- This topic has 117 replies, 1 voice, and was last updated 7 years, 6 months ago by Anonymous.
October 26, 2011 at 7:45 pm #69256AnonymousInactive
Central (Worcester), Massachusetts
Saw Jeanne Plasse, N.P. (originally scheduled for Candela?) – part of the UMass University Pedi GI Group (Benedict Building)
She was great – supportive, personable. Returns phone calls about follow up questions. Very firm on doing one thing at a time to see what comes next.November 28, 2011 at 11:37 pm #69477AnonymousInactive
We met Dr. Vargas at UCLA children’s hospital Westwood California (2nd Opinion). He has been on-staff for 30+ years, took time out of his busy schedule to listen to our story and discuss our “plan of attack”. We were impressed that he read the 30 page document we provided ahead of time (non breathing episodes and the mediations she was on). We agreed that a new set of tests should be administered, but were concerned about removing the medication. Given our daughters history, we felt that she should be admited for observation while the meds wore off. The Dr. agreed. During our hospitalization, we found the nursing staff to be wonderfull. Everyone we dealt with had read her file and was aware of our situation (no need to repeat our experience over and over again). They administered a PH prob w/impedance, a more advanced version of the standard prob. The motility study was much easier to go through and was painless for our little girl. After 2+ years of extremely high dosages of Reglan, Zegerid, Ped Erythromycin, we are now med free and she has grown out of her condition.We are very grateful to UCLA for there great care and understanding and for listening to our concerns.AndyJanuary 4, 2012 at 8:36 pm #69645
I cannot vouch for this one personally- copied it right off facebook!I WAS given permission to share!Dr. Cythnia Young Cary Healthcare Associates Cary, NC she stated in the QA event that I went to on Saturday that she follows guidelines from a university, I basically shouted out Marci Kids with joy! and she agreed we spoke after and she is going to start seeing all three of my kids
hellbennt2012-01-08 19:15:26January 11, 2012 at 6:48 am #69692AnonymousInactive
Anyone know of a good ped GI in kenosha WI??? Daughter diagnosed with milk allergy at 3 weeks and reflux at 4 weeks. On 1.5 mls of prilosec daily and still fussy. Pediatrician(s) in the practice I go to all say to wait it out…January 22, 2012 at 9:53 pm #69748AnonymousInactive
UT Physicians….any of the pedi GI’s. I use Dr Debroy but I hear they are all good.
I left Texas Childrens and went to them. VERY glad we did.April 17, 2012 at 12:49 pm #70270AnonymousInactive
Hermitage PA, Pittsburgh PA area
Dr Haddad- I thought was terrible & total waist of time. He told me to stop my meds & that baby would grow out of it at 4 mos. Also that studies show that Prevacid (& other meds I think) actually doesn’t even help in MOST babies!! Then he said maybe my babe was the tiny percentage that it did help because I told him that it definitely helped! He didn’t even look in his mouth or ears or anything. I was very dissatisfied.
Hermitage PA, Pittsburgh PA, Wexford PA area
Dr Chandra- I have only seen him once but he seemed a little better but wanted to lower my son’s dosage as well. Not completely sure how I feel about him yet.
I am currently looking for a different/better GI Dr in my area Northern Ohio-Western Pennsylvania if anyone knows of a good one.May 24, 2012 at 2:40 pm #70389AnonymousInactive
San Diego, CA:
Dr. Farnes (resident pediatrician at UCSD Pediatrics on Frost St).
Pros: He was supportive of us dosing according to Marci kids recommendations, using Caracream max and ultimately compounding meds ourselves w Tums once Caracream was no longer available. He tried to identify other options to make easier for us (e.g. Prevacid solutabs) and wanted to refer our little one to GI specialist when her sx were difficult to manage and causing significant feeding problems.
Cons: this group practice has many different individual physicians who are all VERY different. Since he is a resident, his decions got vetoed by attendings (e.g. No referral). And he is only there once a week. Others in the practice diagnosed her incorrectly with colic amongst other things and downplayed the GERD, despite the fact that we had to fight every moment to get our girl to eat at all and she was obviously is pain/spitting up blood and rapidly losing percentiles in terms of growth. Most of you know the deal.
