Infantreflux.org | sandifers syndrome

This topic has 5 replies, 1 voice, and was last updated 16 years, 10 months ago by hellbennt.

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December 2, 2009 at 11:39 pm #64859

Anonymous
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Okay since I have found this site I have not been able to leave it. I notice a lot of talk about Sandifers Syndrome so I decided to google it on youtube and watched some of those babies and it reminds me so much of what my daughter does. Now I have to go to my doctor with yet another diagnosis…I hope he doesn’t think I am crazy. I just go into him and am straight forward on what I want and what my child needs. Only because I read so much that doctors write this off as colic.

How can I tell if this is truely Sandifers and how can I avoid episodes? When she is sleeping scares me the most because she will gasp for air while it looks like she is scared from a fall. This is all so frustrating! I do not understand why doctors do not research this more! Do they think it is just an excuse or a made up disease by parents?

December 3, 2009 at 7:52 am #64862

hellbennt
Keymaster

you can tell if it’s sandifer’s if the symptoms lessen with medication and then with PROPER medication they go away…
this link is about startling awake- not necessarily sandifers
https://www.infantreflux.org/forum/forum_posts.asp?TID=93& ;KW=startle

is your baby an infant? many swaddle until ‘late’ w/ GERDlings…

hope this link helps, too
https://www.infantreflux.org/forum/search.asp?KW=tic+dance+trance&SM=1&SI=PT&FM=0&OB=2

December 3, 2009 at 2:10 pm #64883

Anonymous
Inactive

Thanks…I tried swaddling her and she does not like to be swaddled. She likes to lay on her side and relax vs being swaddled. I am still looking for the proper medicine. Everyone tells me that PRevacid is suppose to be a life saver but we are having problems with it. I asked the GI if it was the lactose in it and she said most babies are not lactose intolerant….ugh@

December 3, 2009 at 5:37 pm #64885

hellbennt
Keymaster

try prevacid w/ bufferbabies
make sure it’s the PROPER dose of prevacid, too!
have you checked out http://www.marci-kids.com/dosing.html ?
they are at the FOREFRONT of PPI use and infants…

December 3, 2009 at 7:13 pm #64890

Anonymous
Inactive

what is bufferbbies?

December 3, 2009 at 8:30 pm #64891

hellbennt
Keymaster

read here, prevahttps://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1cid 101, last post on the page:
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