Mom on the edge of insanity — Help

[hellbennt]

Thank you all for responding. Things are at a mediocre halt here. Not the greatest, but certainly not the worst. I do have a few questions to bounce off you all… I don’t feel quite as desperate at the moment, so these are really quite trivial, but I link all of these behaviors together. So, I was hoping one of you may have experience here. But first:

dee1028: Thank you for the progress update. I am certainly interested in seeing what the CaraCream Max does for your LO. Certainly keep us filled in. I might consider that route, however Mason seems to be holding ok… gassiness had tapered. I think the soy is also a factor here. God bless you… going back to work is a nightmare, both physically and emotionally. I am currently not at work… I did try to return twice. Keep your head up. Missing your LO is the worst! I’m happy you at least have some “backup” with the GI. Good for you! I wish I was that lucky!!! J Well, you and Leigha are in my thoughts and prayers.

kevieb: I’m interested in anything you have to input. I’m not sure about my settings in this board… Can my e-mail be available? Anyone can feel free to mail me too (I’ll give my address). But, whatever your thoughts/experiences are, I am anxiously waiting to hear!!!

hellbennt: I am certainly going to eliminate most of what we are giving him right now. As a recommendation from the CPRN at Children’s Hospital in Pittsburgh, we started Mason on food at 4 months. He took to it right away. We started simple with plain rice cereal and then worked to flavored rice and oatmeal eventually adding pureed fruits and vegetables. I have, in the past and currently, mix the vegetables with plain rice cereal and I mix the fruits with plain oatmeal. I take about a 1/3 of a cup of rice or oatmeal to one 3.5 oz container of fruit or vegetables, no formula or water added. He has always liked this. He would generally eat three “meals” like this a day with bottles in between. The quantity of bottle can vary from only 2oz in a sitting to up to 9oz a sitting when he is really feeling well. Right now, he’s at about 3 ½ oz to 4oz of the soy formula. Recently, when the formula consumption dropped, we thought that maybe we should add in some other proteins to help. That’s when we introduced the chicken and turkey. They are premixed with veggies and pasta and pureed. He really likes these. So ultimately, while doing the Neocate trial, I am going to eliminate our rice and oatmeal (since they are sending rice cereal), and all fruits and proteins, only leaving a veggie or two.

So, here are some questions for you or anyone else that can weigh in…

1. In your opinion, what would you consider the most “non-offensive” vegetable? I am to understand that most veggies don’t result in allergies/intolerances. I could be highly mistaken… I obviously have been before.

2. Over the course of the last several days (about 5), Mason has stopped wanting to eat fruits. Is this reflux related? Possible food aversion? I attribute most of his current comfort to the BB and Prilosec, but to start being picky and choosy now? He has never (over the last 4 months) refused fruit. And he is refusing all fruit, not just certain ones. Can anyone shed some light?

3. The soy has not been a terrible experience. He is not quite as bad on this as he was the milk based formula. Is that possible? One is not as bad as the other? I am not staying with the soy as Neocate is around the corner, but why does there seem to be improvement? Just the formula change in general? A shock to his system?

