PPI not working anymore

[Anonymous]

UGH! I am so frustrated. Why is that everything I try works for ONE week and then goes downhill shortly after??

5 days on Zegerid and I had a new baby. Happy, no crying, sleeping and gained a half a pound. Now her symptoms are back at night and she is waking every 2 hours in pain again. Not eating well, and only gained 1 ounce this week.

She is on 24 mgs split 3 doses a day. I feel like I have no course of action now. What more can I do? I can’t just keep upping her dose!

I am taking her to a Homeopathic Dr. this week. And doing a Prick test for environmental allergens next week.

Other than, maybe switch to Elecare?

I am SOOOOOOO tired of seeing her in pain. And of course, I am just plain tired from being up all night.

I am going to try to give the zegerid more time, but each day it’s getting worse and worse.

[Anonymous]

Have you had regular allergy testing done? Sounds like its something other than reflux at hand here. . .seeing as your already doing the Neocate I would assume you have known dietary issues going on? Have they done a stomach biopsy for EE?

~Liz

[Anonymous]

Same thing with my 6 month old. Joel recommended 30 mgs of zegerid, split 3x a day. But I had to go back to prevacid, I think she can’t tolerate the sucralose in the zegerid, she threw up a ton everytime i gave it to her. Also, I have to use zantac right before bedtime now.

I hate that everything works for 1 week and then goes downhill! We went to the allergist last week too, waiting for the blood test to come back, so I know what foods to avoid, i had to beg the doc, i told her that when the reflux gets aggrevated, it doesn’t just stop in a few hours it lasts for a week or so. Anyways, she has ezcema now which seems to be getting better since we got of nutramigen. They never offered the scratch test for irritants, i better ask for it. Crazy how i feel like i have to diagnose everything and ask for my own testing!! Maybe I should go homeopathic like you! Wish it was covered by insurance, the neocate is making me broke!

[Anonymous]

We never saw a 100% improvement on a PPI. The PPI can help but it’s no cure. For us, time and dietary changes were the best we could do until she grew out of the situation.

[hellbennt]

5 days isn’t enough to ‘tell’-

it took until day 12 until the PPI kicked in for Jonah…

[Anonymous]

You may want to use mylanta to at least give it a chance to kick in. We couldn’t tell a difference until about 2 weeks after starting a ppi. It is the worst 2 weeks!

[Author]

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