Infantreflux.org | Is this silent relux?

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March 3, 2006 at 3:37 pm #2959

Anonymous
Inactive

Hi everyone,

My son is 10 weeks old & has been on Neocate for almost 2 weeks (this Mon will be 2 wks). He screams often, arches his back, passes a lot of gas & pushes ALL the time (trying to go to the bathroom, but nothing happens). Sometimes, even after he does poops, (which is every 2 days) he still pushes. He won’t sleep in anything except the swing. The GI put him on Pepcid & after 2 wks of it not working, he took him off for a few days & said if he stays the same or gets worse, then the GI wants to do a PH probe, but WON’T give him a PPI, he said he is too young & there are no studies on them that they work, which I don’t believe.

Doesn’t his symptoms sound like silent relux to you guys???

Thanks-

Dena

March 3, 2006 at 5:09 pm #2972

hellbennt
Keymaster

YES. sounds like silent reflux. Sounds like ‘classic’ Sandifer symptoms (I replied to another thread where you posted)

I’d find a new doctor!

As for Gas & Reflux:

Gas is created when something isn’t digested properly; for example,
beans are generally harder to digest than other foods, which is why
they are notorious for causing gas in most people (this is just a common example to help make sense.)

Also, gas puts pressure on the esophageal sphincter (the muscle at the
top of the stomach that helps move and keep things down), making it
easier for whatever is in the stomach to be refluxed.

hellbennt2006-3-3 17:11:37

March 3, 2006 at 6:04 pm #2975

Anonymous
Inactive

Thanks Laura, that’s exactly what I thought. I am going to see what he says on Monday & if he doesn’t do something, I am going to try to find another GI. There are only 2 GI’s that are recomended on this site for NJ, 1 is the one I am seeing & the other isn’t taking new patients, so I don’t know what to do. Thanks for responding.

Dena

March 3, 2006 at 6:21 pm #2976

Anonymous
Inactive

Dena – where in NJ are you? My sister lives in Oakland (Bergen County)
and saw a Ped GI about a year ago that she really liked. I can get you
the name/number if that’s close to you/if you want – let me know.

March 4, 2006 at 10:15 am #3017

Anonymous
Inactive

Karen,

I am in Union County, I know where Bergen County is, but I don’t know where Oakland is. But I would love to have the name/# if you can get it for me. I am willing to take the drive if this means my son may get the help & meds he needs.

Thanks!!
Dena

March 4, 2006 at 6:40 pm #3036

Anonymous
Inactive

Hi Dena. What town in Union are you in? I also have a friend in
Livingston (if that’s any closer) who took her twins to a Ped GI – not
sure if she liked them. Let me make some phone calls tomorrow and get
you some names.

Oakland is about 20 minutes North and West of Paramus – if that helps at all

March 4, 2006 at 9:17 pm #3041

Anonymous
Inactive

Hi Karen,

I live in the town of Union in Union Cty, Livingston is close to me. If you don’t mind, that would be great if you could get some names of GI’s that are recomended. Oakland sounds like it would be far for me, but if I don’t get any other recomendations & if the current GI doesn’t help him, then I will attempt to go to Oakland.

Thanks & talk to you soon.

March 8, 2006 at 10:22 am #3258

Anonymous
Inactive

Hi Dena. Sorry for the delay. Just got off the phone with my friend in
Livingston – she said her GI Doc was Dr. Nord (spelling) and that he
was an excellent doctor but not warm at all. She said she heard even
better things about one of the other doctors in the practice – she said
she thinks his name is Dr. Scenario – or something close to that. The
practice # is 973-322-7600.

I’ll be speaking with my sister later today and will get the name/number of the one in Oakland too.

March 8, 2006 at 10:31 am #3263

Anonymous
Inactive

Karen,

Thank you so much for the info on the Dr. I actually ran into a girl from my town today & she also recomended Dr. Nord’s office, great to hear someone else liked the group. I am hoping I don’t have to go for a 2nd opionion, but we will have to see. We are going to the hospital tomorrow for the PH Probe then I will see what meds the Dr. will give Derek, if he doesn’t prescribe a PPI, I may have to go to that other group of doctor’s.

Thanks again,

Dena

March 8, 2006 at 10:33 am #3265

Anonymous
Inactive

Glad to hear it as well – she did say that Dr. Nord was really good but
that the other doctor was known to be good too and have better bedside
manner.

Keep us posted – good luck tomorrow.

March 8, 2006 at 10:39 am #3267

Anonymous
Inactive

Karen,

Thank you, I will keep you all posted.

Dena

March 13, 2006 at 4:21 pm #3735

Anonymous
Inactive

I got the probe results & they are saying it is NOT reflux, I am so confused, I really thought he had every symptom of silent reflux, but they are saying no, it is not that. What is it then?? You would think they would help me figure this out, they said ok, you can now follow up with your pediatrican, that’s it. Any suggestions, anyone, please.

Thanks!!

Dena

March 13, 2006 at 8:50 pm #3747

Anonymous
Inactive

Hi Dena,

In earding about testing (not from personal expereince, sorry!), pH can be a false negative, can’t it? See this site:

http://www.healthsystem.virginia.edu/internet/pediatrics/pat ients/Tutorials/GERD/GERD.cfm#ph%20probe

“The biggest problem with this test is that the severity of the reflux as measured by pH probe often doesn’t correlate with the severity of symptoms . . . that is, some of infants with very frequent vomiting will have normal pH probe studies. Perhaps more important, the severity of reflux measured by a pH probe does not help to predict the ultimate outcome. While pH probe analysis is abnormal in nearly 80% of infants with mild symptoms of reflux (i.e. occasional spitting and vomiting), one third of the infants with severe symptoms have a normal pH probe study! Moreover, less than 40% of infants with severe esophagitis due to chronic gastrophageal reflux will demonstrate abnormal pH probe studies. “

March 13, 2006 at 9:35 pm #3752

Anonymous
Inactive

Dena, just wondering what other symptoms your little one has? Does he ever vomit, or burp stuff up and swallow it back? Other than the arching, which can be Sandifer’s, these are also classic signs of reflux, and I wouldn’t necessarily dismiss them just because of a negative probe. The article that Julie sent is great, and really explains the drawbacks and limitations of these tests very well. I was also wondering what his eating was like during the probe? We were discussing this on another thread, but some of us thought that if they severely limited their intake because of the probe, it might be possible to affect the results (no eating= nothing to reflux). I’m sorry things are so confusing for you right now, and hope that you get answers so your little one can get some relief.

Julie, just wondering where you are in Canada? We’re in TO.

March 13, 2006 at 11:00 pm #3758

Anonymous
Inactive

Hi Lori! I’m in Cambridge, about an hour west of you. DD is treated at McMaster.

DOn’t you love this warm snap?!!!!!!!!
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