Ly and Kylie

[Anonymous]

Hi my name is Ly pronounced as lee. My daughter who is 3 years old is name Kylie.

We knew nothing about reflux in infants. She just eat less and we didn’t notice how bad until she was 18 months when dinner was never being touched, let alone played with.

Doctor kept saying she is a picky eater and then it got to maybe 5 items of food that she might eat. That’s when the doctor sent us to a specialist(GI).

2 endoscopy and prevacid later. She has slient reflux. I can’t tell that she had anything. She acts normal, other then eating a whole lot less!

Got to the point she ate nothing but drank milk. Nasal feeding tube was placed for 3 months and then supplement in her milk.

At this point in time, she takes about 2-3 bites of food, only at school. When she is home she chugs her milk and calls it a night.

I will be spending most of the time reading because I do not want to ask stupid questions that was already answered.

Right now. I am having panic like feelings when my daughter refuse to eat. let alone lick something. My heart is hurting and I am crying so hard that my eyes are puffy in the morning. I feel so alone but THANK GOD this forum exist because it makes me feel normal and that I am not the only one going through this.

nyxkitten2013-02-05 21:15:16

[Anonymous]

Hello and welcome! Please don’t feel that anything you ask is stupid. Feel free to ask anything you want, even if others have already asked it.

That is amazing that your little one has never had any kind of digestive problems before now. Like, not even excessive pain, gas, spit up, etc as a baby?

Has she ever been on antibiotics? They can really wreck havoc with the digestive system.

I know that it would be hard to not panic (((HUG))) but recently while visiting with a mom who’s 5 year old was refusing to eat, she said that she found that being tense made her daughter only eat less. The daughter started freaking out too.

A year ago a mom contacted me and said her little one year old was refusing to eat and she didn’t know what to do with her anymore. She said it was a constant battle trying to get her to eat. She even froze formula into popsicles and followed her around the house trying her to at least take a lick or two.

A few weeks ago I had the priveledge of meeting this mom and her little girl. I was impressed at supper time how well she ate, although I know that she is not cured, I know that she is much better than she was a year ago. I have more details of her story on my blog and you can read them here. http://help4acidreflux.wordpress.com/lorraines-story/

You will also find my own story of what we went through on the home page of my blog. But here is a link to a page on this site that I have a condensed version written out. https://www.infantreflux.org/forum/forum_posts.asp?TID=16038

[hellbennt]

Welcome!

Caarafate:
https://www.infantreflux.org/forum/forum_posts.asp?TID=13485&KW=search+feeding+aversion+forum

here’s more to help:
https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13876&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13875&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13866&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13809&KW=feeding+aversion

https://www.infantreflux.org/forum/search_results_posts.asp?SearchID=20110108140213&KW=feeding+aversion&PN=2

Feeding Aversion:
https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW

The Following is from this link:
http://allchildrenstherapy.org/oral_motor_feeding_disorders

The role of reflux in developing unusual eating patterns

It is clear that many infants and children with GERD develop negative associations with feeding due to the reflux pain that feeding has caused them. If their pain is not managed adequately, the infant or child may develop secondary behavioral symptoms of food refusal, selectivity and oral sensitivity which can negatively impact growth and maturation and can lead to delayed acquisition of feeding skills. Infants and children with GERD may be hypersensitive to tactile sensations therefore do not explore objects with their mouths, which can lead to a lag in the development of the oral sensori-motor skills required for feeding. Introduction of spoon feeding may be delayed due to lack of readiness skills or noted increase of symptoms with introduction of solid foods. Young children also may have difficulty advancing to textured foods and may gag or choke while feeding. These symptoms (i.e., food refusal, selectivity and oral sensitivity) put stress on the feeding relationship between the young child and caregivers and may lead to counter-productive feeding practices.

The associations that infants and children make between the pain of GERD and feeding can remain even long after the pain of GERD has subsided. Young children may also be taken off medication when the obvious symptoms of reflux disappear yet their reflux may continue silently (meaning that stomach contents go into the esophagus but does not result in vomiting) and cause continued feeding problems. Therefore it is vital that the young child receive proper medical diagnosis and treatment of reflux, especially pain relief, before attempting a feeding intervention program. Although feeding therapy can be effective in addressing many types of feeding difficulties, without effective pain management, oral-motor, sensory and behavioral feeding interventions may yield disappointing, ineffective results.
hellbennt2013-04-15 14:37:52

[Anonymous]

Kylie had spit up but it wasn’t a lot. She went straight to regular foods instead of baby foods. Mainly soft stuff then to hard foods. No antibiotics.

