a link, right at the top of the page, that will take you to page 2 & there you will read an excellent explanation about the difference b/t mspi & allergies. this should help a lot.I agree that you might just want to get the neds straightened out first and then tackle diet (if that’s what you decide)…any chance you have OAL (overactive letdown) also known as foremilk/hindmilk imbalance/ this can ‘immitate’ mspi & exacerbate reflux as well…this should help with this:What to do about OAL scroll down to the 4th post by Bensmama:
hellbennt2008-01-30 19:50:43
January 30, 2008 at 10:53 pm #47853Anonymous
InactiveTHANK YOU Ladies for the info.
She has not had a test for the gastric emptying, i had taken her off of it b/c i wasnt sure of her being on it- but when i went back to the ped. he said we werent using if for emptying but rather for strenthing the les for her reflux, HOWEVER i’m not feeling very confident in his grasp of reflux and/or mspi.I mixed the prevacid with the water and used a syringe, it worked great thanks. i checked the dosing at marcikids and according to it shes only getting 1/2 of what she needs. Do i call the ped. or fly solo and up it myself?? i do think i will give the zantac in conjunction with the prevacid b/c of the 2 week lag.AS far as the poo- i wouldnt describe it as snotty, but most of it is asorbed into the diaper b/c of the runniness of it. maybe it is and i cant tell, or is it really obvious if its snotty?? but its for sure green and smelly!the mspi website was of great help and information. i’m feeling like that could be it- she has several of the symptoms plus the fact that she is content mostly after feedings its more during the digestion time frame that the pain starts.i looked into the oal- i dont think thats it only b/c i only nurse on one side for about 15 minutes, i can see the thickness of milk(hindmilk) if any spills out towards the end of the feeding versus the thinner milk in the beginning, shes not gulping like its coming too fast (although with my first child during those painful engorgment days if it popped out of her mouth i looked like a fire hydrant spraying everything
),and she goes a good 3 hours in between feedings indicating that she is satisfied- plus she has some super cute fat rolls on her legs already showing off that fatty milk.(but i totally could be wrong, i’m really not sure of much these days
)thank you again for all the info and for replying so fast, how great to have mommy friends out there in cyberspace.HeatherJanuary 31, 2008 at 9:52 am #47862Anonymous
InactiveI am so sorry I forgot to add giving it on an empty stomach and waiting 30 mins after to eat. We did zegerid and didn’t have to wait or give on an empty stomach. I did all my own med increases according to the marci-kids website. I would also e-mail Dr. Phillips at Marci-kids on occasion to ask for his advice. My sons dr. refused to help us with med increases and our Gi was of no help either. I am not a dr. though, just saying what I did.
January 31, 2008 at 11:36 am #47868Anonymous
InactiveHi and welcome!
You got some great advice here. This is a great place with lots of great moms and super support!I am curious, are those your childrens’ given names, or nicknames? Just for my own curiosity. If given, that is very unique!You will find great information here and it is a wonderful place to vent!Ann MarieJanuary 31, 2008 at 2:00 pm #47872Anonymous
InactiveHey and Welcome. I think Laura and Shelby have covered everything, but I just wondered about the smelly, green poo. Is this a recent occurence or has it been like this for awhile? One mom on the board has noted that the solutabs have both aspertame and lactose in them, and if the baby is having trouble with this, it can show up as green, stringy smelly poo (I think she was specifically suggesting the lactose did this).
However, if the poos have been like this for a long time, then it’s probably not the lactose. Ben always had green poos when my OAL was out of control again, but it sounds like you don’t have that.Best of luck to you. I know it can be such a frustrating guessing game.January 31, 2008 at 3:51 pm #47877Anonymous
InactiveHI-
The truth about the names is that I was a little nervous about joining a blog for the first time so those are their “super secret under cover names”
Doodlebug is Bailey and Sweetpea is Lola- although I bet I have had some people wondering if i did too much LSD in college
The poo has been stinky and green for over a month now and we only started the prevacid yesterday BUT if a child is mspi, does the lactose in the prevacid hurt them???? Thanks for letting me know about these ingredients.thanks again for the info.Heatherp.si feel you on the not so helpful doctors, its a bit frustrating.January 31, 2008 at 4:01 pm #47878Anonymous
InactiveHi Heather,
Definitely thought they were unique all right!