4. Bottle feeding… I know that I should probably start a new thread in another area for this, but again, I am interpreting all of this behavior as a result of his ailments, so… Sad but true, my son needs a bottle to go to sleep. He prefers formula to anything but will take Pedialyte from time to time. So, when he is fully comfortable, he takes his bottle while we hold him, closes his eyes and goes to sleep. Now (as well as other times we had reflux issues) he is very restless. We all know that he is horrendously sleep deprived which causes the “snowball” effect making all the other issues 5 times worse (and this causes a problem all in itself), but there is something with his feeding that I really need to ask about. He takes the bottle, has a few sips, pulls away, and yells. He used to cry and scream, arch, arms flailing, and knees drawn up. Now, he is a little more calm, but constant arm movement and at the start of the bottle this yelling. The pattern is sip, sip, sip, yell, grab may face, move his free arm, sip, sip, sip, yell, grab his head, rub his eyes, sip, sip, sip, yell, push the bottle away, go back to sipping. This repeats this way for the first 2oz of his bottle. It seems as though he is doing anything he can think of to not go to sleep. You have to be persistent and keep offering the bottle to him. After you get through the initial struggle, he quietly takes the bottle, stops fidgeting, and goes to sleep. In really bad days, we can’t set him down at this point. When he’s ok, we simply carry him to his crib, give him his pacifier, set him down and he continues to sleep. Currently, we are 50/50 on being able to set him down. When I started this thread, I was holding him all day and all night. ***hellbennt: I own a Moby wrap that I wouldn’t trade for anything. That carrier has been a lifesaver during the day and even at night when I’m awake. But I am having major issues carrying him. (I have health issues that make it difficult to continue, but that’s a whole other story. My c-section was awful.) So, my issue/question here is… Is the bottle pattern a comfort issue? A separate feeding issue? Is he trying to tell me something? I’ve always assumed that this was a reflux/comfort thing. Anyone else have trouble with feedings like this?

Ok. That’s all for now. Again, I’m not as desperate as when I started this thread, but these things that are happening (some new and some familiar) are very confusing. You could all imagine the input from relatives and friends that I get. My mom (God love her) insists that he just needs to “burn off” some energy before he goes to sleep. I love her, but I don’t buy it. I’ve been told that “maybe, he’s just not a napper”. Sure, I’d accept that if he were sleeping through the night and well rested, but that is certainly not the case in this house. And my personal favorite… “All babies are different.” I couldn’t agree more with that statement. But when it is given to me, it’s a cop-out as a better answer can’t be given. So, please feel free, I’ll take all the help I can get! J

[hellbennt]

oh my! so much to answer, LOL. ok here goes: fighting the bottle does mean something, although I’m not sure what- you could do a search- there’s so much info on this board from past mamas (& the occasional father!) who fade away because their los (little ones) get better and this nighmare becomes a thing of the past. there are very few of us ‘old timers’ left, but I can call on them when they’re needed & I do, quite often (like Christine, ‘kevieb’)

when you do a search, be sure to choose 6 months and OLDER from the drop-down menu so you can be sure to learn from those who’ve posted in the past…

as for what to feed: rice can be constipating? but anyway, barley and oats are relatively ‘safe’ as long as it’s a brand that is ‘simple’ (no added ingredients- beechnut used to be safe; I’ve been out of the babyfood market for quite some time, LOL!)

as for why the change in formula seems good: it’s often referred to as the ‘honeymoon period’ – it’s a switch and that’s why everyone says give each switch a good full two weeks- it takes that long for the protein to ‘build up’ in the system. so, while the soy may be good for now, after two weeks you might be singing a different tune. or not. that’s also what’s so difficult about this- so much trial & error!

ok veggies: squash seems pretty tame, perhaps green beans, too? avocado (technically a fruit) is really good for these los. just get a ripe one & mash it up- you can add formula or nothing, really. At 8 or 9 months you can start to try thicker, ‘finger’ foods. can he reach out and grab things & make it to his mouth? if so you can try chunks of steamed squash, mashed avocado, sweet potato (steamed or baked), etc. It all depends on the kiddo. Does Mason gag/choke easily? It sounds like he can handle thick mixtures from what you’ve described…My second was eating a whole banana at 7 months, LOL. ok not the whole thing, but he could manage to get some chunks in his mouth.

fruits: not sure about this one. try avocado? maybe the acid from them is burning his throat? is it a texture thing? try steamed pear slices?

I wouldn’t necessarily cut out fruits?

Love the moby wrap! Look into the ergo, the babyhawk, the kozy carrier, etc…that might be the next step after the moby?

I hear you about sleep. Jonah was Sir No Nap. ugh. I don’t think it’s ‘normal’ to ‘fight sleep’ but I don’t know…

thought: before his bottle try a squirt of mylanta? soothe the throat and calm him down so he can start in on his bottle?

as for needing the bottle to get to sleep- go for it! My motto has always been that you do what you do that works until…it doesn’t work anymore!

