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Hello and welcome,
It sounds like you are on top of things and working hard to get your little girl the help she needs. This reflux thing can be very frustrating to say the least, especially when doctors discount your concerns. A behavioral problem at 4 months of age!
That doc’s got a behavioral problem – he’s an arrogant ass if you ask me! 
Anyway, it does sound like she could use a higher dose of Prevacid and I know you said you are getting it compounded every two weeks, but it’s still possible that it’s not being compounded properly. It has to be made with no flavorings at all, have 16.8 % sodium bicarb, and each dose has to be at least 3.5 mls in order for there to be enough buffer to prevent it from being degraded in the stomach. Here’s a link that explains it.
https://www.infantreflux.org/forum/forum_posts.asp?TID=4505&a mp;KW=pharmacy+compounded+
I know you must be very frustrated with the two gi’s. Do you have a family doctor who may help you? Some of us (including me) have had the best luck getting the higher PPI doses for our babies from our family docs. The see a lot of adult patients with reflux so they tend to be more sympathetic.
I’m sorry I don’t know anything about Carafate, but a few moms here have used it and say good things about it. Hopefully they will see this and give you some tips on dosing. I’m pretty sure Laura (hellbent) and Lori (s&h’s mum) both used it. Maybe try pm’ing them.
About the eczema…two of my babies had severe eczema and one had some mild eczema. For all of them it was mostly dairy related and removing that helped, but there are two other things that helped dramatically. *One was some meds to clear it up in the first place. My family doc suggested Cortaid 1% Oinment (not lotion). A thin layer twice per day for no more than two weeks. (Too much or too long can cause thinning of the skin). For my kids once I got the initial outbreak to clear up it was easier to keep it under control. (Of course, ask your doctor first)* The next thing that helped was to use only Free and Clear laundry soaps, and Dove Unscented Bar soap (not the body wash). Also no fabric softner. And when you wash her hair make sure you rinse the shampoo straight down into the sink and not let any of it get into her tub water. Soaps and shampoos can really aggravate eczema.
Well, good luck and glad you found us. I hope your little sweetie is feeling better soon.
Hi there and welcome,
Iam sorry about Niko suffering
i remember those ugly days.i don’t know anything about Carafate, so iam sorry i can’t help with that. Kendra has eczema problems and it helps to use mild soap( i use cethaphil) and aquaphor. it also clears up when i remove a suspected allergic food.
now for the reflux part. have Niko had any testing to rule out some other problems? of course this testing sometimes are a bit invasive, but can be helpful like in my case. an Upper GI told us that there was nothing (serious)anatomy wrong causing kendra’s reflux. a ph probe told us her reflux was improving (later on we had this one done, but wished we had it done earlier). an endoscopy is the sure thing to check for esophagatis (sp?) ( we hope to have one done soon), but this is very invasive too. They could also check for allergys while doing the endoscopy. as far as med, kendra was on a combination of zantac and prevacid and that helped. we tried 22.5mg of prevacid and this med increase was not beneficial for kendra (stomach cramps, vomiting, and a unhappy child). sometimes the combination helps better than an increase of just one med (like in my case). when it comes to reflux, every child respond in a unique way to treatment. i hope you can find something that would finally works for Niko. we also elevated kendra’s crib matress 30 degree and this help her sleep and reflux .
Yana,
My heart breaks for you and what you’re going through. I’m so glad you worked up the nerve to post because it can be such a lifesaver to have people supporting you personally!
You are doing such an awesome job about being so informed about all that is reflux. I’ve found that to be so key(and believe me, I’m no expert)in figuring out what’s going on because so many doc, peds, G.Is are so incompetent. Very disheartening Your situation sounds really tricky and unfortunatley I don’t have any spectacular advice, I’ll let the more experienced mamas handle that, but you are at such a great place to get answers! I’m so glad you’re here.My daughter also had mucousy stools but after 2 weeks of no dairy or soy, three and a half weeks of strict TED, for the life of me, I can’t figure it out and the peds and G.I chalk it up to an immature difestive system.
I tried!!! My daughter used Carafate for a little while but it really didn’t give her any relief although I know it works well for other kids. The taste is disgusting( She was making these awful faces when I gave it to her so I tried it
I’ll suffer if she has to! ) Anyway, her dose was 2ml four times a day but don’t quote me on that
Our doctors have been kinda unreliable to say the leastSorry to be so longwinded, I just wanted to tell you that you WILL figure this out and it WILL get better. I just hope this all happens really really fast for you and your sweet baby
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