To each his own, of course, but was thinking of it in the context of hearing these names on a wedding or graduation day might be a little different. I won’t go more into detail than that, but you all get the driftAnyway, again, this is such a great place and you will really benefit from the support here!Welcome!January 31, 2008 at 5:47 pm #47884hellbennt
KeymasterI’ve never heard of reglan for strengthening the les…jonah had severe reflux and an immature LES and when I wanted to take him off of reglan (no DGE), the ped GI didn’t even blink an eye (the NICU drs put him on it, not the ped GI)….this isn’t to say there hasn’t been new research (or old, lol) showing that it helps w/ an immature LES!
the lactose in the solutab should be ok, bcse lactose is a milk sugar (like in your milk) and not a milk protein…but, you never know…and there’s also the aspertame that could bother a baby…I would give the meds, at a proper dose, a good full 14 days to do what they do & then I would reasess, if necessary…that’s just me, though. actually, given that you feel it might be mspi, I would give the meds a good chance and then start the TED (either going full force & doing the TED or, just eliminating milk & soy proteins to start)
February 1, 2008 at 4:42 pm #47914Anonymous
Inactivehi- thanks for the great info!
I dumped the bottle of Reglan down the sink after reading some posts and what marci kids had to say about it- thanks Dr. for prescribing that!!He also prescribed Levsin to help with the “colicky like behavior” per the doctors words- he said it would help with the tummy pain. Does anybody know anything good or bad about it??? I would love to know. I’m a little fearful of anything now 😉Have a great weekend, heatherFebruary 1, 2008 at 5:14 pm #47915Anonymous
InactiveThis is what I found about Levsin on webmd. I didn’t paste everything, but if you want to know more search for webmd and then go under drugs & treatments and type in the drug name. I would say to be very careful to make sure you don’t dress your baby to warmly, but other than that I don’t know. Let us know how it works. As far as I know that is a new one to these boards, but I could be wrong.
Hyoscyamine is used to treat a variety of stomach/intestinal problems such as cramps, infant colic, and irritable bowel syndrome. It is also used to treat other conditions such as bladder and bowel control problems, cramping pain caused by kidney stones and gallstones, and Parkinson’s disease. In addition, it is used to decrease side effects of certain medications (drugs used to treat myasthenia gravis) and insecticides.
This medication works by decreasing acid production in the stomach, slowing down the natural movements of the gut, and relaxing muscles in many organs (e.g., stomach, intestines, bladder, kidney, gallbladder). Hyoscyamine also lessens the amount of certain body fluids (e.g., saliva, sweat). This medication belongs to a class of drugs known as anticholinergics/antispasmodics.
How to use Levsin Oral
Take this medication by mouth as prescribed, usually 30-60 minutes before meals, or as directed by your doctor. Use the dropper that comes with this product to measure the dose out carefully.
Dosage is based on your medical condition and response to therapy. In young children, the dosage is also based on weight. Do not increase your dose or take it more often than prescribed without consulting your doctor. Adults and children 12 years and older should not take more than 1.5 milligrams in 24 hours. Children aged 2 to 12 years should not take more than 0.75 milligrams in 24 hours. Ask your doctor or pharmacist for more information.
Antacids lower the absorption of hyoscyamine. If you use antacids, take them after meals and take hyoscyamine before meals; or take antacids at least 1 hour after taking hyoscyamine.
Drink plenty of fluids while taking this medication unless your doctor directs you otherwise.
Inform your doctor if your condition persists or worsens.
This drug may make you dizzy, drowsy, or cause blurred vision; use caution engaging in activities requiring alertness such as driving or using machinery. Limit alcoholic beverages.
This drug may increase the risk for heatstroke because it decreases sweating. Avoid becoming overheated in hot weather, saunas, and during exercise or other strenuous activity.
Kidney function declines as you grow older. This medication is removed by the kidneys. Therefore, elderly people may be at greater risk for confusion and unusual excitement while using this drug.
Children may be more sensitive to the effects of this drug.
Hyoscyamine should be used only when clearly needed during pregnancy. Discuss the risks and benefits with your doctor.
This drug passes into breast milk. Consult your doctor before breast-feeding.
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