We are finally…

[Anonymous]

getting a g tube!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Isaac is having the g tube and muscle biopsy done at the same time. We are just waiting on the hospital to call with the date and time. I requested for the date to be after the 1st of the year so we can enjoy the holidays My dh and I are nervous but all of the drs keeps saying it will be so much better for Isaac

[Anonymous]

Oh Sarah, I know this is so bittersweet for you! Hang in there!! He will be in my T’s & P’s.

[Anonymous]

The boys are SO lucky to have you as their parents! I am so praying for answers for you from the biopsy and lots of luck with the tube! Enjoy the holidays!!!!

[hellbennt]

ditto to all of the above!!

[Anonymous]

HUGS Sarah! I know the feeding journey that you’ve been on as we started off along the same road, so I know that this is bitter sweet for you. But hopefully the biopsy will offer you some answers and the feeding tube will help him to get what he needs. I remember when all of our little food-haters were babies and we were in the thick of it- trying everything to get them to eat. You, along with others on this site really helped me through some dark times. If there’s anything that I can offer you, if nothing more than a shoulder to lean on or an ear to vent to, please email me or call me. I know the challenges of seeking answers for your child, and the fear of the unknown, and how hard it is to find people sometimes who can relate to what you’re going through. Sometimes I was so scared with Sarah and felt so alone, as if no one got it. You are so strong and Isaac is so lucky to have you on his side fighting for him. Please keep us posted. We’ll pray for you and Isaac!

[Anonymous]

Thanks! I don’t think I would have made it through the last 4 1/2 yrs without this board!

The theme in our life lately has been detours…you know when you expect life to go one way and it takes a huge detour…but it always ends up ok. Our most recent detour is that Eli is having issues. He just started walking at 17 months and is very unsteady. At his first PT session the PT said that he has almost spastic movement in his legs It was shocking to hear. We saw the pediatrician the next morning and she referred us to neurology. Eli will be seeing the same neurologist as Isaac to see if he can make a connection between the 2 boys. Eli’s problem may be genetic or it may be a type of cerebral palsy…or other equally not good things.

Lori-I think back to those times when Hailey and Isaac were the non eating kids that stressed us out all of the time. It is not very often at all that I get to talk to someone who really understand feeding aversions and I found enough support with you and a few others that got me through tough times with Isaac.

[Anonymous]

Sarah,

I am so sorry to hear that now you have worries with Eli!! As strange as it may seem that this would pop up now, I pray that this will only help connect the puzzle peices for doctors and that it can offer TONS of help for both boys!!! You are an amazing mom. I want to say “I know JUST how you feel” but I cannot say that, but I can relate in a different way and can definitely relate to the detours. I’ve SO been there!! Stay strong. You are in my prayers!

[Anonymous]

Oh Sarah! I’m so sorry to hear that Eli is having trouble. If you can, try to wait to see what the neurologist says before letting all the scary thoughts take over. I know that it’s easier said than done though.

You are so strong and your boys are so luck to have you. I hope that whatever answers you find helps your boys. Hang in there. HUGS.

[Anonymous]

Jill- Thanks! I appreciate what you said alot

Lori- Thanks! We are trying to just take each day one at a time and not trying to look ahead too much anymore

[Author]

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