I am SO not the person to tell ANYONE to get their baby off the bottle at exactly 12 months or to stop sippy cups at a certain time, etc.

[Anonymous]

Leigha does the same thing with her bottles…not all the time though. it’s weird she will have dsys where this happens almost every bottle and then she will go days and days wo doing it at all? the gi said it was heartburn and that she would get so upset bc shes hungry and wants to eat but it is painful. she told me to give mylanta when it happens….

[hellbennt]

Hello all. This is just a quick update to let you all know about the progress that we have made (or lack thereof).

My husband sent our fax to the GI office this morning at about 7:45 am. He promptly received a phone call from The Nurse. She was calling to basically deny our request for the Carafate. She stated that it is not prescribed for children Mason’s age (8 months) and that he did not “fit the profile”. My husband asked what “the profile” was only to not get answered and told that our request was denied.

No surprise there, really. I’m almost certain that the doctor didn’t even get to see the request. So, this tells me that it is even more imperative that we find another GI. I’m just not comfortable with someone other than the MD assigned to Mason making decisions about his healthcare. My husband further told me that he was less than thrilled with her demeaning attitude and this was not the first time she has treated him like this (obviously I won’t call there anymore as this is one of the reasons). I’m pretty certain that we are not going to be able to obtain the Carafate as our pediatrician already denied this request referring us to the GI.

So, I guess we are going to have to see how the Neocate fairs. I am hopeful that this will at least give us some better answers and ultimately make Mason more comfortable. Needless to say, things went fairly well over the weekend. Friday and Saturday nights, Mason slept the night through. Yesterday started out pretty well but gradually faded as the day went on. Basically, he was feeling pretty good on Friday and Saturday (his formula consumption jumped to 7-8oz bottles per sitting) and now, true to pattern, we are reverting. He awoke at 2:00 am, went back to sleep until 4am, then he was up until about 6:30am. He slept briefly until 8am. He has been up since and I am afraid that the nap situation is going to get quite ugly today. The “honeymoon” is over. It was nice while it lasted.

The positive in all of this is… hellbennt: You are so right about faxing. Sure, we didn’t get the response we were hoping for, but it certainly got attention. Had we called and left a message, we wouldn’t have gotten called back for at least 48 hours. So, I have to say that faxing is going to be my new thing.

Shipping is running slowly and I am hoping to receive the Neocate today… a large snowstorm is predicted for Tuesday and I am hoping to have it before then, before it gets bad outside and we are housebound.

That is all for now… I will attempt to keep all posted.

Thank you!!!

[hellbennt]

so sorry about your dr!

can you try a family physician? some have found good luck going this route- someone who will listen and take the time to look into what you’re requesting.

carafate is NOT at ALL out of line!

my baby was on it & many here, too!

have you looked through the link for finding a ped GI near you?

[hellbennt]

Laura: Yea… I’m pretty sorry, too. This is a not-so-cool thing to have happen. After I talked to my husband, I searched not only these forums, but others as well and it seems as though many, many children have had this. I know you have had luck and I’m certain your children benefited from this. I just can’t understand why this has to be like this. The shame in all of this is that I really liked this doctor. And as I mentioned, I feel as though he had no input into this decision. Furthermore, each and every time we have requested assistance from this office, we have been denied. Most times, we have been told flat out that it is our fault Mason is having trouble. We weren’t administering the medication correctly or we weren’t following the doctor’s orders correctly. I thought they were supposed to be there caring for children. Well, I’ll be adding these names to the “Don’t Go Here” list. I certainly don’t want anyone else wasting their time. And finally, the person that is suffering the most here is Mason. It is quite a shame. L

