Please help me..

[Anonymous]

Hello I am new here..

Bare with me I am lacking sleep and listening to screaming as I type.

My son is 12 weeks old and has been a constant struggle. He is the complete opposite of my daughter…she was EBF and sleeping through the night at 2 months.

So he has been screaming from day 1… I continued to attempt breastfeeding for 2 weeks while he screamed, arched his back, sputters, coughed and sounded full on snot all the time.

So we went to formula…. Many different kinds. He is now on isomil (soy) as suggested by the ped. But he does not eat! Ever… He has never in his 12 weeks ate more then 3oz and that is only when I dream feed him(asleep)… Every other time he gulps down 1oz and then the inconsolable crying for hours begins …then once I get him settled and get another oz in it starts all over. This is my day all day and I have another child to care for. My poor daughter gets no attention now.

He does not sleep because he is hungry.. Wakes, eats an oz or 2 then screams.. Finally settles to keep and it begins again in 2 hours.

He is on Zantac 1.5ml twice a day. I have tried looking on this site for proper doses but no idea how to figure it out. He weights just over 11lbs.

Please help… I think I spend as much of the day crying as he does. I am so tired and frustrated.

[Anonymous]

Oh and I forgot to add that he only eats around 20oz a day… All of which are a full struggle to get in. I have no idea how much he should be eating

[Anonymous]

what about a non soy formula?

[hellbennt]

read all you can!

Misconceptions about how Neocate & Elecare work:https://www.infantreflux.org/forum/forum_posts.asp?TID=6013

best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2

reflux what I have learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&a mp;PN=2

Prevacid 101:

scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)

https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

Read this:

https://www.infantreflux.org/forum/forum_posts.asp?TID=13485&KW=search+feeding+aversion+forum

here’s more to help:

https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13876&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13875&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13866&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13809&KW=feeding+aversion

https://www.infantreflux.org/forum/search_results_posts.asp?SearchID=20110108140213&KW=feeding+aversion&PN=2

is vital that the young child receive proper medical diagnosis and treatment Feeding Aversion:

https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW

http://allchildrenstherapy.org/oral_motor_feeding_disorders

The role of reflux in developing unusual eating patterns

It is clear that many infants and children with GERD develop negative associations with feeding due to the reflux pain that feeding has caused them. If their pain is not managed adequately, the infant or child may develop secondary behavioral symptoms of food refusal, selectivity and oral sensitivity which can negatively impact growth and maturation and can lead to delayed acquisition of feeding skills. Infants and children with GERD may be hypersensitive to tactile sensations therefore do not explore objects with their mouths, which can lead to a lag in the development of the oral sensori-motor skills required for feeding. Introduction of spoon feeding may be delayed due to lack of readiness skills or noted increase of symptoms with introduction of solid foods. Young children also may have difficulty advancing to textured foods and may gag or choke while feeding. These symptoms (i.e., food refusal, selectivity and oral sensitivity) put stress on the feeding relationship between the young child and caregivers and may lead to counter-productive feeding practices.

The associations that infants and children make between the pain of GERD and feeding can remain even long after the pain of GERD has subsided. Young children may also be taken off medication when the obvious symptoms of reflux disappear yet their reflux may continue silently (meaning that stomach contents go into the esophagus but does not result in vomiting) and cause continued feeding problems. Therefore it of reflux, especially pain relief, before attempting a feeding intervention program. Although feeding therapy can be effective in addressing many types of feeding difficulties, without effective pain management, oral-motor, sensory and behavioral feeding interventions may yield disappointing, ineffective results.

[Anonymous]

I’m wondering about the formula? You said you tried many different kinds? What ones specifically?

My third son has MSPI and while we were breastfeeding he would often pull of the breast and scream after only eating a little bit, it’s like he knew what he was tasting didn’t agree with him…

With the screaming and reflux your LO is experiencing it may be that your LO needs to try a more specialized formula… he could be reacting to the proteins in the formula. “regular” cow milk formula, even “sensitve” ones contain full cow milk protein chains and LO’s with an intolerance to these protein chains cannot properly digest them and they start exhibiting symptoms, some of which your LO has.

http://refluxrebels.com/MSPI/MSPI_Symptoms.html

That’s when you need to try a more broken down formula like Nutramigen or Alimentum. They are what’s called hydrolysate formulas.. they are still milk based but their protein chains are partially broken down. A large percent of babies do well on this type of formula because it is broken down just enough that their bodies can do the rest.

However, there are more sensitive LO’s (like my guy!!) who still cannot handle even these partial protein chains and they end up needing an elemental formula (like Neocate) where there are no protein chains at all, elemental formulas are made up of 100% free amino acids. All very technical stuff but good to understand.

I know you’re on soy formula now, but unfortuantely half of all babies who cannot tolerate dairy proteins also cannot handle soy proteins, they are very similar.

I would strongly encourage you to talk to the doctor about a formula switch. I know you’ve been through a lot of formula already but it sounds like you haven’t found the right one yet.

When you switch be sure to give it time, your LO will have to adjust to the consistency/taste/etc and the proteins from the soy formula you’re using will take some time to work its way out of your LO’s system. The general rule of thumb is at least two weeks on the new formula before switching.

Have you seen a GI doctor? Hang in there! I hope things start improving soon.

[Author]

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