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Thought I'd post an update message

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Thought I'd post an update message

This topic has 7 replies, 1 voice, and was last updated 15 years, 5 months ago by Anonymous.

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November 29, 2008 at 2:29 am #59058

Anonymous
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We’ve been on Vigabatrin for two weeks now and Janna is now at her maintenance dose and she seems to be doing well. No more arching and panting and so far no signs of the movements that our EEG pinpointed as seizure And we’re seeing more of our girl, the way she was before her GERD got bad enough to keep her off sleep and then that lack of sleep triggering her seizures. So far so good, we’ll take what we can get!

November 29, 2008 at 7:41 am #59059

Anonymous
Inactive

I am so glad that it is helping her! Thanks for the update

November 29, 2008 at 8:30 am #59060

Anonymous
Inactive

Thanks for the update!! It sounds like things are going well so far! I hope it continues!!!

November 29, 2008 at 9:04 am #59061

Anonymous
Inactive

What a cutie!!!!! You are an amazing Mommy!!!!

November 29, 2008 at 2:25 pm #59063

Anonymous
Inactive

Wonderful news. She is beautiful!

November 30, 2008 at 2:01 pm #59080

hellbennt
Keymaster

November 30, 2008 at 3:14 pm #59081

Anonymous
Inactive

I am glad to hear positive things are happening! I hope you see continued improvement! She is beautiful!

December 1, 2008 at 7:07 pm #59109

Anonymous
Inactive

That’s so great! She’s so adorable. I hope that the meds work well for her. Thank you for the update.
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