In the immediate, I am going to follow your suggestion in a family physician. I have been thinking of taking Mason to see my PCP for a while now, but have not followed through. I have been with him for several years and he is the type to research and help… he certainly isn’t afraid of the unknown. And if he can’t help, he would most certainly find someone who will. He is a DO and has patients of all ages, so this wouldn’t be the first infant he has seen. I like him a lot and it took me several years to find him. So, that phone call will be made tomorrow. Hopefully, I’ll be able to get an appointment… I’ve heard that people have waited months to see him. I am a current patient, so I’m hoping to use that to get Mason in sooner. I also have this man’s cell phone number… so, if worst comes to worst, I’ll use it. J

After that, I’ll be looking for another GI. It would probably be a good idea to do this even if I have success with my PCP. I spent some time scouring the threads this afternoon and got a few names that are not too far away. I figured we could fly to Miami because we would have somewhere to stay. We could also drive near home… there were a few GIs listed in Morgantown, WV which is about a 2 hour drive from here. I also have family in Wilmington, DE and they highly recommend the Alfred I DuPont Hospital for Children. So, at least there is a tentative GI game plan.

It’s time we had some cooperation. As an afterthought, it’s a good thing I decided on the BufferBabies on my own. If I left it up to his GI, we wouldn’t be as far as we are. I’m defiantly bummed. More work. And, sarcastically, what is “the profile”? Are there “profiles” of babies that can have Carafate? Doesn’t “profile” suggest many of the same type? Had I been on the call, my comeback to that would have been, “Profile? Are you now suggesting that all refluxers are the same? I thought you told me that all babies were different?” Profile. Good grief.

Sorry for the rant. I needed to get that out. J

[Anonymous]

Just weighing in on the feeding issue.

My son does the exact same thing you described with bottle feeding and he is 8 mo and has GERD. I think they are in discomfort so they fidget or try to distract themselves. Being sleepy seems to help because they aren’t as focused. Daytime feedings are much worse b/c he turns his head and refuses to eat or arches and screams.

That’s just my personal theory though.

Good Luck

[hellbennt]

Hello all… just an update. Last time, I was awaiting the start of our Neocate trial. We are into it almost 14 days. Unfortunately, I am not seeing much of an improvement (I understand that it could take much longer), but what is most disturbing is that things are getting much worse by the day. Some of our current problems are getting worse and some relatively new issues have begun to arise. Although this is horrible for Mason, it is taking an equal toll on us. We have begun sleeping in shifts (something we have never really done before, even when he was a newborn) and I have officially given up my bed so that Mason and my husband may have some rest while I watch on the video monitor (told you all that I was horribly paranoid about co-sleeping). It’s far from acceptable, but we are all surviving…

Old issues worsening…

Formula consumption: Mason will drink the Neocate without us having to mix in any other formula. However, his formula consumption is at its lowest of his short life… about 9 oz a day. He is still eating his vegetables, chicken, and turkey relatively well. He enjoys chicken and apples the best.

Sleep: Well, that is short lived at best. His naps are 15-20 minutes a day and night time is constantly interrupted by waking (some, not all, with arching and crying). The best he has gone these last two weeks was a 2 hour stretch on Tuesday.

Drooling: He constantly is drooling. Yes, I understand that teething can play a factor here. But it is so bad… you can certainly tell that he does not want to swallow. It pools in his mouth and he simply lets it run out. He didn’t even spit up as much as he drools.

Gagging himself: He has always done this when his reflux was bad, but now he sticks his fingers and any other object he can get his hands on in his mouth and reaching the back of his throat… resulting in gagging himself. Really, seeing this has to be one of the most disturbing things.

Refusing fruit: I purchased some plain fruit items – bananas, apples – he eats them on occasion, but rarely. He is still refusing this type of food. I’m disturbed by this as these were things he has always enjoyed. There has to be something to this.

New issue… along with everything above, here is the new stuff.

Gagging while eating: hellbennt, if I’m not mistaken, you brought up the consistency of the food that I was feeding him. Yes, his food was always quite thick and he seemed to like it this way. Food straight from the container was quite runny and he would make faces (almost like the taste was too strong) so I would “dilute” the flavor and up the consistency with plain oatmeal or plain rice cereal. Now, I have again quit doing this as he is gagging on his food, particularly if it is mixed with oatmeal or cereal. We had attempted some finger foods before the Neocate trial, but halted once we started. The gagging just seems so bad. It has now progressed to vomiting. We must take slow small bites of even the runniest, smoothest foods or he will vomit everything he has eaten.

