Introduction and some help please!!

[Anonymous]

Hi!!

I’m a mom to 4 great kids, but number 4 is really causing me some concern. I’m not sure where we go from here and any advice would be appreciative. I’ve looked over a lot of the forums over the past month but it is really overwhelming.

My daughter is almost 5 months old- she cried non-stop for the 1st 3.5 months of her life. I was exclusively BF, cut out all dairy/soy which seemed to make no difference- her stools were always negative for blood. She spit up multiple times per day. We saw a pedi GI specialist at Children’s and she was diagnosed with reflux. They started her on Zantac- we tried it for 2 weeks and didn’t notice a difference- then they prescribed her prilosec which we tried for 2 weeks and didn’t notice a difference.

Then we switched her to Nutramigen and she seemed like a different baby- happy all the time, minimal crying. She still spit up but at least she was happy. However when we started her on the nutramigen, she started with a cough. At first it wasn’t a lot and didn’t really effect her. At her 4 month appointment I mentioned the cough, they listened and her lungs were clear, she is gaining weight and they weren’t concerned.

Well after that appointment, the cough started getting worse- she was coughing/gagging/crying during feeds, coughing/crying at night, etc. I brought her back to the pedi and they were not concerned. Her cough continued to get worse and last monday we went back to see the pedi GI. They recommended thickening her feeding and started her back on Prilosec 2.5mg twice per day.

Since then the cough continues to get worse, she went from sleeping 8-10 hour stretches to waking every 15 minutes due to coughing- she is exhausted. On thursday I brought her back to the pedi and they said the same thing- lungs are clear, gaining weight- no problem. Today I brought her back to the pedi and now she is wheezing and on nebulizer treatments.

I’m not sure what else we need to be doing- clearly something is not right- she coughs all the time and sounds congested when not coughing, she is coughing during her feeds and we just feel so bad for her. The pedi said that we need to give the prilosec more time to work.

I’m wondering how much more time I need to give it and what should we do next- I feel like they should be doing some testing or ?? something.

Thanks is advance for any information provided.

[hellbennt]

I would research the prilosec and find a proper dose & form

Prevacid 101:

scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

After reading this, I would increase the dose to what is recommended and I would also buy the products to administer the dose (this will all make sense after you read through the above)

disclaimer: I am NOT a doctor & I cannot tell you what to do. This is what *I* would (and did) do…

I would also read about MSPI and intolerances & allergies

best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2

MSPI ‘Main’ page:

https://www.infantreflux.org/forum/forum_posts.asp?TID=2697

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