We had her evaluated by the intensive feeding clinic and they recommend it. But I don’t hear much on it do we didn’t do the clinic. Along with the fact that it is 4-6 weeks, is 1 hour away from home, 9am to 3pm, toll is $5 one way, oh and I have a 2nd child and no one to babysit. Family is in FL or CA we are in NJ. Also we are not sure if our insurance will pay for it.

We are slowly just working at this. She only eats at school, little bites but it’s a start!!!

Thank you so much for the links. I really wasn’t sure where to start.

[Anonymous]

Dairy is often a trigger for reflux and pain. Have you ever tried giving her something other than cow’s milk? I give my daughter coconut milk. I have tried a couple brands and also tried almond milk. I personally think that the almond milk tasted gross and the first brand I tried of coconut milk (Silk brand) was really watery. But now I got Simple Truth brand and it’s really good and is thicker than the other brand. My little girl really likes it too. You might ask your doctor about switching your daughter to a milk that is dairy free and see what he/she says.

Is your little one getting any kind of vitamins and minerals? Someone recommended for me to use a vitamin/mineral supplement (for my children that couldn’t swallow pills) called Amazing Grass Superfoods. There is nothing artificial in it. It is made solely of whole foods. And has 31 different fruits and vegetables in it. http://amazinggrass.com/product/32/Kidz-SuperFood-Chocolate-30-servings.html I plan to order some of this for my children when I run out of a different brand that someone else gave me. This Amazing Grass can be ordered off of other sites like Amazon for cheaper. It is a powder that you mix with milk or water and they say kids love it.

Just some of my personal ideas. 🙂

[hellbennt]

HELLO? how is everything?

[Anonymous]

Things are ok. Kylie is still not eating. On supplements and it’s driving me crazy. Trying to potty train too and I don’t think she is ready

[Anonymous]

What kind of supplements?

[Anonymous]

She is on Boost VHC

[Anonymous]

I assume from looking this up that it is a calorie booster? What about probiotics and digestive enzymes? Have you ever tried them on your little one?

Here is a link to what I wrote up on how they can help babies with digestive problems. They helped my children a LOT!

https://www.infantreflux.org/forum/forum_posts.asp?TID=16038

[Anonymous]

Kylie can’t take pills. If it doesn’t taste like milk then she won’t drink it.

[Anonymous]

What we use is capsules that contain powder and they can be opened up and mixed in with milk in a sippy or mixed with a little milk, water or juice and given with a dropper. Or they can be mixed in food. If mixed with milk or a dairy product, it needs to be consumed fairly quickly as it will start to “digest” before your eyes. 🙂 At first it will become very watery but then if let to sit an hour or 2 in the fridge it will become solid.

Some children don’t like the taste of them but they are VERY worth it to force them to.

Federica says… “We were facing a feeding tube with my 2 1/2 year old son then we started him on probiotics and enzymes. He was to the point he would hardly eat anything. After starting probiotics and enzymes, my son started gaining weight. He never had the feeding tube put in. He is still not a great eater and never asked for food. The only thing he asks for is his probiotic/enzyme pill. He loves them!” You can read her full story here.

http://help4acidreflux.wordpress.com/federicas-story/ If interested I will give you her email address and you can contact her to ask questions.

Lorraine says “My one year weighed only 15lbs and refused to eat basically anything. I froze her formula into popsicles and chased her around the house hoping she’d at least take a lick. I started her on probiotics and enzymes and they have helped her a lot! I still have to distract her to get her to eat a lot and she doesn’t like the pills but she knows that she HAS to have them. It is not a matter of choice with me!”. I also can give you her email address if you’d like to ask her for pointers on how she gets the pills down her little one. Here is her story. http://help4acidreflux.wordpress.com/lorraines-story/

The probiotics and enzymes we, Federica, and Lorraine use… http://www.corehealthproducts.com/products/digestive

[hellbennt]

probiotics, brands used:

https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

erin posts that mentions enzymes:

https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme

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