I am once again beside myself. He seems to be comfortable most of the time (before the BB and Prilosec, he would scream and arch 24-7) and he is quite pleasant. He is getting better at crawling and has started pulling himself onto furniture to attempt to walk. Its nice to see that progress can be made under the most miserable conditions. His favorite thing now is to clap.

Short funny story… a few nights ago, Mason was having a very bad night. He woke at midnight and would not go back to sleep. So as to not disturb my husband, I brought Mason into the living room and started surfing the channels for something “low key” to have on in the background as I sat with him, holding him, and rocking. So, I thought I had found the perfect thing… a Celtic Woman concert was airing on one of the public channels. Their voices are so beautiful and lullaby-like, I thought this would be a winner. Well, I think he enjoyed it way too much… after every song, he would sit up, smile, and start clapping… just like he was in the audience. Lesson learned… no more TV after midnight and certainly not 5 beautiful women singing. J

I have not taken much time to research his issues, short of:

EE???

Neocate reaction (corn)???

Food Impaction???

Anyone have any thoughts or experience in these areas?

Got all kinds of appointments set up, but certainly no help in the meantime (everything is after February 2^nd and as you call all relate, that is a lifetime away). As always, your thoughts are appreciated.

Thank you all!!!

[Anonymous]

sorry i never returned—-i didn’t even recognize this post when i first saw it!!! i have to take alot of medication and one of the side-effects is thaqt it can make me forget things.

i didn’t read through everything, so i don’t know if you’ve had a scope and ph probe done—but i would definitely want them done at his age with as many problems as he is having.

my daughter had such severe reflux that her esophagus was getting ulcerated at 8 months—and she was on prevacid and carafate. she had to have a fundo done just before she turned 10 months old.

i’ve been trying to come on here more again just recently. my daughter is 7 years old now—so we’re well beyond the infant stage—-but i have some pretty fierce reflux myself—and we have a grandbaby with it—though she seems to be getting past the worst of it.

i think you can find most of our emails somewhere one here—if you want to find me—laura is really good at that.

i just had a scope done right after christmas and i have alot of eosinophils—so this is something i am starting to look into——-i didn’t have any eos a year ago.

kevieb2011-01-21 15:15:27

[Anonymous]

Wow! I am so sorry I didn’t see this sooner (at least as far as Neocate is concerned) I don’t know how I missed your post? But you’ve had a LOT of great help and advice from the awesome ladies on here!!! I work for Neocate (but I’m also a mom and my 5 month old has food allergies to milk/soy/tomato/egg) I’m so glad the nutritionists were able to help you… you mentioned that they were going to send you Necoate Nutra, have you been using that as his cereal? I haven’t strated solids with my guy yet, but I’m dreading it! All the cereals in the store have milk or soy in them, so I have to do some checking around.. and I guess I’ll have to take it slow with the fruits and veggies. I need to go back and read through hellbent’s advice!! I’m not much help as far as reflux medications are concerned, my 2nd son had reflux but we were able to control it with Zantac.

As far as your LO’s symptoms getting worse, maybe his gut still needs time to heal? I know it took a good 4 wks for my LO to stop having mucuous in his stools. He shouldn’t be having a reaction to the corn syrup solids in Neocate because they’re not actually corn proteins. The proteins have been extracted and highly refined to make it suitable for people with very extensive allergies.

Anyway, I hope you can find some answers and comfort soon (for the whole family!!) And I really loved the story about your LO clapping and laughing at the Celtic women signing! How precious is that!

[Anonymous]

I’m so sorry that you are having so many issues. One thing that jumped out at me in your original post (and may have changed by now). You were waiting an hour between the PPI and eating. PPIs work best if they are given exactly 30 minutes before eating. That’s how they turn off the most proton pumps.

