I recently joined these forums, my 8 week old DS shows signs of reflux and possibly MSPI, but one of his major issues has been cough with feeds, I was blaming that on reflux, day before yesterday his coughing with feeds was worse I ended up taking him to ED, and the doc there, on my asking, looked at DS’ throat and says ” oh hehas a cleft back there” shocked I asked him to show me and ya his soft plate does look abnormal, on second look doc says”oh I was wrong, it’s not a cleft it a hypo plastic uvula” anyways, it looks abnormal but ED doc didn’t seems sure what it is, that was a big shocker as since birth DS has been seen by 6 different docs and they all looked at his throat but said nothing…..now we will need to see plastic surgery, ENT and feeding….very very overwhelmed and going crazy my old son who is 9 has a chromosomal defect and has struggles of is own and with baby’s health issues now I can barely pay attention to ODS feeling very depressed about the whole thing, and angry ” why me”…..
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