just about us

[Anonymous]

there are so many new people on this board—i don’t even know who’s who anymore. but for those who know us, i just thought i’d fill you in on where we are. sylvia continues to do wonderfully. we have her going to bed now at about 8:30 with elliot and samantha—they all share a room. we brush her teeth, say her prayers and put her in bed. she still has a bottle (water only) and her pacifier at night, but we don’t let her have either during the day.

molly seems to be breezing along with the celiac disease. she is as happy and carefree as ever. her teacher at school has a niece with celiac, so she knows all about it. i sent a bag of safe treats to school so that molly can have something when birthday treats come in.

we saw the ped gi last week. he thought that kassie and molly both looked good. kassie had lost about 4 lbs. since october. he was a little more concerned about tianna. she has lost about 8 lbs. since the week before christmas. he said she is the only one that looks sick. he had her thyroid checked, but i haven’t heard back from him yet. we are waiting to get ian’s blood tested again with a different test to know whether or not he has celiac also. the doc did tell us that IgA deficiency is something that goes along with celiac.

it is kind of hard to find things that the kids can bring in their lunches to school. we relied so much on bread and flour products before.

the gi said that their reflux problems could be related to the celiac disease. i am hoping that as they are gluten free for a llonger period of time that we can get them off of prevacid. i could use the extra $100 dollars a month for my groceries. buying and cooking gluten free is costing me a bit more.

[Anonymous]

thanks christine for the update. i think of you and your family often.

i am glad to hear that sylvia is doing so well. (btw- julianna just gave up her pacifier a month ago and she is almost 4. i am all for doing whatever works!! )

i hope that all of the kids reflux problems resolve themselves as they continue to be gluten free and that it’s smooth sailing for you and your family from here on- you have certainly had quite a year!

[Anonymous]

Chrisitine, glad to hear that Sylvia is doing well, and hope that things only continue to improve for your family as you continue on your gluten-free diet.

[hellbennt]

christine,

thanks for the update. I really like getting a glimpse into your life…

I am so glad to read that everyone seems to be getting healthier!

How cute that sylvia is with her siblings! Is she in a bed?

~laura

[Anonymous]

Christine it sounds like things are getting a little easier for you. I am glad everyone is doing better.

[Anonymous]

I’m so glad to hear that Sylvia is doing so well. You are so right about the difficulties in sending gluten free foods for lunch. I feel fortunate that we can send things that can be heated up (like rice pasta). I don’t know how you’re doing it with a regular school cafeteria!

[Anonymous]

thanks for the news! reminds me of when i was a ‘newbie’ and we regularly shared…

[Anonymous]

sylvia sleeps in a trundle bed that we pull out from under sammie’s bed.

[Anonymous]

Thanks for the update! I have a friend who has a son with celiac disease. The foods that he can eat are so expensive. I really feel bad for you! Hopefully the prevacid won’t be needed really soon!

[Anonymous]

Hope things continue to go well for you and your family. Those kids are lucky to have you!!!!!
boysmom2006-2-8 21:27:55

[Anonymous]

I’m so glad that things are going well for everyone in your family! It’s always nice to hear good news!Alexis’s mom2006-2-8 22:35:32

[Author]

Posts