I had a lot of similar issues. My dh and I took turns staying up holding dd all night for several months. She wouldn’t sleep if we put her down. It was exhausting! She was close to a year before we got her to sleep without a bottle.

After we determined her allergies and removed those foods from her diet, things got worse before they got better. So, there is hope!

[Anonymous]

Oh my! I’m so sorry to hear things are worse instead of better. My son is having similar issues (not as severe) and he too is on Neocate and consuming the lowest amount ever as well! We are on day 10 and it seems like forever ago.

What does your dr. say is the problem?
Have you ruled out dysmotility of the esophogas? The drooling made me think of that… Or maybe your little guy is nauseated from something?

[hellbennt]

Hello, again. Just a quick update and a chance to respond to all of you wonderful moms… sorry if I am assuming that you are all female. Correct me if I am wrong.

First and foremost… I feel like the world’s biggest moron. After starting the Neocate trial and posting our troubles, I went back and re-read the post about the misconceptions of Neocate and Elecare. Well, needless to say, I have a much better understanding of what should be happening and the time frame in which it should happen. I have to say that I believe that I did things all wrong…. Most importantly, I did not incorporate the former formula with the Neocate as suggested. If I’m not mistaken, the quote was something along the lines of…

“The next most obvious trait of these formulas is their unique taste. I know some of you are saying, “unique…what is she talking about…they are horrible!” You are absolutely right, they are in fact HORRIBLE! For this reason, it is impossible to treat Neocate or Elecare as a super market formula and just offer it to your baby in their next bottle. As a rule no formula, including super market formulas or breastmilk, should be automatically switched. You are asking for GI upset by doing so. Neocate and Elecare are better taken when slowly introduced, mixed with whatever your baby is currently taking. If you are bf’ing then the best thing to do is pump and put your breastmilk into a bottle. Start very slowly mixing the new formula and gradually increase the amount each day (not each feeding) until they are on 100% of the elemental formula.”

Full Thread as linked earlier by hellbennt:

https://www.infantreflux.org/forum/forum_posts.asp?TID=6013

Clearly, I ignored that entire paragraph. Again, I feel so stupid. With that being said, I sort of back-tracked and incorporated Similiac Isomil back in with the Neocate. Huge improvement. Sleeping is better and the drooling is bad, but not like it was before. He still has his moments, but he is more comfortable. Why? Can’t say I know for sure, but I am slowly going to reduce the Isomil until it is gone. So, for now… no more all night TV watching and we are holding at a steady happy and comfortable.

To answer questions… this might be lengthy because I want to make sure I give everyone due attention as you were all so kind to give it to me (now that I am back from “the edge”).

Kevieb: Great to hear from you. No need to apologize, we all have quirks (I don’t need meds to forget things, I think I was wired that way! LOL) To answer your questions (and maybe a few others as well) Scope and PH Probe testing… this is a major issue. In short, no. No testing has been done. The longer… I wanted Mason scoped (endoscopy) back in August. His GI doc stated that he did not think that his case was severe enough to warrant that. We would re-visit the testing at our follow up appointment in February. However, whenever I called the GI office for help, “the nurse” insisted that she (and the GI doc) would not help me UNLESS we had an endoscopy done. At this point, I was hanging onto what the doctor said and I didn’t want the endoscopy as I strongly felt that other things could have been done before we took such a big step… namely, I wanted MARCI-kids dosing of Prilosec and possibly Neocate. As of right now, we will be talking testing on February 2^nd. But I feel as though I have done more for my son in the last few months than the GI office. And it should go without saying that all my leads came from YOU LADIES!!!! KUDOS TO YOU!!!! THANK YOU!!! Obviously, my fear is that too much time was wasted doing nothing and now he is worse off because of the hypocrisy coming from the GI and my need to do what was right for Mason and be non-invasive about it.

