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December 12, 2012 at 6:28 am #71297AnonymousInactive
So I’m a new adoptive mom of a 3 month old with milk protein allergy and reflux.
When she was born she was throwing up constantly so they switched her to soy formula on day 2. She went home with us on day 3 and by day 5 we were at the ER with blood in her stool. She was diagnosed with milk protein allergy (cow and soy) and put on Nutramagin. She threw up constantly again and was very fussy. We were stuck out of state in a hotel waiting for paperwork to clear for us to go home with our bundle of joy so we followed up with a local pediatrician 2 days after the ER visit. He switched her to Alimentum because she was so miserable and talked about reflux and how some of her symptoms might be from that.
We got home in time to do the 2 week visit with our pediatrician. We discussed her symptoms and reflux but didn’t start meds. At 1 month, they put her on Zantac. She was arching her back, screaming as she ate, incosolable at times, she spit up some but not excessively, and she couldn’t lay on her back comfortably. We were back at the dr’s office every 2 weeks adjusting the dose. By month 2, they moved her to prevacid. Things seemed to be improving, until she gained weight again. (She is a good eater in spite of the reflux). So they sent us to a GI specialist.
The GI doc said she’s an acid producer. He put her on higher does ofNexium and indicated that she should be able to gain 3 lbs before we have to adjust the dose. She started the Nexium a week ago yesterday.
She is some better so I guess she just needs more time. It’s been so difficult to get the Nexium in her. It almost gels after a few minutes which makes it hard to get through a nipple and she does not like it if you put in in her mouth. I’ve found if I use a fast flow nipple, she’s finally starting to take it in a bottle(no formula in the bottle just meds).
So now we are having less back arching while eating and she’s not screaming while eating. We are hearing less sloshing in her throat as well. She still has to sleep upright in her swing and can only be on her back on the playmat for 20 to 30 minutes at a time. In the evenings, she has a specific position she likes to sit in (she drapes herself over my hubby’s hand) that provides relief until she can sleep. I’ve been up since she got up at 3 am. She’s called out like she’s in pain 4 times in the last 3.5 hours. So I know we aren’t there yet.
I’m looking forward to checking out more of the info here and seeing what has worked for others. It’s been a long 3.5 months. I’m hoping we can have a couple of good hours to go see Santa this week.
December 12, 2012 at 12:50 pm #71308AnonymousInactiveHello dmariehill and welcome!
I can see that you will be a GREAT asset to this site! You have already been so helpful to others! Thank you!
I am totally amazed at how much your child’s story is so close to my first child’s. Even down to that position of being draped over hubby’s arm. 🙂 When our son was about a month old and we were trying to do some Christmas shopping, and then went to a restaurant for supper, and he was doing his usual of screaming in pain. Soon the nurse from my pediatrician’s office came in with his family to eat supper. He kindly asked if he could hold Quinton. I watched, mesmerized at how he held him and got him comfortable and to quit crying and he actually fell asleep. He stood the whole time holding him so we could eat. When their food came, I offered to take my son back and he said that he could eat standing. Just writing about it again brings tears to my eyes. That nurse was very special! When we went to leave I had him show me exactly how he was holding my son and it became the favored position of both my reflux children.
As you have probably already seen and read bits and pieces of my story around and about on this site, I will not repeat them here. If you have not yet checked out my blog, I encourage you to, as you might find some useful, helpful information on there.
I hope too that you your little girl is well enough to go spend a little time with Santa. 🙂
December 12, 2012 at 8:38 pm #71309hellbenntKeymasterI have a LOT to say and most of it’s here, in a link called ‘groupie intro.’
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853
you can do this!
please go to the top of this page, click on Settings and please then click on Edit Profile, then scroll down to
Signature & put:
baby (name if you want or nickname), age (can put month & yr of birth), meds, doses & forms of meds, breastfed or formula fed
thanks!
so glad you found us!
laura
And, PLEASE read
Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1
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