Ladies, I apologize in advance for the long post. I just need a safe place to vent and let out all my frustration before I explode!!! We have had a very long road with Chloe. Let me just give a bit of short background so then you can understand why I am so upset. She was born premature, but okay. We have gone through all sorts of diagnoses, some incorrect, some correct. We know she had severe MSPI, reflux, and DGE. She was having bloody, mucousy, diarrhea up to 10 times a day. We had been to several specialists because everyone was extremely baffled. We were doing 2-3 stool samples a week, had done in depth blood work several times. She seemed to be showing a new and confusing symptom every few days. She would scream uncontrollably, but it was completely different from the reflux, because it has begun to get a little better. Finally, two weeks ago, she stopped eating. Refused. They were talking about a feeding tube, had mentioned malabsorption/metabolic disorders, possible malformation of something internally, even cancer. I was at my wits end and scared to DEATH. The GI doc decided to do some diagnostic procedures (endoscopy, colonoscopy, 24 pH probe) to see exactly what we were dealing with.
Okay, background over. I have had a message board I have frequented since being pregnant with my older daughter. We have been together for 3 years almost. Well, I would post and vent to them about Chloe. Several of the women who are on there have just become mean. They then proceed to attack me and tell me that I was posting just to get attention. I was just venting, like all the rest of them did. I was trying to find a way to share and get ideas about what may be wrong. I left the group because I just didn’t need that in my life, but now I feel like I don’t have any place to vent about stuff. Sorry for the long post, I just had to get it out…
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