But, can someone answer me this… Please explain to me why it is ok to sedate and infant and shove a scope down his throat, but NOT give Carafte? Really, would Carafate have been that bad? This is why I am so frustrated. Besides, I was told that he could not have the endoscopy scheduled until MAY. Seriously, they wanted me to NOT help him from November/December until May? Makes me mad. Sorry. L

Lastly, kevieb, thank you for posting and telling me about your LO. I appreciate what you have gone through and you are obviously an asset to this forum. Furthermore, you don’t need to tell me about Laura… I’d be “over the edge” by now if it weren’t for her. So, again, your experience is much appreciated.

Rachel_Neocate: What an awesome job you have!!! That must be sooooo cool. I just work at UPS. You help so many people!!!! That’s just awesome. Thank you for your input. The Nutra… I’m having trouble getting that into him, but I only just started taking on the slow incorporation approach. I am mixing a little Nutra with Rice and his food and slowly increasing. He’s doing so/so with this, but I have a feeling that over time, he’ll get used to it. And yes, I really do think that I was hoping for too much, too quickly. He defiantly needs time to heal. What is really a relief in all of this is that my health insurance is covering the Neocate (but not the Nutra) and I just got our first shipment (relief). So, we are going to have plenty of time to get accustomed and hopefully get the results that we are looking/hoping for. So far, now that I am doing things right, he is doing really great. Finally, the Celtic Woman… I wish I could link video of that. I did take some that night… I couldn’t resist. Thank you for laughing with me. J

Pkkb: Thank you for your post… we are currently doing BufferBabies with Prilosec and from what I understand, we can administer meds regardless of meals. But clearly I have been wrong. Furthermore, I do believe you about things getting worse before they get better. That’s nature’s way I suppose… it’s just so traumatic watching it happen to your LO (I know you get this). So, thank you for the kind words and support. It means a lot to this mom. J

Ngarcia: Nice to hear from you… sounds like we are in the same boat (sort of). Like I mentioned earlier… I should have given the old formula in conjunction with the Neocate. Are you doing that? Yes… forever. Day after day seems to get longer and longer, eh? Another mom that feels my pain. Thank you and I certainly wish you the best. Please keep me up to date, I am certainly interested in hearing what happens with you. I hope it doesn’t take you as long as it is taking me to figure things out. God Bless. J Lastly, in all honesty, nothing has been ruled out. The ONLY diagnosis officially is GERD with Esophagitis (Barrett’s, I assume). As you can tell, I am feeling as though my GI’s office has been worthless at best. I am really hoping to turn things around and get some answers on Feb 2^nd. If not, I have an appointment for Mason set up with my PCP. I know I will get somewhere with him. He hasn’t failed me yet. In fact, just last week, he sent me to a surgeon to determine what was wrong with me (massive pain since c-section). My delivering OB stated that I had PPD… lovely. So, I went to my PCP. Surgeon says that it is endometriosis resulting from c-section. WOW!!! After 6 months of fighting, I have a diagnosis. I wish I could finally get this for Mason. I know I will, but it’s a shame it is taking so long.

Ok, that is all for now. Please keep me updated and I will be doing the same.

Thank you all so very much, again. I don’t know what I would be doing now if I didn’t visit this site!!!

[Anonymous]

I am so glad you posted an update! It sounds like you’re doing great! I hope everything starts to get better with each passing day 🙂 I do agree that it’s pretty awesome I get to help people out 🙂 I am a mom too, and I definitely feel stressed and concerned about my own children, so anything I do can help another mom (or dad!) makes my day!!! I come here for my own sanity too… my LO that was just born this past August has MFPI and I got a lot of info from this board for the elimination diet I went on. I found that my docs were really not that helpful.

Just a little side note, when my oldest was born I remember sitting up with him in the middle of the night watching “Blind Date” it was the only thing on at the time because we used to only get 4 or 5 channels in the house we were living in!!! LOL!! I can’t believe I used to watch that show!!! Boy that seems like a lifetime ago 🙂 Celtic women is much better!!!

[hellbennt]

whoohoo!

as for bufferbabies- yes- anytime- don’t have to time around meals!

I wish I could write a longer post, but I have two kiddos geting ready for bed 🙂

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