Anyhow, we honestly aren’t thrilled by the situation even now, but it’s workable. We are trying to find a better option ourselves, though I haven’t seen any recommendations for physicians in our area.October 31, 2012 at 10:08 am #71135AnonymousInactive
I have just been assigned to Dr. William San Pablo at that hospital. Do you know anything about him? I’m not from the area. thanks!March 10, 2013 at 8:09 pm #71794
Susana Escobar, MD: This is our ped (actually a family practice dr). She is wonderful.
She is out of Marysville Family Medicine in Marysville, WA. http://www.wwmedgroup.com/physicians/a_to_f/susana_escobar_md
This Dr, at the same practice, Phillip Smith, is horrible. He did not know anything about reflux and did not take my dd’s pain seriously. When 5mg Nexium did not control her reflux and I asked for an increase, he actually told me “Well obviously it’s not working so just take her off”. Did not offer any alternatives such as try zantac, try an elimination diet, etc. NOT RECOMMENDED. http://www.wwmedgroup.com/physicians/s_to_z/phillip_smith_md
Also Dr. Tyler Burpee, pediatric GI at Seattle Children’s Hospital is NOT RECOMMENDED.
We had a very bad experience when we saw him for my older dd (as have many others!).
Dr. Mary Len (our current GI at Seattle Children’s) is conservative with meds but, otherwise a good GI. We saw her for my older dd and my newest little refluxer as well.
Hope that helps.
THe Following is Posted in This link
My son’s doctor is:
Dennis L. Christie, MD a gastroenterologist at
Seattle Children’s Hospital
He is a very efficient man – not the sit-down-and chat-your-ear-off type, but he knows his stuff and was very easy to work with. I had several recommendations from people I respect that led me to him.
I cannot vouch for this one personally- copied it right off facebook!
I WAS given permission to share! hellbennt2013-06-09 15:27:08March 28, 2013 at 10:32 am #71903
From someone on another forum (I beg others to share!!)
“Our Gi is pretty good, she has a 2 y/o refluxer also.
She is at Childrens Hospital in omaha. Her name is Dr Trauernicht ( sp)August 9, 2013 at 12:46 am #72543AnonymousInactive
COLORADO (Denver, Boulder)
Allergist: Dr. Karen Andrews at Boulder Medical Center. Excellent. Compassionate and knowledgeable. Gave us our FPIES diagnosis.
GI: Kucek with Rocky Mountain Pediatric GI. Not pleased. Dismissive of our concerns. Poor bedside manner. Prescribed something without thinking through the likelihood of a reaction.August 28, 2013 at 4:06 pm #72598AnonymousInactive
Northern California, Kaiser Permanente
Dr. Durant is one of two GI Specialists in the region for Kaiser. He has refused to prescribe Prevacid or Carafate to help my daughter and suggested a feeding tube instead without even evaluating or weighing her as we have been on contact through email. He persists that I must stop breastfeeding (TED) and move to Neocate. In addition, I perceive his responses to me as flippant and condescending.
hellbennt 2013-08-29 19:04:09December 7, 2013 at 10:08 pm #72661AnonymousInactive
Chicago: Dr Dumont @ The Raby Institue is amazing! My daughter has been through 2 GI’s and he is by far the most knowledgeable. He’s a little new age-ish but he thinks outside the box. He was very knowledgeable about formula. Explained in detail why my daughter has issues. He even thought that my daughters apnea issues (she’s outgrown) and her current issues in her throat area were a bigger part of her issues than discussed before. (Nothing can be done and she will outgrow eventually but he thought it was an odd)Dr Bass @ Lurie’s- He is okay if your child will hurry up and get better. If babies don’t fit in to his idea of a problem then they are fine. I’ve also seen a review on another board for him saying he had a reflux baby. He says he did not have a reflux baby. He had 2 colicy babies and he believes it was gas. Showed me a great burping technique he used to get his kids to burp and burp somemore.Dr Kirshner @ University of Chicago- She showed a lot of concern with my daughters problems and sounded the alarm bells with her ped. She is famous for her treatment of pediatric Crohns patients.
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