Starting to get a bit spooked

[Anonymous]

Christine,

He’s only been on the higher dosage for 48 hrs but has been on zegerid for a month. I know it may take more time. It just really worries me to see him doing so much of this. I also still confused as to why it has increased on medication instead of decreasing but until he’s been on the higher dosage for a coupld of weeks, I can’t really draw any conclusions there.

Laura,

I’ve been through the sandifers links and also done some searches myself. It seems like that several moms have posted about the eye thing but I don’t think I saw it in any of the medical links except eyes rolling back with seizure like episodes (which this isn’t). Have you seen this in the medical info at all? Am I just remembering wrong?

Thanks,

Kara

[hellbennt]

This mentions the rolling of the eyes, w/o specifically mentioning seizure symptoms- is this what you mean?

from here: http://www.cdlsusa.org/publications/the-cause-of-feeding-dif ficulties-in-cdls-is-sandifer-syndrome.html

“Thirteen patients exhibited behavior most consistent with the Sandifer Syndrome, the most commonly described problems being vomiting and regurgitation, severe irritability, “throwing the head back,” “rolling of the eyes” and “moving around a lot.” Gastroesophageal reflux was documented in 10/13 patients by prolonged pH probe monitoring while three had Barium swallows only. “

[Anonymous]

Thanks Laura!

[Author]

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